@halcionandon@disabled.social
@halcionandon@disabled.social avatar

halcionandon

@halcionandon@disabled.social

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)

Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

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halcionandon, (edited ) to melbourne
@halcionandon@disabled.social avatar

Anybody heard of Dr Catherine Algie in pain management?

Is she any good?

In

Can recommend anyone else if not?



@chronicpain @mecfs @longcovid @endometriosis @neisvoid
@chronicillness

halcionandon, to neisvoid
@halcionandon@disabled.social avatar

Not doing great.

Cannot use fb (groups constantly recommended - I Cant), Instagram, instant messaging- cause sensory overload /memory loss /

Thanks to people who checked on me. It’s a bad time.

If want contact me or give good doctor advice send here, X or email. Will try to check.


@mecfs @chronicillness @neisvoid @chronicpain @longcovid

halcionandon, (edited ) to neisvoid
@halcionandon@disabled.social avatar

Not doing great.

Cannot use fb (groups constantly recommended - I Cant), Instagram, instant messaging- cause sensory overload /memory loss /

Thanks to people who checked on me. It’s a bad time.

If want contact or give doctor advice send here, X or email.


@mecfs
@chronicillness
@neisvoid
@chronicpain
@longcovid

halcionandon, to Mushrooms
@halcionandon@disabled.social avatar

Are a real relieving thing? Still legal in Oz.

has been suggested.

Microdosing of various kinds have also been suggested. Can’t get the magic kind without a prescription from a psychiatrist, but the rest are legal afaik. Do they work?


@chronicpain @mecfs
@chronicillness

halcionandon, to melbourne
@halcionandon@disabled.social avatar

Please help me find a /any willing to prescribe patches (or dose equivalent) within 6 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me bc my case is too complex). Changed his mind! Now have 6 days to find any doctor to write a script or agony & no control.

Time running out fast!6️⃣ DAYS 😫

helpful!


@chronicpain @mecfs

@longcovid @chronicillness

halcionandon, (edited ) to australia
@halcionandon@disabled.social avatar

If things go bad & I can’t get on time, can anyone recommend /remedies/whatever to help withdrawal?

Also, is there anything legal & equivalent in pain control to 25ug fentanyl (not as strong as you think). If I can find something I don’t need a script for that would be great so I’m not held hostage like this in future.

Medicating yourself is pretty much illegal in unless it’s alcohol.

is illegal btw

@chronicpain
@mecfs

halcionandon,
@halcionandon@disabled.social avatar

@chronicpain @mecfs
@endometriosis

Also wanted to point out that I have & this mofo dr doesn’t think I need painkillers.

tears phone book in half

Any endo remedies welcome. No hormones please. IUDs or otherwise. I’ve had oestrogen blockers pushed on me but refused because of the huge osteoporosis risk. Turns out they don’t help & oestrogen isn’t the problem in endo…🤦‍♀️

halcionandon,
@halcionandon@disabled.social avatar

@qwazix @chronicpain @mecfs

Doesn’t help me. Need prescription unless you have “special friends”. Nearly everything in Australia needs a prescription.

halcionandon,
@halcionandon@disabled.social avatar

@jarich @chronicpain @mecfs

Been looking for a new GP for a year and nobody wants a complex case.
This GP is not bulk billing. I was referred to a pain specialist but after much messing around the GP decided to handle it, then changed his mind and dropped me. Entire thing mismanaged and now I have to suffer.

Private
halcionandon,
@halcionandon@disabled.social avatar

@lydiaschoch @chronicpain @mecfs @longcovid @chronicillness

I’m still waiting. 12 days to go. There are doctors on Mastodon too… (helloooo?)
Thanks. 💜

halcionandon, to melbourne
@halcionandon@disabled.social avatar

Please help me find a or any willing to prescribe patches within the next 17 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 17 days to find any doctor to write a script or agony for me & no control.

Time running out fast!😫


@chronicpain @mecfs


@chronicillness @longcovid

halcionandon,
@halcionandon@disabled.social avatar

@vlrny Have asked. No suggestions. Just best wishes.

halcionandon,
@halcionandon@disabled.social avatar

Now 14 days to go!

@chronicpain @mecfs @chronicillness @longcovid

halcionandon, (edited ) to melbourne
@halcionandon@disabled.social avatar

‼️➡️ Please help me find a or any willing to prescribe patches within the next 20 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 20 days to find any doctor to write a script or agony for me & no pain control.

Time running out fast.😩


@chronicpain
@mecfs


@chronicillness
@longcovid

Private
halcionandon, (edited )
@halcionandon@disabled.social avatar

Are there any here that can help me out with this? I’d be so incredibly grateful.




@chronicillness @chronicpain
@mecfs @neisvoid

halcionandon, (edited )
@halcionandon@disabled.social avatar

Are there any here that can help me out with this prescription? Fentanyl or anything dose equivalent. I’d be so incredibly grateful.




@chronicillness @chronicpain
@mecfs @neisvoid

halcionandon, to GPS
@halcionandon@disabled.social avatar

Are there any in who:
A) Like complex patients?
B) Are still taking on complex patients? All I‘ve tried are full.

I’ve tried asking everywhere. Hundreds. I’m so tired. 😩




@medmastodon
@chronicillness
@mecfs
@longcovid
@chronicpain

halcionandon,
@halcionandon@disabled.social avatar

@markusl @medmastodon @chronicillness @mecfs @longcovid @chronicpain
Thank you 🙏

vlrny, to random
@vlrny@disabled.social avatar

A bug just drown in my tea. My tea was topped with a layer of cannabis oil.

Best way to go, really.

halcionandon,
@halcionandon@disabled.social avatar

@vlrny what’s the difference between cannabis oil and CBD oil?
Way to go bug.

halcionandon,
@halcionandon@disabled.social avatar

@vlrny ah ok 👍 your tea sounds good even with a deceased bug.

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

New review from a researcher in the US:

Surveying the Metabolic and Dysfunctional Profiles of T Cells and NK Cells in /

Free fulltext:
https://www.mdpi.com/1422-0067/24/15/11937

@mecfs

halcionandon,
@halcionandon@disabled.social avatar

@tomkindlon @mecfs This is me after Covid. NK cell dysfunction was present before.

Private
halcionandon,
@halcionandon@disabled.social avatar

@AlwaysInFlannel @chronicillness
🤷‍♀️

halcionandon, to mecfs
@halcionandon@disabled.social avatar

Where are the people?

Say hi 👋🏻

(I was hoping we’d build a / chronic illness-type place here.)

@neisvoid @mecfs
@chronicpain
@chronicillness
@disability

atomicpoet, to random
@atomicpoet@mastodon.social avatar

Mastodon is a case study for why software and protocols built to help one marginalized community may end up alienating another marginalized community.

This is why intersectional examination of prejudice is so important.

halcionandon,
@halcionandon@disabled.social avatar

@atomicpoet Disabled people too.
Never seen CW, open harassment.

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