Kaonarose, to random
@Kaonarose@disabled.social avatar

Positive news for the day: The doctor filled out forms for me to get an accessible parking permit! Fingers crossed that it gets approved. This would be so majorly helpful for me, particularly on high pain days! I don't drive, but sometimes, I get rides places and all the walking can make my pain worse.

AceyAngel, to trans
@AceyAngel@disabled.social avatar

Emergency aid for disabled individual;
$180/600 groceries/eye appointment/ Visa app fees

$50 for eye appt at minimum
$200 for weekly groceries
$350 cost for new Visa application

Anything helps. Please boost / share 🔁

https://www.paypal.me/addriannawing1
https://cash.app/$AceyAngel



tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

New 12-minute video:

"I believe microglia are the primary culprit behind #fibromyalgia, #MECFS, #GulfWarIllness, #LongCOVID, and other #chronicpain & fatigue disorders.

Here is a quick video on what I am trying to do to fix the problem. - Jarred Younger"
https://www.youtube.com/watch?v=XggO__DlALw

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME @longcovid
#PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
@chronicpain @fibromyalgia
#Fibro #FMS #FM

serenebabe, to random
@serenebabe@mastodon.social avatar

This this this this this!

janetlogan, to spoonies
@janetlogan@mas.to avatar

I woke this morning at 4am with a massive already in progress. Easily an 8 on the (relatively useless) pain scale. If this one had an aura, I slept through it. Ugh.

Got up and took some Tylenol. The pain has moved from acute severe to chronic annoying. Yes, Tylenol. Can't take NSAIDs due to . No Rx meds for the migraines as they don't occur often enough to meet the criteria. 🤷‍♀️

@spoonies

NickEast, to chronicillness
@NickEast@geekdom.social avatar

My chronic illnesses are having one of those, we're too tired to do anything days. Or more like week. 😂
I just wish it didn't have to mean that my mind takes it upon itself to make me feel bad about not doing enough. 🤔

@chronicillness @writing @writers @writingcommunity @writing

wakehamAMR, to ADHD
@wakehamAMR@mastodon.social avatar
aby, to Autism
@aby@aus.social avatar

Packing for hospital next week.

I have shoulder surgery on Wednesday and it will be an overnight stay (hopefully only one night!), probably in a shared room.

Tips and tricks for preparation and packing would be super helpful, please!

vlrny, to random
@vlrny@disabled.social avatar

Seemingly dead obvious thing I just realized that has unleashed a pile of self forgiveness:

I can't always be nice when I am in pain.

waysandbeing, to art
@waysandbeing@mas.to avatar
katha1970, to mecfs German
@katha1970@medibubble.org avatar

To all those who have literally “lost” their life due to suffering from a debilitating chronic illness:

Here is a song I wrote for my family -

“Is this really life?”

Maybe it resonates with some of you, too.

Feel free to share with whoever it may do well 💚

https://youtu.be/KR2p9NlWrqI?si=vF_0sz2Mg7vCjBHO

ScienceDesk, to science
@ScienceDesk@flipboard.social avatar

CBD products have been marketed as a chronic pain reliever in many forms — oils, vapes, creams, gummies, drinks and more. But do they actually work? A recent review of relevant studies published in scientific journals found that evidence does not support the claims. But, the International Association for the Study of Pain said in a statement, "This is not a door closing on the topic." More from Science Alert: https://flip.it/r2pZZM

janetlogan, to spoonies
@janetlogan@mas.to avatar

2nd f'ing this week just started. I hate my body sometimes. Well, if I'm being honest, most of the time.

@spoonies

dkozlov, to Sleeping
@dkozlov@mstdn.games avatar

I haz a new bed as of today, courtesy of friends. Even more than the attractive bedframe, with under-bed storage drawers yet, I treasure the gel-and-memory-foam mattress for promising the ol' CrankyBod<tm> a decent night's sleep for a change. We'll see how sleep goes tonight.

waysandbeing, to philosophy
@waysandbeing@mas.to avatar

🙌🏽🥳 Ahhh, the elation of simply not feeling absolutely terrible!

I dedicate this special moment (passing as it might be 😝) to folks out there also with (1 or 10+ of them 😂) 🤙🏽

You rock, even if / when you don't feel like it! 🤘🏽


@chronicillness @mecfs

ElleGray, to random
@ElleGray@mstdn.social avatar

deleted_by_author

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  • ChrisCPS,
    @ChrisCPS@mstdn.social avatar

    @ElleGray people every day

    Moby_MicroDick, to random French
    @Moby_MicroDick@piaille.fr avatar

    ♿ 🛏️
    C'est jusqu'au 6 avril,
    l'exposition "De la vie au lit",
    à Montréal, mais proposant des modalités de retransmissions web,
    et il s'agit du travail fondamental de l'excellente commissaire française Sarah Heussaff (qui est actuellement publiée dans le dernier Multitudes).

    Je suis profondément heureux de ce travail, il correspond notamment à plein d'échanges entre Sarah et moi, et la continuité de son travail pointu dans les Disability Arts / Arts Handicapés.
    C'est tout un pan de la culture handie & malades chroniques qui est étudiée via nos vies alitées puissantes. Nous existons allongé-es.

    Vive invitation à regarder.
    👉 https://galerie.uqam.ca/expositions/de-la-vie-au-lit/

    Moby_MicroDick,
    @Moby_MicroDick@piaille.fr avatar
    tomkindlon, to mecfs
    @tomkindlon@disabled.social avatar
    MikeImBack, to disabled
    @MikeImBack@disabled.social avatar
    SabiLewSounds, to random
    @SabiLewSounds@mastodon.social avatar

    I just want a fucking taco

    While my brain is overly swollen



    scrappedbadnik, to transmasc
    @scrappedbadnik@cooltrans.men avatar

    I can't bind because of chronic pain, and trans tape isn't holding my tits because it's heavy, I can't do surgery either because it takes more than morphine for me to not suffer, what should I do? I'm lost.

    Desertdragon, to mentalhealth
    @Desertdragon@mastodon.social avatar

    Woke up for the third day with super bad back pain.

    It's making me cranky.

    Plus weird ass dreams.

    So cranky and tired.

    MikeImBack, to random
    @MikeImBack@disabled.social avatar

    A story about one woman's decent into energy deprived . I can absolutely relate, but for me it's zapping my energy like you wouldn't believe. The best I can get out of life right now, is trying to live a normal life on the internet, as that just requires two thumbs. If I didn't have the internet, I may not even be alive today.

    Please take a second to read this very short article about an invisible life-controlling illness, so that the 'lazy' bias-ness can be killed ⬇️

    tomkindlon, to mecfs
    @tomkindlon@disabled.social avatar

    Mornings can be tough for people who have sleep problems, which are very common in ME/CFS as well as many other chronic illnesses and pain conditions

    #MEcfs #CFS #PwME @mecfs @longcovid
    #LongCovid #chronicillness #ChronicPain @chronicillness
    @spoonies

    janetlogan, to actuallyautistic
    @janetlogan@mas.to avatar

    is really acting up today. pain is much higher than normal too. Thanks to the brain fog, I totally spaced on a group session earlier.

    @spoonies @actuallyautistic

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