longreads, to LongReads
@longreads@mastodon.world avatar

"Yet the crackdown had an unintended consequence, one little examined today: it has increased the suffering of patients who experience chronic pain, as medications that were once heavily promoted have since been restricted." —Ann Neumann for The Baffler

https://thebaffler.com/salvos/pain-and-suffering-neumann

technicolourpenguin, to ADHD

Hi! I'm (probably) Ember (trying it out). I also go by Zemri.

. They/them and neutral terms only unless otherwise indicated. leaning in physical presentation. Been on T for almost 5 months now. Mostly just goblin mode at all times.

(see above about perpetual goblin mode)

to a wonderful

Human to two and a senior

(Almost) 10-year Partner to @PurpleStephyr

. openly flirtatious. Guilty of being horny on main but also use CWs gratuitously.

Night shift , I talk a lot about , , and . Also about how the system in Canada is in shambles.

, I love to and . We try to and grow our own produce with varying levels of success. Passionate about and

I , hoard yarn, and try to learn how to on and off.

I love to , , and be

and other enjoyer

Other shit that I might post about but isn't worth details being in my intro:

KayeMac04, to random
@KayeMac04@mastodon.social avatar

has and it doesn’t matter that he’s a billionaire.

Most of his treatment will be the same for an NHS patient.

But not all. He’ll get timely treatment and he’ll be given the expensive options. If he needs palliative care and pain relief this will be 24/7. Most of us won’t get that unless a charity can provide it.

Now is the time to boost the of UK charities like Macmillan Cancer Support and of local hospices -who are struggling for funding.

ASegar, to TodayILearned
@ASegar@mastodon.social avatar

Why you should use the healthcare strategy "ask, tell, ask" when you want to connect fruitfully in a learning environment.

https://www.conferencesthatwork.com/index.php/consulting-2/2015/11/ask-tell-ask

msquebanh, to vancouver

’s workaround to allow medical assistance in dying () at will not prevent the continuing of at other religious-run & , says a .

“I’m actually shocked,” said Jyothi Jayaraman, who quit her job at a Vancouver hospice, May’s Place, because it stopped providing MAID once it was taken over by .

https://vancouversun.com/news/national/palliative-care-doctor-speaks-out-about-provinces-maid-changes-for-st-pauls-hospital

AnneCamozzi, to art

Just donated these two paintings to the palliative care unit at our local hospital.
Art heals and soothes the soul.
Be kind.

Purple and pink flowers against green leaves - a feeling of peace

brainwane, to random
@brainwane@social.coop avatar

New long blog post: Eldercare, Family Caretaking, and End-of-life Logistics: Stuff I Learned

http://harihareswara.net/posts/2023/eldercare-family-caretaking-end-of-life-logistics-learned/

Topics:

You HAVE to take care of yourself

Changes to expect in the months/weeks/days before death

Checklists for before & just after death

Wills, powers of attorney, & advance health care directives

Easy-to-eat food; letting your friends help you

Hospital chaplains can do a lot

Patient advocacy (catching mistakes)

Medical notetaking at appointments and the bedside

[1/n]

brainwane,
@brainwane@social.coop avatar

Researching specific treatments & how to perform at-home procedures

Organ/body donation; donating unused medicine

Palliative care, hospice, insurance/Medicare, & hospice facility eligibility

Delirium & persuasion

Music for comfort

Books & blogs that helped me prepare for this

#eldercare #caregiving #caregiver #caregivers #EndOfLife #healthcare #medicine #PalliativeCare #hospitals #PatientAdvocacy #EstatePlanning #DeathCare #hospice

This was, at times, hard to write. Hope it helps.

[2/n]

pluralistic, to random
@pluralistic@mamot.fr avatar

It's not that aren't sometimes right - it's that even when they're right, they're highly selective about it. Take the hoary chestnut that "," trotted out to deny humane benefits to poor people on the grounds that "free money" makes people "workshy."

--

If you'd like an essay-formatted version of this thread to read or share, here's a link to it on pluralistic.net, my surveillance-free, ad-free, tracker-free blog:

https://pluralistic.net/2023/08/05/any-metric-becomes-a-target/#hca

1/

pluralistic,
@pluralistic@mamot.fr avatar

Sometimes, these sham hospices deliberately induce overdoses in their patients in a bid to make it look like they're actually in the business of caring for the dying. Incentives matter:

https://www.newyorker.com/magazine/2022/12/05/how-hospice-became-a-for-profit-hustle

Now, hospice care - and its relative, - is a crucial part of any humane medical system.

18/

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