tomkindlon, to cfs
@tomkindlon@disabled.social avatar

🧵
ABC News (Australia):
"How Dave Clark regained a meaningful life after developing "

https://www.abc.net.au/news/2023-12-08/dave-clark-on-living-with-chronic-fatigue-syndrome/103071294

2-minute video of Dave reading his poem plus a separate text piece by him

Dave who became ill with at 21 17 years ago, describes what it’s like to live with the condition, the impact on his life & sense of self worth, & how he has built a meaningful life, despite the condition.

@mecfs

1/

tomkindlon,
@tomkindlon@disabled.social avatar

2/

“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”

“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”

@mecfs

Private
ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

UK and Scotland plan an online photo campaign for Millions Missing

"We want to flood social media with powerful images that show the reality of life with ME and what people are missing, as well as the loss it also means for carers, families, schools and communities, and ask the question ?"

Two photo categories:

  1. Your view with ME

  2. Spaces people with ME are missing from

https://www.meaction.net/2023/04/14/join-the-uk-and-scotlands-digital-campaign-this-millionsmissing/

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From :

"Join the UK and Scotland’s digital campaign this Millions Missing"

"We want to flood social media with powerful images that show the reality of life with ME and what people are missing, as well as the loss it also means for carers, families, schools and communities, and ask the question ?"

Two photo categories:

  1. Your view with ME

  2. Spaces people with ME are missing from

https://www.meaction.net/2023/04/14/join-the-uk-and-scotlands-digital-campaign-this-millionsmissing/

@mecfs

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