"From May 6 to 12, CDC will light the Atlanta Visitor Center in blue to recognize ME/CFS International Awareness Day. We are honored to have people with ME/CFS and their caregivers join us to kick off this event."
"We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME)."
"As we approach World ME Day 2024, we invite you to be a part of a new short film that aims to shed light on the reality of Myalgic Encephalomyelitis (ME)"
2-minute video of Dave reading his poem plus a separate text piece by him
Dave who became ill with #CFS at 21 17 years ago, describes what it’s like to live with the condition, the impact on his life & sense of self worth, & how he has built a meaningful life, despite the condition.
“Living with chronic fatigue syndrome (CFS) is like being erased. It rubs out what my brain and body can do, turning me into a reduced version of myself.”
“Having CFS is like being a dormant seed, waiting for just enough energy to come alive.”
"Australia's clinical guidelines for treating ME/CFS are also "20 years out of date", Professor Marshall-Gradisnik says.
While guidelines in the United States and Britain no longer recommend interventions such as graded exercise and cognitive behavioural therapy, Australia's guidelines do."
👀 #MECFS#MeAwareness
I'm so angry that any patient with ME, anywhere in the world, is being told to try graded exercise when there's no evidence it helps and there is evidence that it could make a patient worse.
For anyone who is new to this topic here is an 8 page summary document - from the Science for ME forum - about the issues with the PACE trial:
ME/CFS explained for carers.
«ME/CFS is a complex and disabling disease that affects many systems of the body. These include, but are not limited to, the brain, muscles, digestive, immune and cardiac systems.» «It is not something that they did wrong or a psychological illness.» https://www.emerge.org.au/me-cfs-explained-for-carers/