If you have ADHD, it's hard to explain to (cishet non-ND) non-ADHDers the Othering you experience at every step of seeking treatment to correct an executive function neurocircuitry aberration/variance.
From day one I've received feedback about my hyperkineticism, hyperverbality, impulse control, inability to follow multiple step tasks, my reactivity, rejection sensitivity.
And people wonder why I've only finally found peace working remotely & by cutting out my parents from my life.
@hannu_ikonen I'm of the opinion that we ADHDers are sensitive about rejection because we're rejected daily, if not hourly. That much constant rejection would make anyone sensitive to it.
@hannu_ikonen sadly, so much this! ADHD, ADD, Autism, PTSD, C-PTSD. There MUST be more of us than there are typicals. Medias make it seem like there’s so much awareness & advocacy now, but I don’t see it. I see it getting worse & harder. I need a homecare nurse now to take me to appointments & make calls because people are so intolerant of anything that’s not calm, cool, & collected, which I AM NOT in our current state of madness! Demand a mask, you’re out of line & discharged!
@hannu_ikonen@DEDGirl my clinic forced me to see a Dr that triggered my PTSD. She refused to mask (I’m immunosuppressed). I fired her. My Medicaid insurance wouldn’t help. 5 months I have been without a pcp! Calling all the time, no help. Of course I’m agitated! Finally, yesterday, I call the state ombudsman! My PTSD/C-PTSD also is with authority & phone calls. It’s so hard! My Medicaid insurance is eager to help me now! 🙌
@hannu_ikonen Add to that the whole process of trying to get help and support is about as inaccessible as it possibly could be for someone who has ADHD.
@PacificNic@hannu_ikonen We know you have issues with executive functioning, but here’s a 3 day window for you to call your psych for a new Rx and pick it up because we don’t allow refills or mail order.
@renegadejade@PacificNic@hannu_ikonen or, an issue I've seen a lot lately, "your doctor told us you need this medication. You have three days to pick it up or it's going in the fucking bin. No we will not refill it!"
@renegadejade@hannu_ikonen I have to work hard to remember to take my damn pills, but I'm still treated like an addict. Appointments every three months to make sure I'm not suddenly addicted to the medicine I hate, but need in order to avoid being fired.
@PacificNic@hannu_ikonen hell, getting my meds is difficult. I have to REMEMBER when my Rx is refilled, then call to make sure (bc they've rarely filled it on that date), then REMEMBER to go pick it up. Like,,,hello?? This is a known symptom/issue for us, why tf is it designed this way?!?
@hannu_ikonen Oh big mood. A large part of my childhood trauma is my dad being mad because of me not doing/remembering something and him taking it personally. I had ADHD the whole time, my guy. Plus a side dose of being treated like an addict by providers and pharmacists alike simply for having an Adderall Rx.
@hannu_ikonen typical "I don't have this problem so it can't be real".
I admit I was like this about ADHD as a young teen, because my little brother got off the hook for all of this shit that was hard for me because of his diagnosis.
I wasn't mature enough to see that THAT was a warning to ME, but I fucking grew up eventually.
@hannu_ikonen ADHD is likely the best characterized and supported diagnosis in all of DSM-5-TR, at least from an evaluation, measurement, and adequate treatment standpoint.
It’s about respect. If I’m doing something that is problematic, & it’s a consequence of my ADHD, & I say that I’m doing all I can to manage it, then that needs to be respected. Other people might not know or understand how that can be, but that doesn’t come into it. They either respect me, or they don’t. And if they don’t…
@hannu_ikonen I'm literally in the waiting room of my therapist, trying to unpack decades of ... I don't know yet. I relate to so much of this thread, and knowing that you're not alone is always helpful. Pushing 50 and still learning this stuff about yourself still makes me feel like a bit of a failure, but I'm determined to see the light at the end of this tunnel.
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