CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

Congratulations to the inspiring .BruceMiller, who received the Susan Newhouse and Si Newhouse Award of Hope for his lifetime of research into (). His brilliance and empathy have touched so many, myself included. At the end of my memoir with Bruce, I wrote about how he was the doctor I wish my father, who had -onset 's, had known.

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

"All major brain diseases—Alzheimer’s, Parkinson’s, ALS, Huntington’s—are associated with some amount of smell loss." Read this article about the link between smell loss and neurodegenerative diseases. https://archive.md/2024.01.15-144112/https://www.wired.com/story/a-key-to-detecting-brain-disease-earlier-than-ever/

#EndAlz

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@StevenvdV82. For anyone reading this thread, perhaps this information about (and statistical overlap with ) is helpful. According to the (Memory and Aging Center), "While estimates vary, it is now believed that approximately 20% of ALS patients also have the signs and symptoms of frontotemporal dementia." https://memory.ucsf.edu/dementia/amyotrophic-lateral-sclerosis

Here is a brief explainer from the about . https://www.ninds.nih.gov/health-information/disorders/amyotrophic-lateral-sclerosis-als

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

Thank you, dear reader, for this incredibly kind review of , the I wrote with , .BruceMiller. doesn't take a break for the holidays, which means don't get a break either. Sending strength to those of you who are living with 's, caring for someone with it or another form of dementia (, , , , -onset, -Jakob, and others), and/or loving someone with .

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

https://www.washingtonpost.com/opinions/2023/12/22/nursing-home-care-dementia/

2020: 7 million in the US w/
2040: estimate of ~12 million in the US w/dementia

Dementia is the umbrella term. The "other diseases" include (FrontoTemporalDementia), (repeated concussions), , , Creutzfeldt-Jakob, 's, -onset Alzheimer's & more.

Let's revisit (& pass) 's plan to support financially , who often die before the person w/dementia for whom they are caring. Then what?

Giants overcome 6 no-hit innings, defensive blunders to beat LA in 11 (www.mlb.com)

LOS ANGELES -- In an unusual repeat of history, the Giants pulled out a victory after being held hitless for most of the game by a Dodgers pitcher making his MLB debut. On April 8, 2016, in the first game of his big league career, current Giant Ross Stripling threw 7 1/3 hitless innings at then-AT&T Park before San Francisco...

cindyweinstein, to books

Tomorrow is the last day of the sale. 30% off and free shipping on order $50 or more. The discount code is HMOR23, and the I wrote with is available. Readers have said it's helped explain what happens (or doesn't) in a brain with 's. Bruce is an expert on , especially , and discusses the behind dementia. I talk about , , my , and my for my . https://weinsteinandmiller.com

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