technewslit, to photography
@technewslit@journa.host avatar

Photo-shoot today: State of Personalized Medicine, with keynote given by Monica Bertagnolli, M.D. Director, National Institutes of Health.

More photos ... https://technewslitphoto.smugmug.com/DC-and-region/Personalized-Medicine-Coalition-luncheon-

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

🚨NIH ME/CFS Symposium

Thursday, May 2
9 AM Eastern / 6 AM Pacific

Watch using this link:
https://videocast.nih.gov/watch=54675

This will be a hybrid meeting focusing on findings from the NIH ME/CFS Intramural Study (author Dr. Brian Walitt)

@mecfs

ahimsa_pdx, to Futurology
@ahimsa_pdx@disabled.social avatar

"NIH RECOVER makes long COVID data easier to access"

"Deidentified data from thousands of adults with long COVID are now available to researchers."

https://www.nih.gov/news-events/news-releases/nih-recover-makes-long-covid-data-easier-access

albertcardona, to academia
@albertcardona@mathstodon.xyz avatar

NIH increases PhD and postdoc salaries:

"Predoctoral scholars will receive an approximate 4% increase in their pay level bringing it to $28,224, and postdoctoral scholars will receive an approximate increase of 8%, with pay levels beginning at $61,008 and upwardly adjusted based on years of experience. NIH aims to increase these pay levels over the next five years."

https://www.nih.gov/news-events/news-releases/nih-increase-pay-levels-pre-postdoctoral-scholars-grantee-institutions

For postdocs, "only" ~10k short of entry-level salaries at : https://www.hhmi.org/news/hhmi-announces-postdoc-salary-changes

ttpphd, to academicchatter
@ttpphd@mastodon.social avatar
ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From NIH ME/CFS mailing list:

"Please mark your calendar for these upcoming ME/CFS-related events:

May 2, 2024- PI-ME/CFS Intramural Study Symposium: This will be a hybrid meeting focusing on findings from the NIH ME/CFS Intramural Study

( https://www.nih.gov/mecfs/nih-intramural-mecfs-study )

More information about the symposium, including agenda and registration, coming soon!"

1/3

@mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

From NIH ME/CFS mailing list, continued:

"May 15, 2024—Meeting of the National Advisory Neurological Disorders and Stroke Council:

The ME/CFS Research Roadmap will be discussed during this meeting. The open portion of the meeting will begin at 10:00AM ET and will be livestreamed on NIH Videocast. Meeting agenda will be available soon."

2/3

https://videocast.nih.gov/watch=54421

@mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

From NIH ME/CFS mailing list, continued:

"May 28, 2024—NIH ME/CFS Telebriefing/Webinar:

The webinar will include updates from NIH on ME/CFS-related research activities and a scientific presentation by Dr. Avindra Nath, M.D., NINDS Clinical Director. Registration and Zoom details will be available soon."

3/3

@mecfs

LLS, to Insurance
@LLS@wandering.shop avatar
hannu_ikonen, to random
@hannu_ikonen@med-mastodon.com avatar

Wanna play Diablo 2 Hardcore ladder mode for your immune system?

You know, where you start all over and lose your shit?

Thats .

Thats If you survive the brain swelling. And dont get subacute sclerosing panencephalitis.

hannu_ikonen,
@hannu_ikonen@med-mastodon.com avatar

"Subacute sclerosing panencephalitis (SSPE) is a devastating complication of the measles virus.

Although it is a rare complication and the measles virus is preventable with vaccination, healthcare systems may see more cases given the re-emergence of measles in many countries in the last few years."

https://www.ncbi.nlm.nih.gov/books/NBK560673/

Yes, the actually uses the medical term "devastating" to describe .

ahimsa_pdx, (edited ) to random
@ahimsa_pdx@disabled.social avatar

For my USA followers - an article on the NIH "Home Test To Treat" program:

"Acute COVID-19 treatment and testing is unfortunately becoming harder and harder to access with the U.S. government public health emergency having been declared ended. The Home Test To Treat pilot program is a way to fill that gap in an accessible and equitable way."

https://www.meaction.net/2024/03/07/title-home-test-to-treat-access-free-home-telehealth-for-flu-and-covid-19-infections/

1/?

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From David Tuller, posted on Virology Blog:

"An Interview with Neuroscientist Michael VanElzakker about the Just-Published and Long-Awaited NIH Study"

"The big enchilada from the US National Institutes of Health’s seven-year, $8-million, under-recruited and over-hyped study—”Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome”–was published last week …"

https://virology.ws/2024/02/28/trial-by-error-an-interview-with-neuroscientist-michael-vanelzakker-about-the-just-published-and-long-awaited-nih-study/

@mecfs

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar
petersuber, to random
@petersuber@fediscience.org avatar

New report: "Americans funded the development of all ten up for negotiations with , but [ companies] still want to keep prices for those publicly funded drugs sky high… funding on the ten Medicare medications up for price negotiations ranged from $228 million to $6.5 billion per drug…This public funding saved the drug industry billions in research and development costs. Now those drugs are making pharmaceutical companies billions."
https://jacobin.com/2024/02/big-pharma-drug-price-negotiation-public-funding/

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

New:
Data from NIH in-patient, multi-million dollar study:
Deep phenotyping of post-infectious /

Free fulltext:
https://www.nature.com/articles/s41467-024-45107-3

Has some controversial elements but plenty of other findings also

@mecfs

ahimsa_pdx, (edited )
@ahimsa_pdx@disabled.social avatar
ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

"Could Long Covid Be the Senate’s Bipartisan Cause?"

Gift link =
https://www.nytimes.com/2024/02/18/opinion/long-covid-research-funding.html?unlocked_article_code=1.WU0.Or1N.6rvJ0-zFgq92&smid=url-share

Comment on recent US Senate hearing on Long Covid. Good to see bipartisan support! NIH needs to do better when funding research.

@longcovid @mecfs

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

"NIH to bolster RECOVER Long COVID research efforts through infusion of $515 million"

https://www.nih.gov/about-nih/who-we-are/nih-director/statements/nih-bolster-recover-long-covid-research-efforts-through-infusion-515-million

"1 in 9 adults in the United States who have ever had COVID-19 continue to experience Long COVID with a wide range of symptoms. Many symptoms are debilitating, affecting patients’ ability to work and go to school.

To bolster Long COVID research efforts, NIH is investing an additional $515 million over the next four years"

@longcovid @mecfs

mgorny, to gentoo Polish
@mgorny@pol.social avatar

Jest sobie paczka Pythona o nazwie . Dostarcza API do "monitorowania zdarzeń systemu plików", i jest używana przez kilka innych paczek. Dawniej jedną z nich był .

W roku 2020, uvicorn zastąpił zależność od WatchDoga paczką . Jeżeli dobrze pamiętam, nic innego w nie używało nigdy WatchGoda.

W roku 2022, WatchGoda porzucono, a właściwie przepisano w Ruście jako . Oczywiście, uvicorn podążył za tą zmianą, i usunięto wsparcie WatchGoda (tak jak poprzednio usunięto wsparcie WatchDoga) na rzecz WatchFiles.

Dziś, WatchFiles używane jest przez 2 paczki w Gentoo: uvicorn i pelican. Ma znaną niezgodność z anyio >= 4, która nie doczekała się reakcji autora już drugi miesiąc. Wydaje się, jakby projekt WatchFiles był porzucony.

W międzyczasie, WatchDog doczekał się kilka dni temu kolejnego wydania, i wciąż nie sprawia żadnych problemów.

eLife, to random
@eLife@fediscience.org avatar

This study follows the career trajectories of the winners of an early-career funding award and finds that researchers with greater mobility, men, and those hired at well-funded institutions experience greater subsequent funding success. https://elifesciences.org/articles/88984?utm_source=mastodon&utm_medium=social&utm_campaign=organic

cbarbermd, to random
@cbarbermd@med-mastodon.com avatar

“Long COVID stripped away my daughter’s life as she knew it,” said Nicole Heim. Experts, patients warn Congress about the burden of long COVID as the government blows through $1.15 billion without finding a cure.

http://tinyurl.com/3w8w3yhh

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

"All major brain diseases—Alzheimer’s, Parkinson’s, ALS, Huntington’s—are associated with some amount of smell loss." Read this article about the link between smell loss and neurodegenerative diseases. https://archive.md/2024.01.15-144112/https://www.wired.com/story/a-key-to-detecting-brain-disease-earlier-than-ever/

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@StevenvdV82. For anyone reading this thread, perhaps this information about (and statistical overlap with ) is helpful. According to the (Memory and Aging Center), "While estimates vary, it is now believed that approximately 20% of ALS patients also have the signs and symptoms of frontotemporal dementia." https://memory.ucsf.edu/dementia/amyotrophic-lateral-sclerosis

Here is a brief explainer from the about . https://www.ninds.nih.gov/health-information/disorders/amyotrophic-lateral-sclerosis-als

petersuber, (edited ) to random
@petersuber@fediscience.org avatar

The New England Journal of Medicine () just endorsed the policy from the .
https://www.nejm.org/doi/full/10.1056/NEJMp2308792
()

This is only news because in 2016 it editorialized against open data, referring to supporters of data sharing and reuse as "research parasites".
https://www.biopharmadive.com/news/nejm-editor-drazen-hit-with-big-backlash-over-research-parasites-comments/412784/

Forbes has a story on the NEJM reversal. The link is dead but here's a copy from the Wayback Machine.
https://web.archive.org/web/20240101133515/https://www.forbes.com/sites/stevensalzberg/2024/01/01/nejm-reverses-itself-on-research-parasites-as-nih-beefs-up-data-sharing-rules/?sh=7e7c77bd25c6

PhiloNeuroScie, to random
@PhiloNeuroScie@neuromatch.social avatar
brittanytrang, to Futurology
@brittanytrang@newsie.social avatar

panel calls for fewer, better-paid postdocs in bid to halt loss of scientists to industry

The group called for raising minimum salaries to $70,000 beginning next year.

https://www.statnews.com/2023/12/15/nih-life-science-postdocs-salary-increase/ via @STAT

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

🚨Registration deadline is tomorrow (Tuesday, Dec. 5) for this 2-day meeting, held on behalf of the NIH ME/CFS Working Group:

"Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID"

Tuesday, Dec. 12
9:00 am - 5:00 pm Eastern Time

Wednesday, Dec.13
9:05 am to 3:45 pm Eastern Time

Details here:

https://web.cvent.com/event/efc45a4d-bcc1-4832-b537-8905ae828077/summary

Agenda (draft):

https://custom.cvent.com/A860A3AD1AB445C8B28C304051803976/files/event/efc45a4dbcc14832b5378905ae828077/0b7884e3056d46428d214b69658733ce.pdf

@mecfs
@longcovid

ahimsa_pdx, (edited )
@ahimsa_pdx@disabled.social avatar

I saw three patient activists (listed as "Lived Experience Speaker") on the agenda - Vox Jo Hsu, Ashanti Daniel, and Chimére Sweeney.

I recognize those names from different events but I think several spoke at the demonstration in DC on May 12:

https://millionsmissing.org/dc-protest/

(Quick skim, so I may have missed some names! And I think one speaker was still TBD)

@mecfs @longcovid

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