Im so tired of having to walk this fucking knife edge with what i eat and what i do and how i sleep and what i drink and how i exercise and just on and on and on and on.
My partner just kissed me and smelled faintly of peanut butter and i had to go scrub my fucking mouth out just in case they got some in my mouth and I have a reaction.
Now I get to sit here and wonder if im going to vomit for the next 5 hours, blowing my voice out and emptying my GI of any acid or bile and then probs some blood just for funsies and then id be stuck in bed for the next 3 days.
Or will my godsdamn throat close up this time? Hopefully it would be in my sleep and Id be done worrying at least.
The only reasonably safe thing i can do is not kiss them for at least 8 hours and hope theres nothing left in their mouth tmrw. Hell, i wont be able to sit next to them cuz the smell gives me so much anxiety i wont be able to think about anything else.
If you have a capable body, use it. I took mine for granted. I used to be able to walk a mile and workout and walk through the entire store without any problems. I can’t now. I got Covid and Covid gave me POTS. Now I cant use my body anywhere near what I used to be able to do with it. The little I can do leaves me so fatigued and exhausted and lightheaded for days afterwards. If you can physically move your body- do it, you will miss it when you can’t anymore. #covid#pots#life#chronicallyill
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C'est jusqu'au 6 avril,
l'exposition "De la vie au lit",
à Montréal, mais proposant des modalités de retransmissions web,
et il s'agit du travail fondamental de l'excellente commissaire française Sarah Heussaff (qui est actuellement publiée dans le dernier Multitudes).
Je suis profondément heureux de ce travail, il correspond notamment à plein d'échanges entre Sarah et moi, et la continuité de son travail pointu dans les Disability Arts / Arts Handicapés.
C'est tout un pan de la culture handie & malades chroniques qui est étudiée via nos vies alitées puissantes. Nous existons allongé-es.
I think as well as sharing my Autistic experiences I'm going to also try and share information about my combination of chronic diseases and what it does to an individual's body over time... It seems many people I am close to have never even heard much about Celiac's or especially Graves' disease...
I'm Nate, a 28yo 🇧🇷 transgender man, very autistic and going also through a lot of stuff, but I believe sonic the hedgehog will heal me fr
oh, yeah, I post a lot of my daily thoughts, I look like a little lad without graduation but I do have one, an IT grad, I love the silly computers a lot :neocat_cool: I'm still looking for a job btw :neocat_cry:
the tags below are just related to things I'll mostly follow here :neocat_flop: so...
Hi all. How's everyone doing today? I have a question for those with #chronicIllness who use natural remedies, particularly #herbalism, to help with your illness, instead of or along with western medicine. My mom got me some stuff to start a #garden since she thinks I'll love growing my own food and #herbs, and we also think it would be good to see if we can find any herbs that might help with my health issues. She seems to think it's enough to just look up herbs and what they do, but from what I'm reading, there's a lot more to it than that, since they might need to be prepared in a certain way, or there might be a certain tradition or way of use behind them, so I'm trying to find resources to teach me about herbs and how to use them, and maybe just natural and alternative medicine in general. There seems to be a lot of stuff on YouTube, but it's hard to know what's reliable or might be too visual since I'm #blind. I've looked at online courses, but I don't know about #accessibility and most cost a lot of money, which we don't have. Does anyone have any suggestions for where I can learn about herbalism, #alternativeMedicine, and things like that in an affordable, #accessible way? #chronicallyIll#NEISVoid@chronicillness
Got my postal vote for upcoming referendums in Ireland, so I thought I would remind people of this option for future votes (it's too late for the referendums).
I got to get out of the house yesterday! My girlfriend and I went for a drive and I saw SCENERY and NATURE and ART and it was so good for my soul. When #MECFS keeps you homebound most of the time, a few hours of seeing something besides the inside of your house feels magical. Hoping the PEM isn’t too bad, but it was worth it! We had to pull over and take pictures of this fascinating house—and it feels like a house others who are #ChronicallyIll would relate to!
"To explore experiences of patients who have complex chronic conditions, such as #fibromyalgia & #chronicfatiguesyndrome, when they request medical assistance in dying (#MAID) in Canada"