LMNT’s electrolyte sparking waters are my new fav, like many with who are bulk electrolyte salt subscribers they sent me a free 8-pack, Black Cherry Lime is the best IMO, tastes like Sonic’s famous cherry limeades, unpaid recommendation! What’s yours? 🍒🍋🟩
Trying to balance weight from a necessary high sodium #POTS#dysautonomia diet (with lymphedema from #EDS#MECFS, and disability exercise barriers) is tough
I may experiment with more sparkling water and less salts, see where it gets me!
"In this article, we review the evidence surrounding the post-acute sequelae of COVID-19 and the potential benefits of the use of heparin, with a special focus on the treatment of postural orthostatic tachycardia syndrome”
So I need to make more space and lose more of my own living space to move the AC so that the temp differential doesn't kill the TV that I can not afford to replace.
I needed to get spoons to get up and do this, as I am bed-bound.
My 11 yro is angry that I am not doing what he wants, and would not let me do what I needed to get spoons, he stole my spons.
And now he is livid at me, because I have less spoons than I started the day with, I can't do now, hell I can't even eat now.
And he is screaming at me blaming me for not doing what needed to be done so he could get what he wanted in the first place.
I am so exhausted and overheating with my meds; if I overheat, bad things happen.
And he just doesn't get it.
As far as he is concerned, it's all my fault that his day and plans, which he never shared, to begin with, are ruined.
A fun #medical story from my past week… I’m trying to share the positives.
I had a surgical procedure Monday and had 4 nurses involved during various steps. My 2 surgical nurses knew what POTS was and treated me so well - they gave me extra fluids. :)
My last nurse in recovery… her 16 year old daughter has #POTS. What did I do? Of course I talked to her and answered questions and was an advocate… on my surgical bed… because that’s what I do. 💜☺️
So, here’s some personal and professional news… I’m going to be leaving my job pretty soon. 😬
It’s a bit of a wrench, because this job has been a big and exciting thing, for lots of reasons. But, you know, I have been having a shit of a time with the old #CFS and #POTS lately, and…
A small study on #MECFS patients with #POTS compared to controls found
CO2 and Acetazolamide were ineffective, but "PE [Phenylephrine] improved neurocognitive function in ME/ #CFS patients, perhaps related to improved neurovascular coupling, cerebral autoregulation and maintenance of CBV” #PwME
Having a rough day. Multiple #POTS episodes, now with headache. Not #migraine though. I haven't had a day like this since starting compression socks. 😞
@blogdiva
I was ready to post a gift link then saw this isn't behind a paywall!
For those who don't know, POTS is one form of orthostatic intolerance. There are also other kinds.
Folks with ME/CFS often have some form of orthostatic intolerance. It's one of the optional features in CDC diagnostic criteria, meaning it's common, but not required.
Roughly half of Long Covid patients meet ME/CFS diagnosis so no surprise that many of them have it, too.
It's weird to see so many people openly talk about struggling with #POTS (postural orthostatic tachycardia syndrome) because I've been dealing with it since I was a kid and had gotten used to having to explain it to everyone including many doctors, nurses, and paramedics (and thereafter having to tolerate most laypeople on top of medical personnel dismissing me as being over anxious hypochondriac). POTS being a "trending topic" and an actual hashtag because of long covid is a real reality shift for me.
@gersande@stufromoz Having had it for 30+ years (#MECFS) yep. Suddenly everyone is like oh yeah, #POTS is sos weird, where before before I used to have to say “It s a weird blood pressure trick” as shorthand.
I may need to go to hospital and remember being driven back from hospital on other occasions. Does anyone know what these circumstances involve? I can’t remember.
I am sure this happened in the past. Was it ambulance transport?
Local hospitals are saying no they don’t do that so wondering how the eff to get home when can’t stand or sit up long without passing out. #Melbourne#Australia
Gift link to a good article on a jump in diagnoses of an autonomic nervous system disorder among young women especially, after COVID. It's called POTS, I developed it too after a viral infection and you definitely do not want it.
It's very much a part of the suite of awful things that can happen with #LongCovid.
So my Psych is doubling my #ADHD med dose (hooray!) and the medication also helps my #POTS symptoms (vasoconstriction).. I’m looking forward to monitoring how my body responds. Fingers crossed!
"… we invite you to witness the profound narrative of Sean Henneberry, a brave soul who has been navigating the turbulent waters of ME/CFS and Postural Orthostatic Tachycardia Syndrome (POTS) since his early teens."
I got COVID-19 back in mid-February for the first time. I'm feeling a lot better, but I have strange lingering symptoms. It's April 7th. Tired and loss of focus by 2pm, and ever since I got infected, I've been smelling weird odors and having similar aftertastes. Not consistent at all. Has anyone else experienced these symptoms? #COVID#COVID19#LongCOVID@longcovid
Lots of good responses here but I'll add this - folks with #LongCovid or #MEcfs might want to check for orthostatic intolerance.
Diagnosis is by tilt table test (gold standard) or NASA lean test (easier / cheaper but may not detect some types)
Meds might help, but even if they don't work it's helpful to know that standing, or even sitting upright for long periods, can make symptoms worse. Reclining with feet elevated, or lying down, is better