Likewise, to random
@Likewise@beige.party avatar

2/1
Tell us about yourself, your published work, your WIP, or anything you think we should know about.

My current WIP is a nonfiction account of the year my dad, who had Alzheimer’s, lived with us. I started it several years ago during a brief time when I wasn’t working and made a fair amount of progress, but set aside when I began working full time. I began writing again at the beginning of this year. I’m close to finishing the first draft. I’d like to try and get it published, that being said, I have never published anything, so I’ve been researching and looking for places that accept submissions. There’s a pinned post on my homepage that tells more about me, so I won’t bore you with it here. 🙂

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@Likewise @jmccyoung. Lisa, there is a book website that you might find helpful/interesting. There are some passages from the book, as well as images in color (that appear in black and white in the book). Also, you'll see links to podcasts and other events I have done (sometimes with .BruceMiller) at various institutions. Here's the link. https://weinsteinandmiller.com

CindyWeinstein, (edited ) to music
@CindyWeinstein@zirk.us avatar

Last night #UCSF was the scene of a joyous celebration in honor of #Dr.BruceMiller's parents, Milton and Harriet Miller. #Music, #art, #poetry, and #science -- especially #neurology -- filled the halls. And lots and lots of love. So honored to be there and to have the #memoir I wrote with Bruce be one of the gifts given to the people who came.

#EndAlz

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

Because today is the 1st day, I'm sharing a page from the informative & whimsical glossary from my memoir written w/, .BruceMiller. Our goal is to give readers, , persons with , a greater understanding of the diseases of dementia. Providing definitions of terms used by was especially important to me (not an MD) to include in the book b/c when my dad got sick, we didn't know any of this & it would have helped.

CindyWeinstein, to Mac
@CindyWeinstein@zirk.us avatar

affects over 1 million people in the US. Today is the first . Here is a link to the (Memory and Aging Center) page that provides a brief explanation of this .

https://memory.ucsf.edu/dementia/parkinsons/lewy-body-dementias

Below is an image, drawn by Caroline Prioleau, from my , written with .BruceMiller, showing the different disorders that fall under the category of , including .

CindyWeinstein, to Futurology
@CindyWeinstein@zirk.us avatar

Although I am not a neurologist, I think a lot about the of . I wrote a about my father's -onset 's with , .BruceMiller of 's . It explains where in the the initial assault happens and helps us understand why people can't find the right words and/or garble them and/or repeat them. After many years, I learned that my father had the variant.

cindyweinstein, to HashtagGames


Cat with a C (like .Seuss) or a K ()?

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

Thank you, dear reader, for this incredibly kind review of , the I wrote with , .BruceMiller. doesn't take a break for the holidays, which means don't get a break either. Sending strength to those of you who are living with 's, caring for someone with it or another form of dementia (, , , , -onset, -Jakob, and others), and/or loving someone with .

jimmyb, to plex
@jimmyb@selfhosted.cafe avatar

I just watched Dr. Pimple Popper - The Record Breaking Lump! (S04E01)!

.PimplePopper

jimmyb, to plex
@jimmyb@selfhosted.cafe avatar

I just watched Dr. Pimple Popper - Episode 6 (S03E06)!

#Dr.PimplePopper #Plex #media #TV #TVShow #FilterToHide

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

#JohnsHopkinsUniversityPress sale ends on 12.8. W/discount code of HHOL23, you get 40% off all books & w/purchases over $50, shipping is free. Please consider supporting this wonderful #universitypress (& others!) & if you are looking for a book that clearly explains the #neurology behind #dementia please consider purchasing the #memoir I wrote w/the amazing #Dr.BruceMiller of #UCSF. Here's a link if you want to take a look.

https://weinsteinandmiller.com

#EndAlz
#NarrativeMedicine

Doctor Who Showrunner Announces Controversial Change as It Joins Disney+ (movieweb.com)

Doctor Who enters a transformative era with Russell T. Davies at the helm, confirming its significant shift to Disney+ in 2024, a daring decision for the esteemed British science-fiction series. After reigning as a sci-fi TV favorite for sixty years, the series is making a comeback, complete with a significant alteration that...

jimmyb, to plex
@jimmyb@selfhosted.cafe avatar

I just watched Dr. Pimple Popper - Romancing the Lump (S03E04)!

.PimplePopper

resurrexia, to random

oh great it’s starting my body is shutting down on call i just threw up in the ward pantry bin

resurrexia, to random

Copied verbatim from my IG/FB posts with minor edits for names and local slang.

POD 365.

I am alive, but at what cost? The physical, psychological and professional damage is profound; I still live with chronic, albeit much less pain from how damaged my nervous system and brain has become; I still live in abject fear that the next time pain lances through me it’s getting cleaved with a claymore and not just a papercut; I still live running and chasing, held back from things I should have attained, compromising, sacrificing, wasting my youth playing catch-up.

But I’m still alive, and I have so many people to be thankful for. My endo surgeon and hepatopancreaticobilliary surgeon, for spending those six life-changing hours with me; my pain management attending, for his patience as I failed every single conventional pain medication, my intern year seniors, for desperately trying to get me to eat; the 9B nurses, who had to deal with me throwing up endlessly; and the head of benign gynaecology, who gave me the time and space to pull myself together to commit to the op… not to mention those not even directly involved in my care - mentors who stood by me every step of the way, the nurses who hugged me and gave me chocolate when they found me crying and crying and crying in the ward pantry, classmates who came to see me preop and postop, friends who sat with me in-game on pain-filled sleepless nights, and even the faculty who were incredibly accommodating throughout M5… the list goes on…

Objectively, post-excision life is better now.

I don’t spend every waking moment drowning in pain.

I don’t get accused of trying to skive if I have to take sick leave and explain myself to deaf ears.

I don’t have to titrate a whole fistful of analgesia, antiemetics, laxatives and PPIs anymore.

I can walk, and even run again.

And I can wear pants!!!!!!

Oh right, and I too am a doctor now, despite and in spite of my body failing me.

Painful periods are NOT NORMAL. I have been gaslit all my life by people around me - family, friends, doctors, the media, random people who think they know better - that it is normal for a period to be painful and that I need to suck it up and deal with it. NO. Absolutely not.

Pain is a fundamentally pathological process and should be respected and treated as such. ONE IN TEN women suffer from endometriosis, whether they know it or not.

It is not fair - abusive, even - to anyone experiencing pain of ANY KIND to be told it’s all in their head, they just need to be strong, or any other manner of gaslighting.

There is a cause and a cure, and it is negligent if not outright maleficent to not act on it.

🎗️🎗️🎗️ END 🎗️ ENDOMETRIOSIS 🎗️🎗️🎗️

#endometriosis #endo #endowarrior #endomarch #chronicillness #adenomyosis #obgyn #spoonie #eforendo #endendo #endendometriosis #chronicpain #centralsensitisation #centralsensitization #forwardwego #medicalstudent #doctor #dr

Radiate Beauty: Explore the Magic of Korean Beauty Products at K-Beauty Arabia, Dubai (kbeautyarabia.com)

Embark on a journey of elegance and transformation with K-Beauty Arabia, your exclusive portal to the enchanting world of Korean beauty products in the vibrant city of Dubai. Immerse yourself in a meticulously curated collection that celebrates the essence of Korean beauty, offering a diverse array of transformative skincare and...

CindyWeinstein, to Dogs
@CindyWeinstein@zirk.us avatar

Yesterday, I spoke about , the I wrote with .BruceMiller, at the in . Here I am with a new friend, Mel, and his buddy, appropriately named Buddy. How wonderful and enlightened that can be at the Kensington.



CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

At 3 pm PT, I will be talking about what I learned about , , , and when writing the about my father's early-onset 's -- -- with .BruceMiller. The presentation is sponsored by the 'i State Rural Health Organization and Project ECHO. All are welcome. Attached is the link.


CindyWeinstein, to music
@CindyWeinstein@zirk.us avatar

Lovely story about the healing powers of in people with (and their ). Shout-out to .JoshuaGrill, .

https://mind.uci.edu/the-amazing-grace-of-music-to-alleviate-memory-loss/


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