This profile is from a federated server and may be incomplete. Browse more on the original instance.
poconnor, 4 days ago to random Update on future #treatments for #PKU From the NSPKU conference held May 2024 here are my notes from the sessions on #sepiapterin, #mRNA, #gene #therapy, solute carrier 6, and oral options for #PegPal / #Palynziq https://buff.ly/4awqcJP #LivingWithPKU #RareDisease #phenylketonuria #PCU
Update on future #treatments for #PKU
From the NSPKU conference held May 2024 here are my notes from the sessions on #sepiapterin, #mRNA, #gene #therapy, solute carrier 6, and oral options for #PegPal / #Palynziq
https://buff.ly/4awqcJP
#LivingWithPKU #RareDisease #phenylketonuria #PCU
poconnor, 9 days ago to random Jogging with lettuce: a breakdown or something more sinister? Residents were startled by the spectacle of a small wolf running next to a woman who was panting heavily & carrying an iceberg. 🥬 Inspired by her #PKU clan, the woman combined a daily dog walk with a return to running. “The Allotment is a safe place & I needed to check on the plot. Lettuces were looking good & I fancied a salad for lunch.” Authorities are seeking those who incited the incident. #livingwithpku #jogging #NSPKU2024
Jogging with lettuce: a breakdown or something more sinister?
Residents were startled by the spectacle of a small wolf running next to a woman who was panting heavily & carrying an iceberg. 🥬
Inspired by her #PKU clan, the woman combined a daily dog walk with a return to running.
“The Allotment is a safe place & I needed to check on the plot. Lettuces were looking good & I fancied a salad for lunch.”
Authorities are seeking those who incited the incident. #livingwithpku #jogging #NSPKU2024
poconnor, 9 days ago to random Hubby serves up a phe-free meal to finish my #NSPKU2024 weekend. The All-In-One Aubergine, Tomato & Nigella Seed Curry from India express book
Hubby serves up a phe-free meal to finish my #NSPKU2024 weekend.
The All-In-One Aubergine, Tomato & Nigella Seed Curry from India express book
poconnor, 10 days ago to random Good morning @NSPKU Conference. Metabolic dietitian Suzanne Ford kicks us off with a look at the treasure trove of information on the NSPKU webpage. the research page has open access to relevant studies, while the documents page is a rare resource of helpful information. Plus, full page copies of the News & Views! #livingwithpku #pku #NSKUConference #NSPKU2024 #raredisease #rarediseasecommunity #lowprotein image/jpeg
Good morning @NSPKU Conference. Metabolic dietitian Suzanne Ford kicks us off with a look at the treasure trove of information on the NSPKU webpage.
the research page has open access to relevant studies, while the documents page is a rare resource of helpful information.
Plus, full page copies of the News & Views!
#livingwithpku #pku #NSKUConference #NSPKU2024 #raredisease #rarediseasecommunity #lowprotein
image/jpeg
poconnor, 10 days ago to random Photos from #NSPKU2024 great day, which ended with a bunch of us chilling and shooting the breeze. Perfect. image/jpeg image/jpeg
Photos from #NSPKU2024 great day, which ended with a bunch of us chilling and shooting the breeze. Perfect.
image/jpeg image/jpeg
poconnor, 11 days ago to random Game on! Excited for the first talk. #LivingWithPKU #NSPKUConference #NSPKU2024
Game on! Excited for the first talk. #LivingWithPKU #NSPKUConference #NSPKU2024
poconnor, 12 days ago to india 🇮🇳 Achievement unlocked. Just sold #LivingWithPKU in #India! 🥳 This book is now helping people in 13 countries. Plus, if you are in the #UK, you can now buy direct via Shopify. This helps you with 10% off, and helps me with more support (££!) Thanks all, looking forward to seeing some of you at the #NSPKUConference this weekend #PKU #NSPKU2024 #RareDisease
🇮🇳 Achievement unlocked. Just sold #LivingWithPKU in #India! 🥳 This book is now helping people in 13 countries.
Plus, if you are in the #UK, you can now buy direct via Shopify. This helps you with 10% off, and helps me with more support (££!)
Thanks all, looking forward to seeing some of you at the #NSPKUConference this weekend
#PKU #NSPKU2024 #RareDisease
poconnor, 17 days ago to uk The #aurora seen from Hertfordshire, #UK at 23:30 10th May 2024 image/jpeg
The #aurora seen from Hertfordshire, #UK at 23:30 10th May 2024
soheb, 17 days ago @poconnor WOW! That looks incredible!
@poconnor WOW! That looks incredible!
poconnor, 26 days ago to shortstory Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published. Grab your copy @ Kickstarter .com & search ‘the red hat stories’ #theredhatstories #shortstory #anthology #shortstorywriter #kickstarter #newbook #bookstagram #author #London #londonlife #londoncity #london🇬🇧 #londonlove video/mp4
Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published. Grab your copy @ Kickstarter .com & search ‘the red hat stories’
#theredhatstories #shortstory #anthology #shortstorywriter #kickstarter #newbook #bookstagram #author #London #londonlife #londoncity #london🇬🇧 #londonlove
video/mp4
poconnor, 27 days ago to writing May newsletter from PigPen 🐷🖋️ #writing, #PKU, & #BrainInjury 🚨 #Prescription costs in England & Wales go up! 📣 NSPKU conference & #PKUAwareness month 🧑🔬 Help with #TBI research 🥳 🥳 #TheRedHatStories funded! Last chance to join us in the #Kickstarter which closes on #StarWarsDay #MayTheFourthBeWithYou https://buff.ly/3Wp8jJM
May newsletter from PigPen 🐷🖋️ #writing, #PKU, & #BrainInjury
🚨 #Prescription costs in England & Wales go up!
📣 NSPKU conference & #PKUAwareness month
🧑🔬 Help with #TBI research
🥳 🥳 #TheRedHatStories funded! Last chance to join us in the #Kickstarter which closes on #StarWarsDay #MayTheFourthBeWithYou
https://buff.ly/3Wp8jJM
poconnor, 27 days ago to random When every month is #pkuawarenessmonth … 🥳 #PKU #LivingWithPKU #LowProtein https://www.instagram.com/reel/C6betLNoKnm/?igsh=YjBta3IydnhiMzE3
When every month is #pkuawarenessmonth … 🥳
#PKU #LivingWithPKU #LowProtein
https://www.instagram.com/reel/C6betLNoKnm/?igsh=YjBta3IydnhiMzE3
soheb, 27 days ago @poconnor #books #bookstodon #book
@poconnor #books #bookstodon #book
poconnor, 1 month ago to 13thFloor The second proof of #TheRedHatStories arrived just in time for #WorldBookDay! This is my first #fiction work, an anthology of #shortstories set on #London transport. The #NewBook is looking great, nearly ready for the #Kickstarter backers. Am especially proud of the dedication to my wonderful writing teacher. There is still time to back the book. Go to Kickstarter .com and search "Red Hat Stories". image/jpeg image/jpeg
The second proof of #TheRedHatStories arrived just in time for #WorldBookDay!
This is my first #fiction work, an anthology of #shortstories set on #London transport. The #NewBook is looking great, nearly ready for the #Kickstarter backers.
Am especially proud of the dedication to my wonderful writing teacher.
There is still time to back the book. Go to Kickstarter .com and search "Red Hat Stories".
poconnor, 1 month ago to random A lovely #Friday afternoon, and I plan to enjoy #spring sunshine and #celebrate the success of my first #kickstarter. Also, paid for the #NSPKU conference in May & look forward to seeing everyone. Brief bitof light reading below if you’re interested, otherwise a few photos of to send you into the weekend with a smile https://pigpen.page/kickstarting-the-red-hat-stories/ image/jpeg
A lovely #Friday afternoon, and I plan to enjoy #spring sunshine and #celebrate the success of my first #kickstarter. Also, paid for the #NSPKU conference in May & look forward to seeing everyone. Brief bitof light reading below if you’re interested, otherwise a few photos of to send you into the weekend with a smile https://pigpen.page/kickstarting-the-red-hat-stories/
poconnor, 1 month ago to photography Cheeky Red Hat photo shoot, courtesy of Z Sevcikova. #theredhatstories #kickstarter #shortstories #newbook #bookstodon #photography #london #camden image/jpeg image/jpeg
Cheeky Red Hat photo shoot, courtesy of Z Sevcikova.
#theredhatstories #kickstarter #shortstories #newbook #bookstodon #photography #london #camden
poconnor, 1 month ago to Pubtips The Red Hat Stories will be published! A huge thank you to all those who have supported the book so far - especially @soheb You can still participate as the campaign will run until May the fourth (#StarWarsDay). Go to Kickstarter .com and search “The Red Hat Stories” Thank you all #bookstodon #TheRedHatStories #Kickstarter #Publishing #NewBook
The Red Hat Stories will be published! A huge thank you to all those who have supported the book so far - especially @soheb
You can still participate as the campaign will run until May the fourth (#StarWarsDay). Go to Kickstarter .com and search “The Red Hat Stories”
Thank you all
#bookstodon #TheRedHatStories #Kickstarter #Publishing #NewBook
soheb, 1 month ago @poconnor
@poconnor