OldAndCranky, to random
@OldAndCranky@sfba.social avatar

Another storm is coming in and I hurt everywhere. I feel like such a cliché- old lady who can predict weather from body pain. How fucking annoying.

podkaynelives, to mecfs

Said this to my equally exhausted spouse just now: It's better to be tired with each other than tired of each other.






tomkindlon, to mecfs
@tomkindlon@disabled.social avatar

Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview

Free fulltext:
https://www.mdpi.com/1422-0067/25/1/574

Note: The lead author "is medical adviser to Pharma Nord (UK) Ltd"

@mecfs
@longcovid

@fibromyalgia

1/

tomkindlon,
@tomkindlon@disabled.social avatar

2/
Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview

Free fulltext:
https://www.mdpi.com/1422-0067/25/1/574

@mecfs @longcovid @fibromyalgia

janetlogan, to Autism
@janetlogan@mas.to avatar

I've watched the last two Indiana Jones movies today. Crystal Skull and Dial of Destiny. I enjoyed them both, even under the weather. Yes I am feeling poorly.

One of two possibilities. Either I have a cold, which coincidentally began about 12 hours after the RSV vaccine, or I am having side effects from said vaccine.

Honestly, even if it is from the vaccine, I'm still glad I got it. Vaccines are important, especially at my age. And, no, they don't cause .

1/2

janetlogan,
@janetlogan@mas.to avatar

I've had intermittent low grade fever, fatigue, stuffy head, and occasional cough. The fatigue could be , but the rest is definitely not.

I'm treating with generic Alka Seltzer Cold and Flu. That and bed rest. No big plans for are being ruined. Not to worry.

2/2

@spoonies @actuallyautistic

janetlogan, to spoonies
@janetlogan@mas.to avatar

It’s been another busy day today. Went to clinic for labs. That took way longer than it should have for middle of the week between holidays. Way too peoply too. My self could have done without that.

The phlebotomist was skilled and didn’t cause overmuch pain. That, after commenting on how narrow my veins are. My could have done without that comment.

Came home in pain with back spasms coming and going. Sucks getting old.

@spoonies

FibroJedi, to FFXIV
@FibroJedi@gamepad.club avatar

I am just not controlling my pain at the moment, especially in my shoulders/collarbones. This cold/bug isn't helping.

Trying to find more hope in this much pain is kinda like materia melding in : I have a 10% chance of finding a bit more and a 90% chance of destroying what little I had.

At least my Miqo'te looks pretty while trying :P

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
hollie, to mecfs
@hollie@social.coop avatar

Folks with MCAS, how do you handle a bad flare? I just got hit with one and I'm not doing well. :/

@chronicillness

Norobiik, to random
@Norobiik@noc.social avatar

We should have known. It took a deadly pandemic to wake us all up.

This view of and their potential long-term impacts may lead to research that will also help people with other little understood conditions, such as syndrome and , which experts believe might be triggered by viral infections, Al-Aly said.

: Like , can also lead to lingering symptoms
https://www.nbcnews.com/health/health-news/long-flu-long-covid-influenza-can-also-lead-lingering-symptoms-rcna129787

janetlogan, to actuallyautistic
@janetlogan@mas.to avatar

December 12th is always an emotional day for me. It's my late wife Barbara's birthday, and the wells up and spills out.

Today was absolutely just such a day. And to top it off, my roommate went off on a rant about how my depth of feeling on that topic is wrong and unhealthy. Not her words. I cleaned it up.

I had a huge meltdown as a result. Now I'm exhausted, and in pain. I'm turning in for tonight. I hope.

@actuallyautistic @spoonies

janetlogan, to spoonies
@janetlogan@mas.to avatar

Currently waiting on my cardiologist to review the CT results and suggest next steps. I'll probably be put on a statin, at a minimum. I do have some hardening of the arteries, as well as more significant hardening of the aortic valve.

All of which isn't great, but not immediately life-threatening either, so far as I can tell from the Internet. I'll update when the cardiologist gives me his take.

And my is flaring.

@spoonies

kagan, to random
@kagan@wandering.shop avatar

It looks like as many as 1 in 100 US adults have Syndrome — over 3 million people. It's not a rare disease.

https://apnews.com/article/chronic-fatigue-syndrome-long-covid-cdc-c7f3dddbe88ec40d70448743fd479b30

sfwrtr,
@sfwrtr@eldritch.cafe avatar

@kagan
Super big thank you for posting this. I know that a number of people have in my followers and amongst the writing has tags. The article has a lot that has changed since I last looked.

the findings also contradicted long-held perceptions that chronic fatigue syndrome is a rich white woman’s disease.

Yep. Doctors used it to once again discriminate again women! But now:

-> [The study shows] There was less of a gap between women and men than some previous studies suggested, and there was hardly any difference between white and Black people. The study also found that a higher percentage of poor people said they had it than affluent people.

So, there's the reason medicine ignored an important disease, and even in that group, I fell through the gaps. It's about time this gets taken seriously. and are real and can affect anyone.

sfwrtr,
@sfwrtr@eldritch.cafe avatar

@kagan As an epilogue, has sent me to bed midday with aches and pains. 😢​

shaknais, to art
@shaknais@mastodon.social avatar

My escape plan for the next few days...

kitoconnell, to Health
@kitoconnell@kolektiva.social avatar

My throat felt better on Monday but then it was time for a flare. I slept almost all of yesterday. I feel a bit better today and much more awake so far.

melissabeartrix, to random
@melissabeartrix@aus.social avatar

After all these great plans to do some work ... I am currently in bed, sore hip and fibromyalgia ... I'm exhausted

Hugz & xXx

tomkindlon, to disabled
@tomkindlon@disabled.social avatar
Krosen_nw,
ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From the Bateman Horne Center:

Free Online Support Group
Tuesday, December 5
1:00 pm - 2:00 pm MST

Topic: Improving the Holiday Moments While Ill

Strategies for keeping the holidays fulfilling

Advance Registration Required

https://batemanhornecenter.org/event/online-support-group-60/

@mecfs @longcovid


tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
tomkindlon,
@tomkindlon@disabled.social avatar

2/

"Conclusion: Methylomes of the blood cells of patients with and in three independent studies have shown methylation changes that appear to be implicated in the pathogenesis of these syndromes"

@mecfs @fibromyalgia

caity, to mecfs
@caity@bne.social avatar

I have been out of sorts all day, mostly because I have two sprained thumbs. And every time I reach for anything, the sprained tendons scream at me again. Most tedious. (How did I sprain both thumbs? I reached for things. Arrrgh!) Specialist physio tomorrow might have to modify my recovery exercises, I think!

aby, to Autism
@aby@aus.social avatar

Disabled people are treated like our bodies, our stories, are public property - especially so for those of us who are Aboriginal, who are Black, or People of Colour, who are trans or queer, or read as women.

Consider that if someone with a disability is posting their mutual aid links, either give/share/support or just move on.

Don't message us asking why we're disabled or why we're not on disability support pensions - that's nunya. NUNYA.

brunomiguel, to random
@brunomiguel@masto.pt avatar
janetlogan, to spoonies
@janetlogan@mas.to avatar

I walked 1.7 miles (about 2.7 km) today. And I only needed about 2 hours recovery. That's really quite good, all things considered.

@spoonies

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