Arvo, Toots! Day 11 post surgery. Still in my sexy TED compression stockings, still with ice packs across the site, and my little underarm cushions to help. I’ve lived with #fibromyalgia and #CFSME since 1992, I thought I was used to fatigue? But no. I’m doing odd bits of photo editing and indexing for Dad’s photo book project, and have been following up a few things in #FamilyHistory. And you know I love a good #wedding, especially with a #hat, so here you go - see alt text for details.
I'm not the best at #introduction (s) but here goes nothin :002blush:
hoi, I'm mana, also known as momo. I'm an FC leader in #ffxiv and I play on Primal DC. I'm shy, but one of those people who won't shut up once you get to know me. I have a tendency to be introspective/keep to myself when I'm really depressed. I have #cptsd and am #neurodivergent. Also, I'm disabled from #rheumatoidarthritis and #ehlersdanlossyndrome and #fibromyalgia. Most days are good days, but the bad ones are pretty bad :blobcat_notlikethiscry:
I like modding/coding games so I've been learning #blender and #json to facilitate that. idk what else to say butt hi everyone, thanks for reading this if you did! let's be friends?:sbahri_question:
Some days are better than others when you have #Fibromyalgia. Sometimes you just hurt. Gotta keep moving, even though every five or my body says, go to bed. Some movement is better than none, that's what I'm telling myself as I take a walk around the block.
The Missus and I are going to Puerto Rico. She has #fibromyalgia (severe, chronic pain and fatigue) and is often fairly limited, physically. I wonder if folks familiar with PR across the fediverse can recommend activities for us (other than the obvious beach time) that will give her fun experiences without over-stressing her body. We will have a vehicle.
I know this is a niche question, so I appreciate your boosts to reach folks who can help!
I cannot express how huge this is. Being able to get a diagnosis via blood test is so HUGE. For those lucky enough to have never experienced it, many of the conditions along with #MECFS that they hope this blood test could diagnose with over 90% certainty normally take YEARS to be diagnosed. #LongCovid#fibromyalgia#ms#LymeDisease
These are all life changing illnesses. The quicker you are diagnosed the quicker you can be treated.
Anyone have tips for taking up #amateurPhotography on your phone? I know, I know, a phone is a phone. But I can't use my DSLR properly anymore because my hands are too shaky, my eyesight too poor. I also just don't have the energy to be transferring photos from SD card and editing them in Photoshop. I have #fibromyalgia which makes everything harder.
Is buying those clip on phone lenses worthwhile? I really like #macrophotography. I mostly do nature and landscape #photography.
Does anyone with #fibromyalgia have a recommendation for a type of doctor to see? I’ve seen multiple rheumatologists and none of them know Jack about the disease. All help is appreciated 🥰.
I'm really thankful to the person who bought me a box of 30 packets of Maggi noodles. Having them available to eat when #PEM hit me means that I don't have to find the energy to get to the shops sooner - cos I've been caught low on groceries atm. Hopefully I'll have my mojo back tomorrow or Thursday and can stock up a bit more then. Thanks for your kind support. #chronicillness#chronicfatigue#fibromyalgia#disability#NEISvoid
Morning folks, I hope you all have a fabulous day.
I'll be curled up under blankets, stitching some, watching netflix and generally taking care of myself. #Mornings#SelfCare#Fatigue#Fibromyalgia#Arthritis
Day three on Duloxetine. Lots of shakes and tremors, some nausea, very low appetite. No difference in mood yet, but mild increase in anxiety. POTS symptoms were a bit worse on day one but it passed quickly. Almost no EDS pain today, which is a very welcome change. Absolutely exhausted. If I'm still this tired after a week I'll try taking it at night instead of the morning. It's no picnic but I'm staying the course.
So I was interviewed for a podcast a couple of weeks ago, it was released today.
I only have a Spotify link, but I'm told you can access it through the usual podcast places.
It was connected to Mark Watson's Decade Project, where people are encouraged to set goals and work towards them.
We talk about all sorts, from #study to #Fibromyalgia and how I view the world. I got some stuff a bit muddled, but it seems to have been generally well received
Sharing in the interest of rejecting the stigma around these things... I've added Duloxetine (Cymbalta) to the list of meds I take every day. 💊
I am hopeful it will help with pain, but even more hopeful that it will boost my mental well-being, raise the bar of what I can accomplish in a day, and keep my spirits up while on this wild health journey.
Hey folks! I'm a 30-something #bisexual cis woman. I've been a strict #vegetarian for 16 years, but I promise I don't care what you eat. I'm single, I don't want kids, and I treat my #cat, Marvel, like a baby. I mostly watch and read fantasy and sci-fi stuff, but not exclusively. I deal with anxiety and depression, plus I have #fibromyalgia and God knows what else. I was on a different server for a while last year, and I've come back again since Reddit is going down in flames. Feel free to suggest people for me to #follow!