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DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

CAMHS: A legacy of pain

As I write this, our petition to try and trigger positive change in CAMHS for the way the treat Autistic children sits at around 212,000 signatures. That is not far off of a quarter of a million people for whom their systemic failures are more than a story or uncomfortable truth. For these people, myself, and others like us, these failures represent some of the darkest and most life-changing experiences that can happen.

https://emergentdivergence.com/2024/05/25/camhs-a-legacy-of-pain/

DivergentDumpsterPhoenix, to actuallyautistic
@DivergentDumpsterPhoenix@disabled.social avatar

The following is a survey asking for the language preferences of Autistic and non-Autistic people regarding autism.

It is open to Autistic and non-Autistic people for the benefit of comparison.

I will also be using the preference results of Autistic people on the "neurodiversity: the basics" page of my website.

Please do fill this out and RT it, I would like to get at least 1000 responses.

Survey-
https://forms.gle/LM9gi4urTt15wkqn9

#AskingAutistics

@neurodiversity @actuallyautistic @autisticadvocacy

cvwillegen,
@cvwillegen@mastodon.nl avatar

@DivergentDumpsterPhoenix
Some of these questions made me go "Hmmmmm...". Indeed, why do we use "disorder" instead of "condition". "Disorder" implies a malfunction, "condition" implies a state of being.
@neurodiversity @actuallyautistic @autisticadvocacy

Fizzfizzpopop,
@Fizzfizzpopop@veganism.social avatar
DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

Interoception and Autism: A Hidden Link to Substance Use?

Autism and substance use is an area that received little discussion in wider society. In my own experience, their is an assumption that Autistic people are less likely to use drugs, however growing bodies of research are beginning to show what I have said for many year; substance use is a relevant discussion with regards to Autistic culture. Research has even suggested that Autistic people are nine times more…

https://emergentdivergence.com/2024/05/21/interoception-and-autism-a-hidden-link-to-substance-use/

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

CAMHS and the children who “won’t engage”

Child and Adolescent Mental Health Services (CAMHS) are notorious for failing to support Autistic children and young people. I have recently explored that Autistic families have a particularly difficult time accessing their services. One of the most common reactions from CAMHS professionals working with Autistic service users is that the child or young person "won't engage". This has become a stock response for any Autistic…

https://emergentdivergence.com/2024/05/19/camhs-and-the-children-who-wont-engage/

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

Challenging Mental Health Awareness Week for Autistic People

Mental Health Awareness Week leaves Autistic people feeling unheard and ignored. Despite years of advocating for better mental health support, Autistic individuals still face systemic barriers. This week should be more than just raising awareness – it's time to demand systemic change and meaningful support for the Autistic community.

https://emergentdivergence.com/2024/05/16/challenging-mental-health-awareness-week-for-autistic-people/

DivergentDumpsterPhoenix, to Autism
@DivergentDumpsterPhoenix@disabled.social avatar

Please stop with the euphemisms. We know what we are, we don't need it explained to us. It is patronising when people try and define our identity for us.

@actuallyautistic @autisticadvocacy @neurodiversity @neurodivergent

DivergentDumpsterPhoenix, (edited ) to random
@DivergentDumpsterPhoenix@disabled.social avatar

CAMHS: The HEARTBREAKING Reality for Autistic Families

Autistic families face significant barriers when seeking support from Child and Adolescent Mental Health Services (CAMHS), with only 10% of patients being Autistic despite 70% of Autistic children experiencing mental health issues. The service lacks accessibility, attentiveness, and understanding of Autistic experience...

https://emergentdivergence.com/2024/05/15/camhs-the-heartbreaking-reality-for-autistic-families/

@neurodiversity @neurodivergent @actuallyautistic @autisticadvocacy

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

Autistic Lives Lost: Is CAMHS to Blame?

This article highlights the failure of Child and Adolescent Mental Health Services (CAMHS) in providing appropriate support to Autistic children and young people, leading to devastating outcomes. The lack of resources, staff competence, and understanding of neurodivergent experiences contribute to the crisis. The system turning children away and the elevated risk of mortality among Autistic individuals are pressing concerns.

https://emergentdivergence.com/2024/05/13/autistic-lives-lost-is-camhs-to-blame/

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

Autistic burnout: How do you recover?

Autistic burnout is a unique struggle for each individual, impacting cognitive and physical resources. Recovery involves understanding personal needs, setting protective boundaries, avoiding excessive limitations, and allowing time for focused activities. Celebrating small victories and seeking mental health support are essential. Embracing change is crucial, as recovery is attainable with the support of the Autistic community.

https://emergentdivergence.com/2024/05/08/autistic-burnout-how-do-you-recover/

alexisbushnell,
@alexisbushnell@toot.wales avatar

@DivergentDumpsterPhoenix I get a malware warning when I click that link. Not sure why?

"This website has been identified as a malware site. Malware infects your computer and can include viruses, worms, spyware and trojan horses."

DivergentDumpsterPhoenix,
@DivergentDumpsterPhoenix@disabled.social avatar

@alexisbushnell this is happening to a handful of people. I have scanned the site and had WordPress engineers investigate. No reason was found. Some people are finding they have better luck trying on another device.

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

CAMHS and the loss of Jennifer (‘Jen’) Chalkley

The following article is a response to the findings that failures by Surrey and Borders Child and Adolescent Mental Health Services (CAMHS) contributed to the death of a 17 yeard old Autistic and ADHD person.

https://emergentdivergence.com/2024/05/07/camhs-and-the-loss-of-jennifer-jen-chalkley/

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

The CAMHS Reports 2024 On The Matter of Access

Is CAMHS Accessible? What do the people who have tried to access it have to say? All of this and more is answered in this article.

https://emergentdivergence.com/2024/04/29/the-camhs-reports-2024-on-the-matter-of-access/

DivergentDumpsterPhoenix, to mentalhealth
@DivergentDumpsterPhoenix@disabled.social avatar

Report number 2 on CAMHS has been published. This one looks at the qualitative data and includes direct quotes on the experiences of CAMHS

https://emergentdivergence.com/wp-content/uploads/2024/04/CAMHS-Report-2024-2.pdf

@actuallyautistic @autisticadvocacy @neurodiversity

DivergentDumpsterPhoenix, to random
@DivergentDumpsterPhoenix@disabled.social avatar

4 ways CAMHS failed me as an autistic teen

The first report on Child and Adolescent Mental Health Services (CAMHS) reveals troubling issues with understanding and supporting Autistic individuals. The author's personal experience highlights the long-winded referral system, dismissive psychiatrists, pressure for medication, and blame for school attendance issues. Despite hope for change, the CAMHS report shows ongoing challenges for Autistic people and their families.

https://emergentdivergence.com/2024/04/22/4-ways-camhs-failed-me-as-an-autistic-teen/

DivergentDumpsterPhoenix, to actuallyautistic
@DivergentDumpsterPhoenix@disabled.social avatar

Out of all the people who responded to the CAMHS survey, this is what was said when asked if they agreed that "CAMHS understands Autistic experiences"

Only 17.6% agreed that CAMHS understands

58.2% expressed disagreement.

The rest had a neutral opinion, which in my opinion is still not acceptable f9r a service working with such vulnerable people.

Find the full report here
https://emergentdivergence.com/camhs-crisis/#camhs-reports-2024

@neurodiversity @actuallyautistic @autisticadvocacy

DivergentDumpsterPhoenix, (edited ) to mentalhealth
@DivergentDumpsterPhoenix@disabled.social avatar

Here is the download link for the first report coming from the CAMHS survey I did (Child and Adolescent Mental Health Services). It looked into Autistic peoples experiences of CAMHS.

It's a long report, but has some really important statistics in it

Find and download it here

https://emergentdivergence.com/camhs-crisis/#camhs-reports-2024

@neurodiversity @actuallyautistic @autisticadvocacy

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