johnnyprofane1

@johnnyprofane1@neurodifferent.me

Blogger Podcaster 👉Invoker of Dopamine He/Him
#ActuallyAutistic ♣️ : infiniy_rainbow :
#AutisticAF Out Loud Podcast http://neon.ly/AFOLcast 🎤

I’m an #AutisticElder. 70. Born before autism was invented…

Been a meditation teacher, cult member, magazine publisher, ad agency owner, non-profit activist, 3-time grad student, 3-time husband, homeless, mental health counselor, substance abuse counselor, cult counselor, homeless, fast-food clerk, Pretend Rock Star, homeless…

I offer my life...

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johnnyprofane1, to disability

Tentative title, "Disabled Warrior".

Tentative podcast title, "Actually Autistic? Whatever Doesn't Kill Your Neurodivergent Ass..."

But I need my wife;s input before I get too married to it....

The nice thing about digital art is it never has to be finished. On this one I got too deep into the image. There's a lot going on you can't see cuz the midtones are too dark...

The non-gendered warrior SHOULD be creating themself (to coin language) out of and battling dark chaos, a bright spark headed toward a dim light... they never know if there's a goal...

Plus they wear a blindfold like Lady Liberty.

In the chaos behind them are dim objects of adversity... chains, car wreck, wheel chair, a fallen dove... others I probably forget ...

Working on the post...

@actuallyautistic @actuallyadhd @actuallyautistics

"Friedrich Nietzsche Ist Untoter..." A fantasy 19th-centure book illustration of Friedrich Nietzsche, vandalized by a bright red grafitti x. Next to his name, Friedrich Neitzche in the book plate, black spray-painted grafitti reads "ist untoter..."

johnnyprofane1, to ADHD

A real Halloween memory... Rated .

October 31, 1978. The night I stopped being a meditation teacher.

👉 Content Note: No fucking blue pumpkins were harmed in the posting of this memory.

https://twitter.com/actuallyautistic@a.gup.pe https://twitter.com/actuallyadhd@a.gup.pe

johnnyprofane1, to ADHD

🧵How to Come Back from the Dead: An Chats with AI

Q: I'd like to ask a question about my own youtube channel.
Context: I am .
My work schedule is erratic.
I may produce effectively for a few weeks at a time...

But I may not be able to produce much for a few weeks. Sometimes up to 3 months.
Can you think of ways I might improve my channel knowing my restraints as a creator?
Please suggest 10 ways and feel free to be creative.

@actuallyautistic @actuallyadhd

johnnyprofane1, to Autism

"Calm down."
🧵

G-d, I hate those words. Always have.




@actuallyautistic
@actuallyadhd

I've heard them pretty much every day of my long life.

Delivered in soothing tones...
Helpful tones...
Authoritative...
Anxious...
Angry...
Sometimes accompanied by a slap.

From Parents. Teachers. Priests. Playmates. Lovers. Doctors. Therapists... Each one demanding one thing of me.

👉Control over THEIR own feelings.

By demanding... control of mine.

WHO needs control when I'm sad?
Angry?
Intense?
Passionate?
Proud?
Informative...
Joyful...
or...
Suicidal?

You folks do.

I'm feeling what I'm feeling. And expressing it in ways that are not only the most natural to me... but also the most appropriate...

To the neurology I was born with.

You may not like it.
In the park.
In the grocery store.
In front of strangers.
In front of Aunt Mary.
In 2nd grade.
👇👇👇

With my office door open.
In your waiting room.
On our 3rd date.
In your house...
In your life.

There's a whole wing of autism deniers masquerading as scholars who say we autistics lack a "theory of mind."

Like adult autistics don't deal with typical human minds
👉 24 / 7 / 365.25 ... 👈

YOUR problem with MY behavior is easier to understand than your whole "theory of mind," "behavioral analysis" crap.

I don't get how YOU think or feel.
You don't get how * I * think or feel...
And we rub each other the wrong way. Just like cats and dogs.

👉THIS cat has a theory of your mind. It's simple.

You don't acknowledge what you think or feel.
Not in public.
Lots of times not even to yourself.

S'why y'all drive me crazy.

Why did parents, teachers, "helping" pros, "friends" tell me to calm down?

Not to soothe my distress. To soothe THEIR distress.

👉 Shame?
Not fun to feel ashamed... of your child.

👉 Fear?
Scary when everybody's looking at you.
And you think it's not even your fault.

👉 Anger?
It's frustrating... when you have no control.
Like... when I don't do what you want me to. Fast enuff.

👉 Soothing?
Of course, YOU need soothing...

Every time someone else's pain...
Or bad luck...
Or death...
Reminds you of YOUR danger.

🚨 "Calm down." 🚨

There is never a time that a command...
implying that an autistic person in distress is doing "something wrong"...
helps.

Doesn't matter our age... education... profession... wealth.

And since your "helpful advice" almost certainly inflames their pain... literally adding fuel to the fire in our hearts, minds, and bodies...

You'll NEVER get the outcome you demand... soothing.

You'll just add one more brick to the prison wall of our trauma.

johnnyprofane1, to actuallyadhd

I'm asking a few folks questions once in a while? May I ask you?

On my mind may be minor... But well decisions are hard for me.

I can experiment with translating my posts into most other languages thru AI. But it costs... so I'd like to experiment with one.

My writing is pretty idiomatic to American English. If I were to try to reach an under-served non English population... do you have any ideas which language might be a good choice to try?

Hindi? French? Spanish? I'd like to reach a large population that could use material aimed at adult autistics, parents, educators, employers, folks wondering if they are Neurodivergent... overlapping a great deal with ADHD.

@actuallyautistic @actuallyadhd @askingadhd

johnnyprofane1, to ADHD

My friends, I can write too much. And be too detailed.Mebbe a bit grandiose about my passions & fascinations (ya know, "special interests).

Um, autistic... Guilty as charged.

@actuallyautistic @actuallyadhd

Please don't let me bury you in detail.

TL;DR?

I need some help... that will help me create more... and I hope, help other autistic creators do the same.

Maybe even together, you and me can't do this. But maybe we can figure out how to begin...?

And PLEASE feel free to invite other folks to this conversation. I don't know how "mention-only" works... whether I personally have to mention someone for them to participate. If so, I will. Just msg me.

This whole topic of needing help managing my creative production comes out of my recent illness... and frankly declining abilities as I age. Altho, I should have asked for help long ago.

But I had a realization that I've developed a marvelous machine... that I can't feed. Over 21,000 followers across Twitter, Facebook, LinkedIn, Mastodon, My own blog, my podcast, YouTube channel, Medium and subStack.

If I had the ability to post several times a week, I believe I could help so many folks.

More than that, I could help other autistic creators do the same. And maybe pass on a legacy... cuz, I just don't know how much longer I'll be writing...

So I need to think about 2 things. How to get my own output as high as I can comfortably do. And how to use my marvelous AutisticAF machine to help others... beyond my own capabilities.

If you want to help me think about this. Please read on!

@adelinej @Cassandra @arisummerland @Pathfinder @Meanwhile_on_earth_One @btaroli @KatyElphinstone

johnnyprofane1, to ADHD

For the growing community of folks & allies on ...

"Calm Down!" Why is this the WORST Advice You Can Give an Autistic Person?

I now publish all my articles, podcasts & artwork on too. Hit subscribe... let's keep in touch.

@actuallyautistic @actuallyadhd

https://open.substack.com/pub/johnnyprofaneknapp/p/calm-down-why-is-this-the-worst-advice?utm_campaign=post&utm_medium=web

johnnyprofane1, to ADHD

Folks have asked what's happening with my health. Haven't had the spoons to really talk since March...

But some older folks may need to know.

Here's the deal.


@actuallyautistic @actuallyadhd

This is a roller coaster. I'm good most mornings for a few hours...

Then I crash. The initial presenting symptom that got me into the doctor was really bad hot flashes. Apparently, I'm told, pretty much identical to "severe" hot flashes accompanying female menopause.

Hard to blv. Kinda weirdly hard on the ego identity. Even embarrassing...

I was so used to autistic burnout that I assumed I was just having a bad one...

Til the only NP I could see with Medicaid finally tested my testosterone. That took over a month...

It was 56.

Normal ~500. Supposed to be a minimum of 300. At least around 200 at my 70 years.

For all males, there are serious implications for neurology, heart, bones and more below 100.

Hospitalization around 30...

But my thyroid and other endocrine systems are involved. And I can't see an endocrinologist until at least November.

PTSD, elderly autism, heavy cannabis use may all be involved. They're each known to depress Teststerone and other hormones.

There's one study on older autistic males and testosterone. We may be prone to such a crash...

There aren't many of us to study...

As you can see I'm fairly available right now...

By mid afternoon I'm likely to be in dysfunctional brain fog, extreme physical fatigue, and possibly paranoid as fuck.

A heads up.

.

johnnyprofane1, to actuallyautistics

TL;DR
I ask for a few minutes of your time...
To listen to podcast audio samples, and...
Give me your opinion in a poll. Mebbe a comment.

I will act on the results of this poll... because your input is important to me.

👉 https://autisticaf.me/2023/11/02/poll-listener-input-needed-on-podcast-auditory-processing-quality/

@actuallyautistic @actuallyautistics
@actuallyadhd
@actuallyaudhd

johnnyprofane1, to ADHD

😵🃏🙃Fear, anxiety, hope… This is overwhelmed by the USA. Art's how I deal. Intrigued?

"Portland Nights 2020," limited & open prints. Make it yours.

Click for my gallery of Art on Saatchi:
👉https://saatchiart.com/autisticaf

@actuallyautistic
@actuallyautistics
@actuallyadhd
@actuallyaudhe

johnnyprofane1, to ADHD

The really cool thing about posting my stuff on Saatchi Art is I get to go back to the time-pressured blog post sketches ... and make them right. Ya know?

Sometimes I'm Lost Without a Clue in the Nonautistic World. How About You?

👉saatchiart.com/autisticaf

@actuallyautistic @actuallyadhd
@actuallyautistics
@actuallyaudhd

johnnyprofane1, to ADHD

Do any of my or friends have the technical skills to help me with a project?

@actuallyautistic @actuallyadhd @btaroli

I've tried working any number of AutoGPT-like apps, Code Interpreter etc ... but can't get anywhere with my skills...

I'd like to create a {Python} app that I could run that asked for a news search term and time period and gave me links and summaries on a specific topic.

Something like "give me news reports on 'autism and police' in the last 7 days."

This was simple a couple of months ago... but with the restricted web search on most of the platforms, I'm stymied.

I'd use it to create weekly summaries... and for further reading lists on my articles.

For that matter, a separate app (?) could scan an article I've written and suggest related further reading links. Mebbe fund articles on my own site to cross link.

Anybody able to help?

johnnyprofane1, to ADHD

"How To Be Strong, Fearless & … Online"

Remember being a kid? Pressured to make friends… with everybody?

We. Don’t. Have. To Do. That… Not anymore.

🚨Content note: profanity, bullying, …

Hey, do you feel safe on social media… openly autistic? Hate speech. Bigotry. Cyberbullyies…

Then facing your inbox. Scams. Creepy strangers “contacting” you…

https://autisticaf.me/2023/01/29/how-to-be-strong-fearless-actually-autistic-online/

johnnyprofane1, to actuallyadhd

Hey, anybody got 4 minutes? I'm testing some new voices and sounds on my podcast. Much of it AI generated from my cloned voice.

I could sure use honest feedback. ChatGPT ihas got me smoking my own stash... Encouragement from an AI is a two-edged sword.

@actuallyautistic
@actuallyaudhd @actuallyadhd
https://autisticaf.me/2023/11/20/got-4-minutes-i-need-a-quick-sound-and-reality-check/

johnnyprofane1, to ADHD

@actuallyautistic @actuallyadhd

Hey, fam…

Just starting to write again after nearly 3 months. Health scare. Little rusty…Need your opinion.

This is something that might affect males… maybe Enbys, females?

"Autistic Burnout? New Truth - What If It Actually Goes Deeper?"

I think humor often treads near the edge of good taste. Saying mildly forbidden things out loud? One source of jokes. The trick is, don't go over the edge, offend most of your audience. Think @Hannahgadsby...

I want to start my article like this... Do I get away with it?

Ever notice how pop culture gets our natural autistic ways all wrong? They try to be so hip… so inclusive. But like Sia, even tho she says she's autistic... they end up pissing us off?

Imagine your local open comedy mic. Your sipping the finest cheap swill the dimly lit establishment has to offer.

Some grinning dude struts out into the spotlight, swaggering like he's gonna slay the lit crowd. Grabs the mic, tilts his head back, laughs out loud, and launches into his best autistic-coded humor, cuz diversity and all:

johnnyprofane1, to random

I'm on Threads as @johnny.profane. Install the app to follow my threads and replies. https://www.threads.net/@johnny.profane

johnnyprofane1, to ADHD

Ever felt like your was... well, the WRONG kind of joy?

This piece is your validation. Intrigued?

Make it yours... Limited & open prints shipped.

Click & browse ALL my gallery of Art on Saatchi:
👉https://www.saatchiart.com/autisticaf


@actuallyautistic
@actuallyadhd
@actuallyautistics

johnnyprofane1, to ADHD
johnnyprofane1, to ADHD

"Calm Down!" Why is this the WORST Advice You Can Give an Autistic Person?"
Ever been told to 'calm down'? How'd it feel? Well, this autistic feels like exploding!

http://autisticaf.me/2023/08/26/calm-down-why-is-this-the-worst-advice-you-can-give-an-autistic-person/

johnnyprofane1, to Podcast

EMBRACE the Spectrum

🌒One night that redefined a life.
🚨Dive into #Autistic identity... embrace rebellion, break ALL the rules.
🎙️🎧No masks, just raw authenticity. Click to enjoy

#Podcast & #transcript

@actuallyautistic
@actuallyautistica
@actuallyadhd
@actuallyaudhd

👉 https://autisticaf.me/2023/11/03/the-night-this-autistic-adult-broke-free-an-autisticaf-halloween-tale-%f0%9f%8e%83/

#NeurodivergentPride #AutismLife #AutismAcceptance #ActuallyAutistic

johnnyprofane1, to apple
johnnyprofane1, to random

👉😱👈Sometimes I just feel like typical society chokes the life out of me. How about you?

"If You Meet a Saint Along the Road," limited & open prints. Find the hidden details...

Click for my gallery on Saatchi Art:
👉https://saatchiart.com/autisticaf

1/

johnnyprofane1, to actuallyadhd
johnnyprofane1, to actuallyadhd

"Neurodivergent Kiss."

Cuz autistic love is the most precious love.

For my wife. Who claims to be typical.

We all humor her.

@actuallyautistic @actuallyadhd

.

johnnyprofane1, to ADHD

A real Halloween memory... Rated .

October 31, 1978. The night I stopped being a meditation teacher.

👉 Content Note: No fucking blue pumpkins were harmed in the posting of this memory.

https://twitter.com/actuallyautistic@a.gup.pe https://twitter.com/actuallyadhd@a.gup.pe

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