ahimsa_pdx, to books
@ahimsa_pdx@disabled.social avatar

"Ten new books about Long Covid, chronic illness, and disability"

https://thesicktimes.org/2024/05/21/ten-new-books-about-long-covid-chronic-illness-and-disability/

"Here are ten recently published books on Long Covid, Myalgic Encephalomyelitis (ME), chronic illness, and disability."

ohmrun, to random
@ohmrun@hachyderm.io avatar

Finally got confirmation that after an Nth round of tests by a second doctor that it is (likely)

tomkindlon, to mecfs
@tomkindlon@disabled.social avatar
lia_pas, to mecfs
@lia_pas@vis.social avatar

'she breathed' (2018) 🫁
For , Opera Mariposa is showcasing this embroidery by me, a multidisciplinary artist with . Check it out with exclusive insights and enter to win 'she breathed' art postcards til June 1! https://operamariposa.com/art-showcase/lia-pas/she-breathed/

ahimsa_pdx, (edited )
@ahimsa_pdx@disabled.social avatar

@lia_pas That is such a beautiful piece! 😍

It took me a while to figure out that BA Month stands for "Benefit & Awareness Month" so I'm sharing this link with more info.

https://operamariposa.com/benefit-awareness/#calendar

Opera Mariposa is helping to raise money for the ME | FM Society of BC (British Columbia).

halcionandon, to mecfs
@halcionandon@aus.social avatar

Please and share to other platforms.

Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

I’ve tried every level of government and they simply won’t help. Ask people in real life if they have somewhere for me to go. Is anybody an ? I need help.

@covid19 @mecfs @chronicillness @auscovid19 @neisvoid @disability @disabilityjustice @socialwork
@dysautonomia
@dysclinic
@mutualaid

halcionandon, to mecfs
@halcionandon@aus.social avatar

Please and share to other platforms.

Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

I’ve tried every level of government and they simply won’t help. Ask people in real life if they have somewhere for me to go. Is anybody an advocate? I need help.

@covid19
@mecfs
@chronicillness
@longcovid
@neisvoid
@disability
@disabilityjustice
@socialwork
@dysautonomia
@dysclinic

halcionandon, to chronicillness
@halcionandon@disabled.social avatar
PanickedFoodie, to random
@PanickedFoodie@disabled.social avatar

Any tips on how to make sure my collapsible, manual wheelchair makes it onto the plane vs in cargo?

At what point do I ask if it can come on board with me?

(I have to fly to go get surgery)

EDIT: It says this on the airline's website: "All planes have dedicated space to store at least one adult-sized wheelchair in-cabin when folded or collapsed. If your wheelchair doesn't fit properly, it will be stowed in the cargo area."


serenebabe, to random
@serenebabe@mastodon.social avatar

This this this this this!

ohmrun, to random
@ohmrun@hachyderm.io avatar
halcionandon, to melbourne
@halcionandon@disabled.social avatar

I may need to go to hospital and remember being driven back from hospital on other occasions. Does anyone know what these circumstances involve? I can’t remember.
I am sure this happened in the past. Was it ambulance transport?

Local hospitals are saying no they don’t do that so wondering how the eff to get home when can’t stand or sit up long without passing out.

@mecfs
@neisvoid
@pwme
@chronicillness
@multipledisabilities

ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

Help me eat!
0/175.

I'm behind on rent and need some money for food. I'm not eligible for SNAP because ridiculous reasons and it's not easy to get to the food bank (and they mess it up when it's delivered). I'm low on food and would also like to celebrate my good news. So goes to paying some rent, food, and maybe a celebratory pizza.

www.paypal.me/chrmiles






@mutualaid @mutual_aid @MutualAidVisibility

ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

Ask 0/175.

I'm behind on rent and need some money for food. I'm not eligible for SNAP because ridiculous reasons and it's not easy to get to the food bank (and they mess it up when it's delivered). I'm low on food and would also like to celebrate my good news. So goes to paying some rent, food, and maybe a celebratory pizza.

www.paypal.me/chrmiles






ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

HAVE TO GET THIS IN ASAP.
🚨🚨100/1300🚨🚨
Behind on rent. I'm still in the homeless program and they've given me a couple days extra to get the back rent or I'll be kicked out. I got life changing news a few days ago and I'm months away from moving out of here and right on the edge of stability. Sick and disabled. Need housing for survival. Refuse to accept outside assistance

www.paypal.me/chrmiles






halcionandon, to melbourne
@halcionandon@disabled.social avatar
halcionandon, to mecfs
@halcionandon@aus.social avatar
halcionandon, to mecfs
@halcionandon@aus.social avatar
ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

Please boost/help if possible!

🚨🚨100/1300🚨🚨
Behind on rent. I'm still in the homeless program and they've given me a couple days extra to get the back rent or I'll be kicked out. I got life changing news a few days ago and I'm months away from moving out of here and right on the edge of stability. Sick and disabled. Need housing for survival. Refuse to accept outside assistance

www.paypal.me/chrmiles






katha1970, to mecfs German
@katha1970@medibubble.org avatar

To all those who have literally “lost” their life due to suffering from a debilitating chronic illness:

Here is a song I wrote for my family -

“Is this really life?”

Maybe it resonates with some of you, too.

Feel free to share with whoever it may do well 💚

https://youtu.be/KR2p9NlWrqI?si=vF_0sz2Mg7vCjBHO

ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

Please boost
🚨🚨100/1300🚨🚨
Behind on rent. I'm still in the homeless program and they've given me a couple days extra to get the back rent or I'll be kicked out. I got life changing news a few days ago and I'm months away from moving out of here and right on the edge of stability. Sick and disabled. Need housing for survival. Refuse to accept outside assistance

www.paypal.me/chrmiles







@mutualaid

halcionandon, to mecfs
@halcionandon@disabled.social avatar

Guys what do I treat with? How do I get ? Does it work? This is a 3rd time infection but because of heavy brain fog I can’t remember the treatments or supplements used!😩

Already got !

Help please.

In Australia for Paxlovid reference. Most things closed today (Good Friday).


@longcovid
@mecfs
@neisvoid
@chronicillness
@multipledisabilities

ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

These systems are so messed up I can't stop crying. Spend all day on the phone with the different offices and I just can't.

Additional need now of maybe $50 because I can't get food help again until they can prove I'm disabled. Even though I've been on disability before. All because I'm a student..🤦🏻‍♀️ make it make SENSE.

Total need including back rent and now food 1150..so 0/1150.

www.paypal.me/chrmiles

ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

Please help/boost 🚨

Two days left. 16/1300

Overdrawn, and behind on rent. I'm still in the homeless program and they've given me a week to get the back rent or I'll be kicked out. I got life changing news this week and I'm months away from moving out of here and right on the edge of stability. Sick and disabled. Need housing for survival. Refuse to accept outside assistance

www.paypal.me/chrmiles






halcionandon, to random
@halcionandon@disabled.social avatar

Woke with fever. No more god plz
😭

halcionandon,
@halcionandon@disabled.social avatar

Abusers brought me again
3rd time. They won’t mask.

Already got

Get me out of here please 🙏

Anyone in help. Will move states too.


@mutualaid
@disability
@disabilityjustice @mecfs
@longcovid
@socialwork
@socialworkers

ChrisDisability, to KindActions
@ChrisDisability@disabled.social avatar

Please help/boost 🚨

Day 5/7. 0/1300

Overdrawn, and behind on rent. I'm still in the homeless program and they've given me a week to get the back rent or I'll be kicked out. I got life changing news this week and I'm months away from moving out of here and right on the edge of stability. Sick and disabled. Need housing for survival. Refuse to accept outside assistance

www.paypal.me/chrmiles






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