@ContraindiKate@disabled.social
@ContraindiKate@disabled.social avatar

ContraindiKate

@ContraindiKate@disabled.social

Currently bedbound, I'm mostly here for your pictures of rocks, trees and moss, of cats and dogs, of train journeys and long walks in the woods. Nerd for fountain pens and excellent stationery.

#MEcfs #Dysautonomia #Neuropathy #POTS #MCAS #LongCOVID
#DisabilityJustice #AmbulatoryWheelchairUser
#COVIDisNotOver
#WearAMask
She/her
EN/DE
Migrantin in Wien.

♿🏳️‍🌈🏳️‍⚧️❤️

Profile pic is a photo of wilty two red echinacea blossoms on a leafy green background.

This profile is from a federated server and may be incomplete. Browse more on the original instance.

ContraindiKate, to random
@ContraindiKate@disabled.social avatar

This is beautiful. This gives me hope.

Article in the Sick Times:
"How to make spaces more accessible during the continuing pandemic"

https://thesicktimes.org/2024/05/23/how-to-make-spaces-more-accessible-during-the-continuing-pandemic/

#CovidIsNotOver #WearAMask

ContraindiKate, to random
@ContraindiKate@disabled.social avatar

He: I'm watching this spy movie and it occurs to me that being COVID cautious in a let-it-rip city is sort of like being a spy. We're living in a society but we cannot for a single second relax and just be part of that society like everyone else. We're constantly on guard for danger or betrayal. We can't unmask around anyone.

Me: So... since I'm bedbound, guess that makes me a sleeper cell?

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

This short video (about a minute) from asks people with ME/CFS, "How long did it take you go get diagnosed?"

(ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome)

https://www.youtube.com/watch?v=tnzz2QwwaMs

I'm "lucky" because it only took me 5 years to get a diagnosis vs. an average of over 8 years (from the 417 responses they got).

What's your answer? 🤔

1/2

@mecfs

ContraindiKate,
@ContraindiKate@disabled.social avatar

@ahimsa_pdx 22 years.

ContraindiKate, to disability
@ContraindiKate@disabled.social avatar

Important request for Canadians

🚨 Call to action from Disability Without Poverty:

Get the Canada Disability Benefit fully funded in the 2024 Federal Budget!

📞 This week is the time to call Finance Minister Chrystia Freeland and your local MP.

1 in 4 people with disabilities live in poverty. They can’t afford their basic needs.

Phone numbers on their website:
https://www.disabilitywithoutpoverty.ca/emergency-phone-blitz-for-the-canada-disability-benefit/

ContraindiKate,
@ContraindiKate@disabled.social avatar

The Disability Benefit should be of particular interest to any Canadians who understand that

So many Canadians are just a few more infections away from not being able to work due to

Call your MPs today!

https://www.disabilitywithoutpoverty.ca/emergency-phone-blitz-for-the-canada-disability-benefit/

ContraindiKate, to random
@ContraindiKate@disabled.social avatar

ContraindiKate Inc. Quarterly Report Q1 2024:

This quarter, our whole team has been pursuing our goal of Radical Rest with ruthless inefficiency. By leveraging industry-leading Mobility Aid technology we have outperformed on a number of key metrics including Tachycardia Reduction and Total Supine Time. Our employees have broken a world record for Slowness at Breakfast and received an award for Excellence in the Contemplation of Trees.

ContraindiKate,
@ContraindiKate@disabled.social avatar

Our highly experienced specialists continue to meet or exceed government safety requirements as regards Digestive Rejection Crises (DRCs). We look forward to more input from recently hired medical consultants to ensure we continue to meet these targets in a sustainable manner.

ContraindiKate,
@ContraindiKate@disabled.social avatar

Adapting to fluctuations in the mitochondrial energy market due to the aggressive viral actions of our global competitors, we have successfully implemented a number of important changes in at-home operations to increase energy efficiency while maximizing our QOL (Quality-of-Life) output. These changes include both physical and cognitive adaptations and allow us to right-size the company's efforts to the available resources.

ContraindiKate,
@ContraindiKate@disabled.social avatar

To leverage synergies and eliminate duplication, our company's Zero Fucks Working Group has been merged with the Standing Committee to Stop Trying at Capitalism. This new Department of Idleness is responsible for innovation careless attitudes towards the mainstream. Their preliminary report on non-conformity as a consumer of a crumbling social safety net is expected after some time.

ContraindiKate,
@ContraindiKate@disabled.social avatar

On a going-forward basis we anticipate large ROIs from several key projects in progress. Our new campaign, "How to Become One Of 'Those' Women" is resonating with our customer base and has increased product satisfaction across a number of target demographics.

ContraindiKate,
@ContraindiKate@disabled.social avatar

In Q2 2024 our company will continue to meet our objectives and emerge from the current relapse market with stronger bottom-line fundamentals in all key areas. We feel certain that these operational procedures constitute the right path to manifest our vision of a less productive, poorer, healthier and kinder operating environment.

ContraindiKate,
@ContraindiKate@disabled.social avatar

@begrudging_recluse Thank you. I trust that the shareholders will continue to put their faith in our leadership.

ContraindiKate, to mecfs
@ContraindiKate@disabled.social avatar

This statement about the recent NIH study from ME Action is on-point. Introducing the idea of 'purity' into a study is always a red flag.

"The paper draws conclusions based on an atypical cohort that may not be representative of the ME/CFS community, and from a very small sample size, and there are also conclusions drawn in regards to “effort preference” that may not be supported by the evidence."

https://www.meaction.net/2024/02/29/meaction-nih-study-response/

ContraindiKate, to mecfs
@ContraindiKate@disabled.social avatar

I'm going to listen into this call from Dr. Peter Rowe with updates about the project, starting in a few minutes.

I'm curious to hear how this research is going. Apparently they've received a quantity of funding.

Here's a Guardian article about the Remission Biome project from last year. https://www.theguardian.com/science/2023/jul/09/microbiome-chronic-fatigue-me-long-covid-research

To sign up to join the call:
https://x.com/remissionbiome/status/1750276331307155903?s=20

@mecfs

PacificNic, to random

The secret is to leverage your immunity debt to acquire more immunity assets that generate more immunity. That way, you generate passive immunity and don't have to get sick another day in your life.

ContraindiKate,
@ContraindiKate@disabled.social avatar

@PacificNic @seachanger somehow I worry this scheme might end with the need for a bailout

ContraindiKate,
@ContraindiKate@disabled.social avatar

@PacificNic @seachanger oooh does this mean I get a sweet government immunity bailout?

ContraindiKate, to random
@ContraindiKate@disabled.social avatar

For my English speaking friends:

A new report shows that Germany's economy would have grown last year, if it were not for the fact that so many of its workers were sick. Instead, it shrunk.

https://ard.social/@tagesschau/111821445088270998

ContraindiKate, to random
@ContraindiKate@disabled.social avatar

Oh Mastodon!

Oh these exquisite little hallways reverberating with calm, nuanced conversations!

Oh you patient and comprehensive collectors of the majesty of trees!

Long may you transmit adorable pictures of puppies and also long-form articles about the end of humanity!

antiaall3s, to random
@antiaall3s@chaos.social avatar

"This is what surrendering to the pandemic means around the edges of the statistics, where people live. It’s not just the broad strokes and the sudden deaths. It’s land mines lying silent beneath the surface of a loved one’s heart or brain or immune system, waiting to be stepped on in a biologically wrong footed moment. It’s whittling away at the already blurry space between functional and disabled [..]"

https://www.okdoomer.io/how-long-covid-is-rewriting-the-final-chapter-of-my-life/

ContraindiKate,
@ContraindiKate@disabled.social avatar

@antiaall3s Since the very beginning of COVID-19, I've been struggling with how best to communicate the potential long-term consequences of an infection. I want to make it clear that ppl should be actively taking measures to avoid long-term disability, because post-viral illnesses are truly challenging to live with. But how to make the gravity of the situation clear while also still framing my own life with severe post-viral illness as a life with value, joy and dignity?

ContraindiKate,
@ContraindiKate@disabled.social avatar

@antiaall3s I know that greater minds than mine have been thinking and writing about this in the justice community for decades. Ironically, I'm so tired, foggy, disoriented and overwhelmed most of the time that this research is beyond me.

ContraindiKate,
@ContraindiKate@disabled.social avatar

@antiaall3s For decades, the lives of people with post-viral illnesses have been portrayed as a punchline, if we are considered at all. Watching people who were previously considered 'valuable' in society become like us has been instructive. Suddenly, there is research, hashtags, young activists. Suddenly, my GP knows what ME/CFS is. I'm never sure whether to be grateful or angry.

ContraindiKate, to mecfs
@ContraindiKate@disabled.social avatar

Question for

I have COVID. Just spoke with my GP, who recommends that I take Paxlovid. She won't write me a script so I can take it at home, due to co-morbidities. She suggests I go to the hospital. I agree with her advice.

But.

going to emerg for me means entering the building that earlier this year produced that odious "research review" paper by a group of Viennese so-called Neurologists, which claimed ME is a misnomer because there's no evidence of brain swelling.
1/

ContraindiKate,
@ContraindiKate@disabled.social avatar

Since it was published, I've known there's a good chance I'll need to interact with their neurology staff in an emergency setting, and had it on my to-do list to collect some scientific papers that demonstrate how they were wrong.

But since it was published, we've been lurching from crisis to crisis and I haven't had time to do my homework.

Can anyone point me to papers or articles I can print off and bring to help me to push back against ME-denying neuro consults in emerg tomorrow?

DenisCOVIDinfoguy, to auscovid19
@DenisCOVIDinfoguy@aus.social avatar

Scientists who study were asked if they continue to be COVID-cautious by wearing masks.

@auscovid19

video/mp4

ContraindiKate,
@ContraindiKate@disabled.social avatar

@PacificNic @DenisCOVIDinfoguy they looked like they were in physical pain over having seen their colleagues not in masks. It's refreshing to see that unguarded reaction.

ContraindiKate, to random
@ContraindiKate@disabled.social avatar

The cheers for @trendless and his merry band of Zeros! Thanks for keeping us connected!

  • All
  • Subscribed
  • Moderated
  • Favorites
  • •
  • megavids
  • everett
  • ethstaker
  • thenastyranch
  • magazineikmin
  • modclub
  • rosin
  • khanakhh
  • osvaldo12
  • Youngstown
  • slotface
  • Durango
  • kavyap
  • DreamBathrooms
  • JUstTest
  • ngwrru68w68
  • tacticalgear
  • InstantRegret
  • Leos
  • cubers
  • mdbf
  • normalnudes
  • tester
  • GTA5RPClips
  • provamag3
  • cisconetworking
  • anitta
  • lostlight
  • All magazines
    •