@essie_is_okay@aus.social
@essie_is_okay@aus.social avatar

essie_is_okay

@essie_is_okay@aus.social

#Queer, white, #neurodivergent and multiply #disabled. Learning about #abolition and #DisabilityJustice. Interdependence is beautiful. 404 gender not found.

#nobot

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essie_is_okay, to disability
@essie_is_okay@aus.social avatar

Anyone ever got the Disability Support Pension for anxiety? I really need to get on DSP and I think anxiety is the condition I have the most medical evidence to support.

This is for Australia.

chozari, to random
@chozari@aus.social avatar

I’ve decided to go there at 4 o’clock in the morning and I’m actually so excited because I always wanted to do this. Teeheeeeeee! I feel like I’m sneaking out and it’s naughty and not allowed and to be honest that’s why it’s a little bit fun.

essie_is_okay,
@essie_is_okay@aus.social avatar

@chozari
Hope you have fun!

essie_is_okay, to random
@essie_is_okay@aus.social avatar

Folks, I got through three covid outbreak in my grans ward without catching COVID once. The secret sauce? A well fitted N95 mask and an air purifier. I spent 15+ hours face to face with my gran while she had COVID, and didn't get it.

Mask up! It freaking works.

essie_is_okay, to disability
@essie_is_okay@aus.social avatar

How did you make a more robust sense of self? How do you know when your sense of self is strong or weak? Interested to hear people's lived experiences.

Years of dissociation and masking makes it hard to feel what is me.

@actuallyautistic

BigAngBlack, to oklahoma
@BigAngBlack@fosstodon.org avatar
essie_is_okay,
@essie_is_okay@aus.social avatar

@BigAngBlack
This is.... horrifying. Abolition is so needed so urgently. Reading the first article is the stuff of nightmares and horror.

Abolish prisons. Abolish death penalty.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

One of my favourite sounds while I go to sleep is my rabbit crunching on his bedtime celery. I can hear his big cronches from down the hall.

Somewhat related; the majority of all the celery we get in our grocery delivery is rotting at the base lately. I don't think we are being deliberately given bad celery because it's not obvious until you break off a stalk. Makes me think there's something wrong with their supply crop. Some kinda rot.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

Don't do this, please. Following me from 8 seperate accounts when we've never interacted is creepy. Blocked on all of them. Sorry, not sorry.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

We've definitely turned a corner with my granny. It feels scary that the end is finally here. I don't know how imminent it is, but I'm guessing a week or two.

jpm, to random
@jpm@aus.social avatar

Unfortunately, there’s no way I can for in the 2024 unless something dramatically changes this year

essie_is_okay,
@essie_is_okay@aus.social avatar

@jpm
Is the joke here that you legally can't vote for biden because you aren't a US citizen, and this post is supposed to catch out people who assume you meant it in the normal way?

essie_is_okay, to disability
@essie_is_okay@aus.social avatar

Having chronic fatigue means you feel like someone came and drained your life force in the night. I feel as if a vampire sucked me dry but leaves just enough for me to survive.

essie_is_okay, to australia
@essie_is_okay@aus.social avatar

Please please please Australia's: if you are currently sick, test for COVID. Massive wave right now and so many people have it. Don't trust that you just have a cold. Please test and isolate. Please mask.

Jakra, to FIRE
@Jakra@aus.social avatar

Last day of school, and the arson has already started... Two fires started within minutes of each other

essie_is_okay,
@essie_is_okay@aus.social avatar

@Jakra
That's so scary. Hope they were put out swiftly.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

Old dogs have my heart. When their black spots turn to grey, and their eyes go misty blue. Puppy's are very cute, but old dogs have my heart.

essie_is_okay, to food
@essie_is_okay@aus.social avatar

I made this stir fry the other day and it tastes good but something about the noodle texture is a little off (I probably overcooked them), and because I'm so burnt out, I can't eat it.

The wherewithal to soldier through overcooked noodle texture is gone unfortunately. Maybe my mum will eat it. I don't like to waste food.

I really am so tired. I should just stick to safe foods. All I want is the easiest food.

@actuallyautistic

essie_is_okay, to random
@essie_is_okay@aus.social avatar

The wind needs to chill the fuck down

essie_is_okay, to random
@essie_is_okay@aus.social avatar

I feel so hopeless. Mum talked with palliative care, they said we can't move gran to a hospice place until she's literally days away from dying. They said she didn't need palliative because she 'looks fine', they hadn't even read her file. So they had no idea that she even has brain cancer and maybe has a month left. The absolute gall to speak to family about their dying loved one without even skimming the file. And to tell us she looks fine.

If we are unhappy with her care we basically have to move to a different nursing home, or when she gets worse take her to hospital. There is no hospice staff here to help us the family, no one to give us guidance or help. We basically will have to research it ourselves, ask to see the palliative team, who will talk to the GP about medication. That is the extent of their help. Basically just a middle man. They also only come once a fortnight unless it's urgent.

I feel absolutely heartbroken and shattered. I knew the system was bad but I thought at least palliative would be better than this. This isnt like what I saw in my research. I saw nurses who cared and anticipated their patients needs, and told family what to expect. Called family if they would die tonight. There is no one like that for us. I hoped there would be at least one nurse like that. There is no time for grief or rest.

I hate hate hate this. There is no peaceful death on this path. If my gran dies peacefully it will be entirely because my mum forced people to do their jobs. No one here cares. I hate everything. I am so angry and crying. No one deserves this. It's traumatic. For my gran and for us. We have been gaslit by staff repeatedly.

This is really traumatic now.

essie_is_okay, to disability
@essie_is_okay@aus.social avatar

Trigger warnings are not a moral judgement on the subject material. They simply give people the ability to choose if/when they engage with a topic that could harm them.

Adding a trigger warning for flashing lights, needles or food is not saying that those things are bad.

Trigger warnings also don't prevent us from normalising sensitive topics. You can use TWs AND normalise death for example. They are not mutually exclusive.

Trigger warnings are access needs for disabled people. Refusing to use them because you think society is too soft, or you think people should just get over their fears, is ableist.


essie_is_okay,
@essie_is_okay@aus.social avatar

@MsHearthWitch
I hadn't heard of this. I'll be mindful to tag food instead of CW in the future.

I totally agree with what you're saying. I consider this a conflicting access need. Trigger warnings are by no means perfect and can make things inaccessible too sometimes. Just like in your example

Tw death mention below

What my post is referring to is the people who genuinely think that trigger warnings are coddling people. And that they are passing judgement on the subject. I recently saw someone call TWs a sign of the 'pussification' of America. That was under a post of a hospice nurse tiktoker who was angry that people asked her to TW death for when she reinacted someone dying. She said that trigger warning her skits about dying would hurt her cause of normalising death, and people might look away when they really need to see her content. So she rejected request to add TW to her content. My post addresses those kinds of attitudes.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

I freaking hate nursing homes. Cookie cutter care and dignity is not that. I've been kicked out while my gran is crying totally lost and scared, because they can't change her in front of me. So instead I hear her crying and begging through the door, afraid. And she can't understand them.

But it's okay everyone, her family didn't see her naked so her dignity was protected. /s It doesn't matter that she is having a panic attack as long as her family who has seen her naked a bajillion times doesn't see her naked this particular time. /s

Good stuff.

No one please defend the policy. I understand it perfectly fine.

essie_is_okay, to Perth
@essie_is_okay@aus.social avatar

This is beyond fucked.

Bunbury council plays 'Hot Potato' 24/7 to deter homeless people from sheltering in an empty outdoor stage.

Bunbury is having an unprecedented housing crisis, like the rest of the state, and this is the council's reaction. They did this before a few years back and got in trouble. We are about to go into a deadly hot summer, and they're pulling this shit.

Housless people are your neighbours. Look after your neighbours. Contact Bunbury Council to express your outrage over the treatment of their vulnerable residents. https://www.bunbury.wa.gov.au/contact

https://www.abc.net.au/news/2023-11-02/council-wiggles-hot-potato-homeless-bunbury/103049964

essie_is_okay, to random
@essie_is_okay@aus.social avatar

When I was like 18 I dropped a friend off on my way home. A detour that added maybe 5 minutes to my overall journey.

My friend tried to give me $2 for the petrol I spent on a 5 minute detour. I was flabbergasted. I explained it was nothing, don't worry about it. She was so nervous about being a burden and left it anyway.

I can't help but think what her family had drilled into her that she would be so scared of being a burden. She was always so self conscious and nervous.

We aren't friends anymore, I hope she's okay and feels valued and loved.

melissabeartrix, to random
@melissabeartrix@aus.social avatar

Oh ... Wow ... Just had a call from a friend he had to get a couple stents{?} in ... The doctor rang him yesterday @ 5pm, drive to the hospital ... Awake by 9pm ... He gave high praise to the medical team ... And getting kicked out tomorrow morning ... Expected bill $0 ... What a shock ... Glad everyone is ok ... Hugz

Hugz & xXx

essie_is_okay,
@essie_is_okay@aus.social avatar

@melissabeartrix
Geez they kick you out quickly huh. Hope he recovers well and is 👍

essie_is_okay, to random
@essie_is_okay@aus.social avatar

I'm putting out a bucket of lollies for the two neighbours kids who will come by tomorrow, knowing I'll eat the remaining 90% of the bucket.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

So ALL of the pots and pans we own are nonstick Teflon. I don't feel comfortable using them to cook anything very hot (the Teflon breaks down and is toxic).

I wanna buy some cast iron or enamel (?) stuff that is good to do volcanic heat. I want to be able to put it in the oven (another thing I can't do with anything we have).

I'm looking at this thing. It's a 2in1 dutch oven / skillet combo. I know I'll have to season it and learn to properly care for it. Anyone have any tips or recommendations? I wanna finally be able to brown a roast off on the stove then put it in the oven without dirtying multiple pans.

essie_is_okay, to random
@essie_is_okay@aus.social avatar

It's raining 🎉. It smells lovely.

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