It’s my #MultipleSclerosis anniversary. To celebrate, I took the day off work, bought new binoculars, made a badass salad for lunch, went to McLane and got my car washed and vacuumed. Feeling good about my life choices. #MSiversary
Very spasm-y legs when I went to bed last night, but an ibuprofen and a couple of drops of cannabis oil and I slept right through. Surprising, but most welcome. It bugs me that I can’t get access to this legally without huge expense. It’s a game changer.
COVID-19 found to increase risk of hospitalization, death in multiple sclerosis (MS): Study.
Researchers say findings in England show threat 'still very real for many'
"With new variants constantly emerging, people living with MS should be considered an important high-risk group for COVID-19 hospitalization and death for which additional preventive measures and multilayered public health protections are urgently needed"
MS patients face much greater risk of hospitalization, death from COVID-19, despite high rates of vaccination.
"These findings indicate that vaccination alone may not adequately protect individuals with MS from severe COVID-19 outcomes, and underscore the urgent need for additional preventive measures against COVID-19 in this vulnerable population, say researchers."
@DenisCOVIDinfoguy@auscovid19 I was diagnosed with MS 30 years ago and have been in remission for many years, but my physician and our county’s public health nurse have been adamant about how crucial it is that I avoid getting infected with COVID. We’ve never stopped taking every precaution (so far successfully) & have gotten every available booster, but sure wish so many people weren’t making a difficult thing increasingly challenging for vulnernable people like me. 😷 #WearAMask
Hello people in the little glowing pocket rectangle, my sister and my adorable nephew are raising money for the National Multiple Sclerosis Society on behalf of my mom who has MS. If you could donate (and don’t forget employee matching!) I’d appreciate it and will even post a new corgi picture for each person who replies that they donated. Any little bit helps! #WalkMS#MultipleSclerosis
March is #MultipleSclerosis Awareness Month and boy am I aware right now. How many doctor’s office fish tanks have I sat in front of throughout my life?
MS is a neurological condition where your own immune system attacks the myelin sheaths that protect your nerves. It can manifest for folks in any number of ways. For me, it has presented itself as optic neuritis, vertigo that lasts for weeks on end, intense numbness and tingling and pain from my rib cage down and more. #MSAwareness#FuckMS 1/4
@pseudonymsupreme ❤️
One of my dearest friends was diagnosed with MS a couple of years ago. This, on top of coping with an inoperable but manageable tumour for which he has to take really strong meds daily. It's his birthday today. I'm thinking of you both.
I got a leg brace to use when running a couple of years ago. I have foot drop and a general loss of strength & was falling over a lot. Since then, I’ve managed to stay on my feet. I’m not running quickly, but I am still running. I fell over this evening and scuffed up my knee, but I’ve been a bit MS-y for the last few days and it was an uneven bit of path. I’m choosing to see the bigger picture. Just a (literal and figurative) bump in the road. #MultipleSclerosis#running#AccidentalOptimist
"After decades of frustration and failed attempts, scientists might finally be on the cusp of developing therapies to restore immune ‘tolerance’ in conditions such as diabetes, lupus and multiple sclerosis." #Diabetes#Lupus#MultipleSclerosis
Very pleased to dip under 30 mins at #parkrun today. This is more than 8 minutes slower than my PB, but as my #MultipleSclerosis has progressed, this is now some going. Felt okay too on a chilly day, although a lake swim (5.9 degrees) and sauna (85 degrees) left me incapable of anything but a 2 hour nap when I got home. Still, a good day.
One of my most beloved relatives suffered from the devastating disease #MultipleSclerosis. So I pounced on this week's @nature piece on it, but both the news item and the (no fewer than 4) accompanying papers from Willerslev's group at #CopenhagenUniversity are about so much more than MS - thosands of years of human #migration, #evolution and indeed who we are in #Europe Worth a read (I fear it may be paywalled though)
We were contacted by a local agency that would like a presentation on educating their clients on how to prepare and stay safe during an emergency
"Many of the patients are in wheelchairs or use some sort of mobility assistance and a significant amount of them are seniors."
We are considering focusing on three topics:
"72 hour kits" with attention to things like backup generators/inverters, extra medications and/or equipment, and portability.
sheltering in place
planning for evacuation
We are waiting to hear if these folks are in licensed care homes of any sort (in California licensed facilities would be required to have emergency plans in place)
Would there be anything else that we should cover?
I fucking hate IV steroids so much. It’s like being on drugs, but skipping straight to the shitty come down, complete with existential terror and regret. #ChronicIllness#MultipleSclerosis#steroids
I had a mental health appointment and then lab work for an upcoming procedure done today. And it’s stunning how emotionally exhausted I am now it’s over. Debating taking the rest of the day off to nap. #multiplesclerosis#chronicillness
Two #coronaviruses isolated from central nervous system tissue of two #multiplesclerosis patients pubmed.ncbi.nlm.nih.gov/7403860/
Note the year (1980) and follow the related and citing literature. #Textbook ?
