stevesilberman, to random
@stevesilberman@newsie.social avatar

Big news! I have a new column in Scientific American, for which I'm deeply grateful. The first one is on how my mother's showed me another side of . Rough stuff, but the state of eldercare in the US is horrific. Please spread this link. https://www.scientificamerican.com/article/how-my-mothers-dementia-showed-me-another-side-of-neurodiversity/?utm_campaign=socialflow&utm_source=twitter&utm_medium=social

6G,
@6G@mastodon.social avatar

@stevesilberman

is different but do you know this?

First to be officially allowed is (July 2023)

🔴Sold as

There are others, that are experimental (see images NEXT POST)

The first one to be allowed OFFICIALLY is this one, that costs like a new quality car per year

See the 5min video of Alicia Menendez interviewing Dr Kavita Patel
Sunday July 9 2023

https://mastodon.social/@6G/110687478762847218

stevesilberman,
@stevesilberman@newsie.social avatar

If this column touched you, three excellent recent books on and informed my perspective: "My Father's Brain" by Sandeep Jauhar, "Finding the Right Words" by Cindy Weinstein and Bruce Miller, and "Travelers to Unimaginable Lands" by Dasha Kiper. All worth reading.

adolfor20, to random

SARS-CoV-2: A Master of Immune Evasion.

The interferon signal that activates the immunological system, is one of the first things that the covid blocks after it ingresses the cell.
Thus there is not symptoms until after the virus had replicated for a few days, and had obtained advantage.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9220273/#:~:text=One%20of%20the%20earliest,63%2C64%5D

Lorrrraaaaine,

@adolfor20
this goes into category of all time great

had me at tbh

should be a new song

only got 1/4 through, but it’s a great retrospective on vs

My strong suspicion is Omicrons are damaging brain more & now obsessed with & not in terms of prevention, but progression signs

This is like watching a car crash in slow motion💔but people all see us merely as a 🐓😣

hankg, to Health

Well this could be interesting! I like the idea of having diagnostic tests for these things, especially if there are interventions that could be tried to slow down or avoid dementia, Alzheimer's, etc. www.nature.com/articles/d41586…

itnewsbot, to science

Eli Lilly drug shown to slow Alzheimer’s progression - Enlarge / Alzheimer’s patient brain scans, provided by Eli Lilly. The U... - https://arstechnica.com/?p=1954453

fulelo, to random
@fulelo@journa.host avatar

BBC News - Drug seen as turning point in fight
https://www.bbc.co.uk/news/health-66221116

fulelo, to random
@fulelo@journa.host avatar
cobalt, to random
@cobalt@awscommunity.social avatar

@caregivers
Surprised to find son having sad feelings right now. Out of nowhere while he was relaxing last hour. Saw mouth quivering and eyes welling with tears. I asked him if he was sad and he is. This is really rare. Maybe 4-6 times a year for brief times. Heartbreaking and also because he doesn’t know why. All I could do was hold his hands and acknowledge. He asked to lie down in bed, so caregiver is with him now in dark, quiet.

clive, to random
@clive@saturation.social avatar

“Transactive memory” is when we store knowledge … 📖

… in the minds of our intimate friends, colleagues and family 🧠

It’s a surprisingly powerful, too

My essay on it: https://clivethompson.medium.com/the-weird-power-of-transactive-memory-7c7e324c9425

A friend link in case you’re not a Medium subscriber: https://clivethompson.medium.com/the-weird-power-of-transactive-memory-7c7e324c9425?sk=737c9c95d486582d111feed91c1af24b

stevesilberman,
@stevesilberman@newsie.social avatar

@clive Fascinating, Clive. Also consider the predicament of people caring for a parent or spouse with . My mother, who is losing the ability to speak right now, this month, is the carrier of much family memory. The door to that treasurehouse is swinging shut. (Here's a recent piece I wrote on my mom: https://www.scientificamerican.com/article/how-my-mothers-dementia-showed-me-another-side-of-neurodiversity/).

shanifi, to Medicine

Hello! I’m a Canadian / desperately seeking a microblogging community now that the world is on fire. Interested in , care, , , , and . Curious about in . How do I find my people? :) 👋

garry, to science
@garry@mstdn.social avatar

Disturbing New Finding Links Cognitive Decline to Dental Hygiene

'From the youngest age we're told we ought to brush our teeth to avoid losing them as we age. It now seems it's not just the health of our gums that are at stake. Our brain could suffer from poor dental hygiene'

https://www.sciencealert.com/disturbing-new-finding-links-cognitive-decline-to-dental-hygiene

hankg, to Health

For my last full day of "real" fasting, while needing to keep my exertion levels low, I'd re-read "The Alzheimer's Solution". It is a book on diet and lifestyle guidelines that reduce the risk and progression of Alzheimer's Disease. As I recall the Venn Diagram about what they are talking about lines up substantially with Blue Zones, Longo's Longevity Diet, and standard diet guidance. The book just has more focus on cognitive decline and Alzheimer's related tweaks and improvements.
The Alzheimer

cobalt, to random
@cobalt@awscommunity.social avatar

@caregivers
CW if others read this post
One dreadful effect of is the possibility of extremely foul language and racist slurs. Of course there are a myriad of other nasty phrases, threats and delusions going on. Tough to care for your sweet family member who is having these episodes. Worse when 2 caregivers are young Black men. Thing is, we can’t stop it. None of this was ever part of his life or personality. His brain is broken and there are no filters during these episodes.

blabberlicious, to random

In other non apocalyptic news, season is here in the UK. Took our mum to Carshalton Fields. She rocked the place in her Jams, bless her.
Highly recommended for those looking for a change of scene. Especially .

Susana, and her grandaughter, standing in a field of Lavender

constantorbit, to boston
@constantorbit@hachyderm.io avatar

area folks...

Help would be appreciated!

I need to extend in-home caregiving network for my partner Alyssa: young-onset and (mainly) . She goes to a GREAT day program 3 days/week but the agency we're using for the other 2 days is struggling to find us reliable coverage.

Looking for recommendations of agencies or private caregivers to contact so we have more options!

We're in Needham.

Boosts would be greatly appreciated! 🙏

HamonWry, to mentalhealth
@HamonWry@mastodon.world avatar

A friend asked if I could describe my mom’s Dementia, so I told him to imagine a laptop … then to imagine spilling coffee on the keyboard. There are moments when the laptop works perfectly fine, but most times there are fragmented images on the screen or the screen simply goes blank.

thejapantimes, to news
@thejapantimes@mastodon.social avatar

Expectations for the Alzheimer's treatment lecanemab are rising in Japan and it could be approved as early as fall, but even then there would be several barriers to its widespread adoption. https://www.japantimes.co.jp/news/2023/07/04/national/science-health/lecanemab-japan-approval-expectations/?utm_content=bufferb2b8f&utm_medium=social&utm_source=mastodon&utm_campaign=bffmstdn

bps_artish, to random

Morning all. Not been on much - had a suspected last week and it's made me very self-reflecting. Having a quite week while waiting for the full assessment.

bps_artish,

Hey guess what! I had two more attacks on Sunday, so I've had a full MOT and its not TIAs (mini-strokes) at all - its a (tumour/cyst - TBD) causing instead. Primary, not secondary, and almost certainly treatable, so I should get a bit more adventuring out of this otherwise now proven, poked, prodded, blood-tested, ultrasounded, CT scanned, X-rayed and MRI'd (!) healthy body!

Bright side - its not like my Dad, so I shouldn't end up drooling in a care home for years, and I'll probably go pretty quick when I finally hang up my boots if the cards fall that way - hopefully many years hence! ✅ 👍

JohnBarentine, to random
@JohnBarentine@astrodon.social avatar

Although the precision of the estimates was affected by the limited sample size and the study design did not allow us to exclude the presence of residual confounding, these results suggest a possible role of LAN in the etiology of particularly of its late-onset form.

https://www.cell.com/heliyon/fulltext/S2405-8440(23)05045-4

tiamat271, to novid
@tiamat271@mastodon.online avatar
thejapantimes, to showerthoughts
@thejapantimes@mastodon.social avatar
DieGesellschafterinLang, to random German
@DieGesellschafterinLang@swiss.social avatar

'Thank You for Being a Friend' - Thank You Day Anthem by Tony Christie f...

@MusicforDemUK
https://youtu.be/1tQrDI_neG0 via
@YouTube

DieGesellschafterinLang, to music German
@DieGesellschafterinLang@swiss.social avatar
JStevenYork, to history

My dad died last week after a long battle with dementia. It's a slow and horrible disease. Dad and I didn't always see eye to eye. In fact, we were at loggerheads over a lot of important stuff. But I loved him, and he lived an amazing life that frankly, sometimes defied belief. He was in the Korean conflict (where he was flight engineer on Psiops missions and dropping spies behind North Korean lines), and later on dangerous test flights in a B-29 testing self-sealing fuel tanks over a bomb range. As a civilian he was a aircraft mechanic for military contractors, and for the rest of his working career a Field Service Rep for Bell Helicopter, traveling the world advising Bell customers in peace and war. He was imbedded with combat pilots in Vietnam, barely escaped the fall of Tehran, visited off-short oil rigs, shot at and forced down by drug lords in Columbia, rode out hurricanes in the bahamas, flew with Air America in Cambodia, shot at by troops off the coast of South America. He was immune to wealth or celebrity, but his eternal and genuine farm-boy charm allowed him to hob-nob with the rich, movie stars, captains of industry, high-ranking military, and high ranking politicians. He didn't care about any of it, and his favorite place was working in his shop fixing old vehicles or tools, and building amazing machines from scratch.
It was hard seeing this amazing guy slipping away year by year, day by day. Even as his memory faded, he retaining his humor and charm until near the end, when the disease (as if often does) strips away even that. It was sad to see him go, but the dad I knew left a long time ago. I wish we'd had more time together, but we lived far apart, and sometimes worlds apart, and the covid shutdown hit at a very bad time for both of us.

#bellhelicopter #helicopters #history #aviation #dementia #alzheimers #airmuseums #fathers #loss

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