Responding to a BBC programme, Dr Edzard Ernst highlights data showing many are harmed by the Lighting Process and the lack of evidence for claims made.
He concludes: "Does anyone think that LP or its promoters are remotely serious?"
BBC: #LongCovid course is 'exploiting people', says ex-GB rower
Former Team GB rower Oonagh Cousins was offered a free course of the contested
alternative treatment "Lightning Process" (LP) for her long Covid. She says: "They were trying to suggest that I could think my way out of the symptoms, basically". The BBC has secret recordings from an LP-course confirming patients are told they can recover by changing thoughts, language and actions.
Professor and LC-researcher Danny Altmann says such behavioural approaches disregards the "mass" of measurable underlying damage in patients. Neuroscientist Dr Camilla Nord says the course is straying very far from neuroscience and calls it an abuse of scientific terms. The story is presented both as an article https://www.bbc.com/news/health-69040592 and a 38 min radio programme titled "Long Covid: Mind Over Matter?" https://www.bbc.co.uk/sounds/play/m001zg5q
"Health-care experts and medical studies have found that racist myths about Black people … coupled with physicians’ biases, mean Black patients are more likely to be seen as drug-seeking and described negatively in electronic medical records."
“Who gets diagnosed with Long Covid, it’s socially and economically skewed”
A thread for twelve #MECFS, #LongCovid and related research papers from w/c 20th May 2024.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
Not everybody becomes chronically ill from a disabling pathogen.
Live till you die is the goal, not suffer till you die.
You may not care if #Covid kills you, but will you care if you are so ill from #LongCovid, making food to survive takes every ounce of your energy for that day? Will you care then?
Because that's what way too many people are living right now.
Do you have somebody lined up who will take care of you indefinitely?
"Compared to unvaccinated cases, vaccinated cases had a similar or lower risk of all PCC categories except mental health disorders. Pre-infection vaccination was associated with reduced risk of several PCC outcomes and hence may decrease the long-term consequences of COVID-19."
Approximately 400 people protested on Saturday 11 may at Federal Square in Bern in Switzerland for better care for ME/CFS patients. Chantal Britt, president of the Long Covid Switzerland association helped to organize the protest. She pleaded to establish centers of expertise and promote research on ME/CFS.
"#MEAction’s narrative activity study with Mayo Clinic opens today! We’re looking for people with ME/CFS or Long COVID with PEM to share their experiences.
The survey will be open from 5/24/2024 to 6/23/2024."
Long survey (estimate says 20-90 minutes?) but you can do it in sections and come back.
"If you have specific questions about the study, you may reach out to the study contacts via email at pacingnarrative@meaction.net.
If you have any concerns, complaints, or general questions about research or your rights as a participant, please contact the Mayo Institutional Review Board (IRB) to speak to someone independent of the research team at 507-266-4000 or toll free at 866-273-4681."
Who was hit hardest by #covid-19? Possibly immigrants in unprotected essential jobs. Osbaldo Varilla-Aguilar and others still face lingering, sometimes extreme symptoms. #sf#longcovid
I am concerned that even the most #COVID19-cautious experts are losing their focus. Everything from them is becoming H5N1 all the time. They're moving on.
TWO AMERICANS have bird flu. It does NOT transmit human-to-human. This could change, but that isn't today's risk.
10 MILLION Americans will get another COVID infection this month--during our "low" point--and 1 million or more of them will develop #LongCovid.
Keep your eyes more on the risks we face today than what we MAY face tomorrow.
@augieray I can't even find out if there was ever approval for anybody other than 65+ to get any future boosters. Which is like the least they can do for us.
@augieray im with you in general. That said, it seems to me the CDC doesn’t want to even know much. Most people already are „actively disinterested“ when it comes to C19 and the way officials and those responsible handle H5N1 right now reminds us of that. If H5N1 becomes a bigger problem we probably wouldn’t know until it’s much worse than C19. https://mastodon.social/@RecoveredExpert/112500132374412401
@justyourluck Sorry you're still fighting long COVID. I am so disappointed that we (as society) have such strong denial we've abandoned all preventative measures, and forgotten all those who have died or been disabled by COVID.