@eleanorrees@mas.to
@eleanorrees@mas.to avatar

eleanorrees

@eleanorrees@mas.to

Used to edit books, but disabled by Long Covid since January 2022. She/her. SW England. Header image: the "Words do not mean anything today" graffiti photo by Roger Perry, 1974.

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DJDarren, to random
@DJDarren@mendeddrum.org avatar

How do you encourage people to use a safety system that benefits them if they keep coming up with excuses and reasons why they can't/won't?

As a company, we have a legal duty to require staff to carry out pre-use checks on machinery, but I swear that no matter how much I fettle the procedure to be as frictionless as possible, they always have some reason as to why they're not using it. It's aggravating as shit.

eleanorrees,
@eleanorrees@mas.to avatar

@DJDarren I'm thinking, path of least resistance... is there another way to get pre-use checks done, rather than that being the responsibility of people who resist and avoid doing it?

eleanorrees,
@eleanorrees@mas.to avatar

@DJDarren I see what you mean.

When you say earlier, "EVERYONE on the floor knows what's broken, but NO ONE bothers telling anyone with the power to action a repair" - maybe if the Google form QR thing gave them the power themselves to notify the repair person directly?

eleanorrees,
@eleanorrees@mas.to avatar

@DJDarren Ugh, sounds really frustrating. A lot of responsibility on your shoulders if management aren't interested.

eleanorrees, to random
@eleanorrees@mas.to avatar

Video call with the Long Covid clinic physio today, just to check in. Ended with the news that the service* is going to be shut down in March. No more money for it. They will stop taking new referrals at the end of this year and spend the last few months seeing all their current patients and putting some website resources together.

Depressing and enraging but not surprising.

*this is in southwest England - I don't know if it applies countrywide

eleanorrees,
@eleanorrees@mas.to avatar

Of course part of the problem is that with so few people testing for Covid, GPs are more reluctant to refer patients to post-Covid services because they can't prove what triggered the illness. Which has been entirely predictable for a while now.

eleanorrees,
@eleanorrees@mas.to avatar

@RogerBW Yeah, I saw one GP who kept telling me I just needed to meditate and do yoga. Clown.

eleanorrees,
@eleanorrees@mas.to avatar

Stats on referrals to post-Covid services for England are here: https://www.england.nhs.uk/statistics/statistical-work-areas/covid-19-post-covid-assessment-service/ They were taking about 5000 a month when those records began; it's now about 1500 (most recent figures are from August 2023).

That is the tip of the iceberg of new and ongoing LC cases, because it's only people who a) have identified their illness as LC in the first place and b) have symptoms severe enough that a GP thinks they can't be managed by primary care.

(also this is only adults AFAICS)

eleanorrees,
@eleanorrees@mas.to avatar

Another detail I've just remembered: the NHS trust has had to write a plan from scratch for closing the service, because it’s never happened before. They’ve never before been told simply to shut a service down, rather than reorganising or reincorporating it.

eleanorrees,
@eleanorrees@mas.to avatar

"In terms of long Covid clinics, sufferers elsewhere look at the UK with some envy in terms of an agreed and costed masterplan for ongoing national provision," says Danny Altmann (who has been consistently good on ). Well, they won't have that problem much longer.

https://www.theguardian.com/commentisfree/2023/nov/07/boris-johnson-may-not-believe-in-it-but-long-covid-is-real-and-underfunded

eleanorrees, to random
@eleanorrees@mas.to avatar

Someone a few streets away just let off a lot of fireworks that were beautiful and virtually silent.

Absolutely perfect.

eleanorrees,
@eleanorrees@mas.to avatar

@NormanDunbar Aww.

eleanorrees, to random
@eleanorrees@mas.to avatar

My husband's just pointed out we've been together for 21 years today.

He: "I don't think I could have stayed with anyone else that long."
Me: "Same."

As my grandfather said on his golden wedding anniversary: "I think we'll make a go of it."

eleanorrees, to random
@eleanorrees@mas.to avatar

Apparently the cabinet office and No 10 were "surprised" to discover that the NHS was underfunded and that its capacity was worse than that of other countries.

It's no surprise that Dominic Cummings still thinks he's the smartest person in the country, since he's mainly spent time with people who operate on the intellectual level of boiled potatoes.

https://www.theguardian.com/politics/live/2023/nov/02/ai-summit-covid-inquiry-elon-musk-rishi-sunak-keir-starmer-uk-politics-latest-updates-live?page=with:block-65437a578f08293ffae5140b#block-65437a578f08293ffae5140b

ZachWeinersmith, to random
@ZachWeinersmith@mastodon.social avatar

Niche gripe: pop sci books that cite a psych study and say something like "people who [x] are more likely to [y]" without mentioning the effect size, and then treat the result as if it's a statement about humanity. Like, in science a 3% increase is HUGE, but probably doesn't mean a lot about how to think about humans at large.

eleanorrees,
@eleanorrees@mas.to avatar

@ZachWeinersmith a nice visual illustration of that:

selzero, to random
@selzero@syzito.xyz avatar

The majority of this country voted for this stack of lobotomized ferrets in an ill fitting suit.

eleanorrees,
@eleanorrees@mas.to avatar

@losttourist @selzero To quote my late father-in-law: "You can't educate pork."

erictopol, to random
@erictopol@mstdn.social avatar

A new, very good review on Long Covid

https://www.nature.com/articles/s41392-023-01640-z

eleanorrees,
@eleanorrees@mas.to avatar

@erictopol I'm not sure it is "very good"? It copies some already-established findings from other work but they're tied together with nonsensical statements that look strongly AI-generated. (Some of which contradict each other.)

It may be relevant that the journal's editor-in-chief is Carlo Croce, who has a long history of plagiarism and scientific misconduct cases.

eleanorrees, to random
@eleanorrees@mas.to avatar

I had a look at the Covid Inquiry official website. It has links to 'support' organisations, including one for ... which talks about graded exercise without explaining its risks and without noting that the NICE clinical guidelines specify it should not be used. For those who are too sick to work and struggling for money, it offers 'budgeting tips' such as 'Autumn is an ideal time for foraging for free wild food'.

So nice to know this crisis is being taken seriously...

eleanorrees, to cricket
@eleanorrees@mas.to avatar

Women’s Spooky XI

Laura Werewolvaardt
Phoebe Witchfield
Death Mooney
Suzie Bates Motel (c)
Nat Shiver-Brunt
Maia Boo-chier
Amy Jonestown Massacre (w)
Georgia Hellwiss
Mah-eek!-a Gaur
Issy Wooooooooooo-ng
Jhulan Ghostwami

eleanorrees,
@eleanorrees@mas.to avatar

@passenger I confess I had some written down from last year.

eleanorrees, to random
@eleanorrees@mas.to avatar

"Covid is just Nature's way of dealing with old people."

We knew this was what they thought, but it's still a bit of a jolt to see it spelt out so plainly.

eleanorrees, to random
@eleanorrees@mas.to avatar

"Covid was 'the wrong crisis for Boris Johnson's skillset'"

as ever, the universe is at fault for not conforming to Johnson's preferred version of reality, not vice versa

https://www.bbc.co.uk/news/live/health-67244704?ns_mchannel=social&ns_source=twitter&ns_campaign=bbc_live&ns_linkname=6540e3568ae7803bb6845c3b%26Watch%3A%20Covid%20was%20%27the%20wrong%20crisis%20for%20Boris%20Johnson%27s%20skillset%27%262023-10-31T11%3A24%3A32.199Z&ns_fee=0&pinned_post_locator=urn:asset:21bbcb3a-24e2-4b16-b426-2946657937f3&pinned_post_asset_id=6540e3568ae7803bb6845c3b&pinned_post_type=share

eleanorrees, to random
@eleanorrees@mas.to avatar

"Patients in this study may only present a fraction of patients affected by long COVID, as information about this condition has not been systematically disseminated within the healthcare system."

(How many people are going to their doctor because lately they're shattered all the time, can't think straight or remember things, get dizzy, shaky, breathless, weird new stomach aches, tinnitus, eye strain, hair loss... and are being told it's just "stress" or "anxiety"?)

https://www.ijidonline.com/article/S1201-9712(23)00760-9/fulltext

misc, to random
@misc@mastodon.social avatar

If, as my last allergy test found, none of my allergies are seasonal, why have my allergies been so bad for the last few weeks, when nothing's changed but the leaves?

eleanorrees,
@eleanorrees@mas.to avatar

@misc anecdotally in this house, it's when the heating goes on and/or we aren't opening the windows so much.

ianRobinson, (edited ) to cricket
@ianRobinson@mastodon.social avatar

Here’s a video of that Rashid run out. It’s brill the way Mendis doesn’t look at him to give any warning he’s going to throw the ball at the stumps.

https://www.bbc.co.uk/sport/av/cricket/67228712

CWC site for non UK people: https://www.cricketworldcup.com/video/3753144?references=CRICKET_MATCH:102741

eleanorrees,
@eleanorrees@mas.to avatar

@ianRobinson Pretty much sums up the difference between the sides today.

sue, to random
@sue@glasgow.social avatar

Was browsing beanbag seats and stumbled on this cursed one that looks like bibendum 🥴

eleanorrees,
@eleanorrees@mas.to avatar

@sue 'where shall we put these sofas to show them at their best?'
'The far corner of a car park, obviously.'

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