@elmyra@wandering.shop
@elmyra@wandering.shop avatar

elmyra

@elmyra@wandering.shop

Rogue scholar, warrior poet; #trans, #bi, #ace, #queer af; #migrant; #disabled/, #adhd; they/them.

I care (toot/boost) about #socialjustice, #disability, #mecfs, #adhd, #plants, #crafting, #videogames, #scifi, #popularculture, #transrights, #consent, #climatejustice, #fandom, #fanfiction.

The personal is political.

Profile pic alt: selfie of olive-skinned human with dark brown hair looking up skeptically at the camera.

Banner alt: double rainbow in dark grey sky framed by trees.

This profile is from a federated server and may be incomplete. Browse more on the original instance.

elmyra, to random
@elmyra@wandering.shop avatar

Am I the only one who's bothered by the "covid is making everyone stupider" discourse? Yes there is credible research showing significant post-covid cognitive slowing (even in the absence of other long covid symptoms). But there's something particularly and insidiously ableist about the way it keeps getting presented as a gotcha.

elmyra,
@elmyra@wandering.shop avatar

I think part of it is the "well even if you're not one of those people with long covid it's still bad" - it feels like further marginalisation of folks with long covid. And the other part is the way intellectual disabilities are still treated even in parts of the disability rights community, let alone in wider society. It's still acceptable to insult someone at stupid or an idiot, and this just feeds into that.

elmyra, to random
@elmyra@wandering.shop avatar

Watching German mastodon going "we need fewer nazi cops but more of the right sort of cops" is painful.

aral, to ireland
@aral@mastodon.ar.al avatar

If you’re worried about Covid, come to Ireland. Here, Covid starts at 50. That’s why we don’t provide boosters to anyone under that age.

☘️ 🦠

elmyra,
@elmyra@wandering.shop avatar

@aral I'll see your 5 0 and raise you 75 the UK.

elmyra,
@elmyra@wandering.shop avatar

@aral oh oops I stand corrected, it's 65 now apparently.

dave, to random
@dave@social.lightbeamapps.com avatar

deleted_by_author

    •
    elmyra,
    @elmyra@wandering.shop avatar

    @dave risk increases with repeated infection: 38% by your third infection. This is not something individuals can "make plans" for, this is what public health is for, except we have gutted that. Demand better from your legislators and from society.

    Dynamicallydisabled, to autisticadvocacy
    @Dynamicallydisabled@spore.social avatar

    Maybe you've heard that people can be nonverbal or nonspeaking. But did you know there are many ways to be semi-speaking? I'll list some I just learned about below. Sing out if any of these resonate with you! @autisticadvocacy

    elmyra,
    @elmyra@wandering.shop avatar

    @Dynamicallydisabled @autisticadvocacy oh it me

    tomkindlon, to mecfs
    @tomkindlon@disabled.social avatar

    New:

    Advancing Research and Treatment: An Overview of Clinical Trials in / (ME/CFS) and Future Perspectives

    Free fulltext:
    https://www.mdpi.com/2077-0383/13/2/325

    @mecfs

    1/

    elmyra,
    @elmyra@wandering.shop avatar

    @tomkindlon @mecfs hmm I'm not a fan of "we should move away from outcome measures that rely on patient self-reporting". That requires trust in the medical/scientific establishment that is currently completely unearned.

    elmyra,
    @elmyra@wandering.shop avatar

    @tomkindlon @mecfs hybrid measures, maybe, within limits of patient safety. Eg. CPET should be outright banned in diagnosis and clinical trials involving ME patients.

    liztai, to China
    @liztai@hachyderm.io avatar

    Rewatching Dream of Splendor right now and remember what a beautifully made drama this was. I grieve a little because so many directors rarely bother to make of this quality anymore. 😭

    If you have not watched this yet, do try. It's a quality drama

    https://elizabethtai.com/2023/06/30/a-dream-of-splendor-review/

    elmyra,
    @elmyra@wandering.shop avatar

    @liztai how does one watch this? Is there an English sub? (I've wanted to dip my toes in cdrama for a while but don't know where to get them esp in a language accessible to me.)

    Binder, to random
    @Binder@petrous.vislae.town avatar

    deleted_by_author

    •
    elmyra,
    @elmyra@wandering.shop avatar

    @Binder one true password

    mbojan, to academicchatter
    @mbojan@sciences.social avatar

    Adding to the ToRead list https://scholarlykitchen.sspnet.org/2023/12/07/where-did-the-open-access-movement-go-wrong-an-interview-with-richard-poynder/ @academicchatter #openaccess #openscience

    elmyra,
    @elmyra@wandering.shop avatar

    @villavelius @mbojan @academicchatter I mean, that's where all the financial incentives for academics are?

    elmyra,
    @elmyra@wandering.shop avatar

    @villavelius @mbojan @academicchatter oh I know. My point is, the issue is systemic.

    elmyra, to random
    @elmyra@wandering.shop avatar

    Is there an AITA account on the fediverse? I miss that nonsense.

    Edent, to SmartHome
    @Edent@mastodon.social avatar

    Those of you who have a #SmartHome, what are your use-cases for smart plugs?

    Most of my electrical things aren't just on/off.

    I've got a light, a fan, and an electric blanket which can be controlled from the plug.

    Other things (like TV, kettle, etc) need interaction after the power is turned on.

    Have you found any good uses for #IoT plugs?

    (Not interested in rants about security & privacy, thanks.)

    elmyra,
    @elmyra@wandering.shop avatar

    @Edent I considered getting one to manage my greenhouse cabinet. It has two fans that are on 24/7 and two sets of grow lights on timers. Ultimately found a (clunky) non-IoT solution though.

    seldo, to random
    @seldo@alpaca.gold avatar

    The social contract is not ready for me saying "really bad, but thank you for asking" every time somebody asks me how I am.

    elmyra,
    @elmyra@wandering.shop avatar

    @seldo you know a friend is a keeper when a. You can say that you them and b. They trust you to say that to you.

    elmyra, to random
    @elmyra@wandering.shop avatar

    Unpopular opinion: I like daylight savings time. I live far enough north (52°) that without it the sun would rise at 3 am in summer and set at 3 pm in winter.

    Having said that, a lot of the problems people have aren't actually with DST, they're with the fact that we're being forced to comply with Capitalist Time rather than being able to listen to our bodies and live with nature.

    siderea, to random

    Quote:

    "Keep out of 'spray range,'" is the warning given to residents of Boston by Health Commissioner Woodward [...]

    In explaining his meaning of the phrase "spray range," the commissioner said that by the operation of coughing and sneezing a person suffering from the epidemic can send germs into the air for a distance of from eight to 15 feet. A well person standing within this rage can be readily infected by breathing in these germs. For this reason he urges the public to be on guard against getting into crowds or even conversing in the open air with persons who may be infected.

    It isn't even necessary for the infected person to cough or sneeze, according to the commissioner, in order to infect well persons within "spray range." The mere pronunciation of such letters as t, d, p and many others will send germs into the air for a considerable distance."

    Boston Globe, Oct 14, ⭐1918⭐ "Influenza Losing Ground in Boston"

    They knew 101 years before COVID.

    You know how?

    🧵

    elmyra,
    @elmyra@wandering.shop avatar

    @siderea that's horrifying

    elmyra,
    @elmyra@wandering.shop avatar

    @siderea thank you for this thread, it's extremely illuminating. It also puts me in mind of that time my cat had a very unusual kidney condition and the specialist vet went and read a bunch of research. That's when I realised that my cats were getting better healthcare than me, and yeah in light of your analysis that makes perfect sense.

    Edent, (edited ) to random
    @Edent@mastodon.social avatar

    Well, I've farted around enough with my blog's layout and theme, I'd better get to writing.

    But before I do. Should I add an optional "Dark Mode" CSS?

    elmyra,
    @elmyra@wandering.shop avatar

    @Edent dark more is an accessibility feature for me - I am light sensitive due to and need dark mode to be able to access websites.

    LLS, to mecfs
    @LLS@wandering.shop avatar

    deleted_by_author

    •
    elmyra,
    @elmyra@wandering.shop avatar

    @LLS Love and solidarity. It's a tough journey, and unlearning internalized ableism is hard. I will say it's not all on you: I hope you have a good support network around you and would strongly encourage you to ask for help when you need it. Also, a book rec: So Lucky by Nicola Griffith.

    Private
    elmyra,
    @elmyra@wandering.shop avatar

    @ergative @academicchatter that's actually a really good point, thank you. 😁

    elmyra,
    @elmyra@wandering.shop avatar

    @ScottMacShack @academicchatter who exactly pays peer reviewers for their labour?

    elmyra,
    @elmyra@wandering.shop avatar

    @ScottMacShack @academicchatter Must be nice to be a faculty member with job security. You're in the minority. Also IME even for most faculty members their job description and workload calculations do not account for peer review.

    Edent, to random
    @Edent@mastodon.social avatar

    I found a bot which was hammering my site. So I asked the author if they could make it opt-in.

    Apparently consent doesn't matter if it's for the greater good.

    The brainworms are strong!

    https://github.com/rom1504/img2dataset/issues/293

    elmyra,
    @elmyra@wandering.shop avatar

    @Edent I literally have PhD in consent and this makes me want to set stuff on fire.

  • All
  • Subscribed
  • Moderated
  • Favorites
  • •
  • megavids
  • thenastyranch
  • rosin
  • GTA5RPClips
  • osvaldo12
  • love
  • Youngstown
  • slotface
  • khanakhh
  • everett
  • kavyap
  • mdbf
  • DreamBathrooms
  • ngwrru68w68
  • provamag3
  • magazineikmin
  • InstantRegret
  • normalnudes
  • tacticalgear
  • cubers
  • ethstaker
  • modclub
  • cisconetworking
  • Durango
  • anitta
  • Leos
  • tester
  • JUstTest
  • All magazines
    •