LGS, to random
@LGS@friendsofdesoto.social avatar
joeveyera, to Seattle
@joeveyera@mstdn.social avatar

Tomorrow's the day! Thank you to everyone who has helped me surpass my fundraising goal for Beat the Bridge, to benefit type 1 diabetes research.

If you'd still like to chip in, follow the link below.
https://www2.jdrf.org/site/TR?fr_id=9537&pg=personal&px=13797041

joeveyera, to Seattle
@joeveyera@mstdn.social avatar

Hey Mastodon,

I'm running the Beat the Bridge 8K later this month, and I'm hoping to raise $1,000 for type 1 diabetes research. https://www2.jdrf.org/site/TR?fr_id=9537&pg=personal&px=13797041

TomLarrow, to random
@TomLarrow@vis.social avatar

Ate at a new local restaurant last night right before changing my son's Dexcom. Did our best guesses nutritional info, and did a finger stick an hour into the change: 120. Was worried about him going low but he kept saying he felt fine.

Numbers come in on the Dexcom an hour later and he's over 400. Overcorrected trying to bring him down and a couple hours later it was time for juice. Sat up and watched that fearing it would cause him to go high again, which it did

Got maybe 2 hrs sleep

asep, to Sleeping
@asep@toot.community avatar
johnefrancis, to random
@johnefrancis@mastodon.social avatar

8M Canadians don't have drug coverage.

Commerical drug coverage is normally capped at 80%.

Pierre Poilievre is parroting ‘crooked Big Pharma’ talking points ⋆ The Breach
https://breachmedia.ca/pierre-poilievre-parroting-big-pharma/

glynmoody, to random
@glynmoody@mastodon.social avatar

shortages ‘causing stress and anxiety’ for UK diabetes patients - https://www.theguardian.com/society/2024/apr/28/insulin-shortages-stress-anxiety-uk-diabetes-patients-type-1 outrageous, and largely to blame (other EU countries don't have this problem)

jobRxiv, to random
@jobRxiv@mas.to avatar

Postdoc positions in pancreas development & stem cells in the Spagnoli Lab @SpagnoliLab

King's College London

Come join us as a to lead a new exciting Grand Challenge-funded research program on engineering cell-derived islets

See the full job description on jobRxiv: https://jobrxiv.org/job/kings-college-london-27778-postdoc-po...
https://jobrxiv.org/job/kings-college-london-27778-postdoc-positions-in-pancreas-development-stem-cells-in-the-spagnoli-lab/?feed_id=74241

onelson, to random
@onelson@mastodon.social avatar

I have consistently had my insulin refills delayed about 2 weeks (or more) for the past several fills, and I wonder what the fuck is going on.

Is this a supply chain issue?

johnefrancis, to random
@johnefrancis@mastodon.social avatar

Struggles with G6/G7 on Android, Pixel 7 with latest updates....for months... after the upgrade to Android 14....it developed a frequent, intermittent signal loss error. We even bought a receiver, which worked very reliably. Went thru many sensors without any difference.

In Feb, Dexcom updated their documents describing the necessary settings. Reviewing that, I found that the location permission for the app was set to "allow", but not "always allow"...

johnefrancis,
@johnefrancis@mastodon.social avatar

changing that to "always allow" seems like it might be the problem.

Android Bluetooth requires location permission. So if you want "always Bluetooth" you must "always allow" location.

It's an unintuitive arrangement, although there are hopefully goid reasons for that other than "so Google can spy more".

This is one of about a dozen, mostly power related app & system settings that are needed for a working app.

Fury, to random
@Fury@mastodon.au avatar

Had a BAD hypo last night. I felt like time was pliable. Like one second was three hours or three hours was one second.

cfiesler, to random
@cfiesler@hci.social avatar

In honor of discovering that I've apparently had a Wikipedia page for a few months, I decided to tell the story of why I'm not a Wikipedian (a story I told Jimmy Wales lol) and this seems like the kind of thing that might interest you all: https://www.instagram.com/p/C5i1r68Lyk-/

Though TL;DR if you don't want to watch a four minute video, my attempt to increase coverage of children's literature on Wikipedia was met with exactly the kinds of gatekeeping acrimonious jerk behavior you might expect.

cfiesler,
@cfiesler@hci.social avatar

Also one of my favorite things about the Wikipedia page for me is that it mentions I have type 1 diabetes. (Which is totally fine to include, it's in a news article about my research!) Representation for the win. :) https://en.wikipedia.org/wiki/Casey_Fiesler

onelson, to random
@onelson@mastodon.social avatar

I've had a really bad week (the whole week) with lunch time control.

I keep taking my bolus then not eating lunch until maybe an hour later.

Almost every day this week I've had a low because of this followed by a high and an over-correct in the afternoon or early evening. 😩

viq, to random
@viq@hackerspace.pl avatar

I had a spare , so with my SO we now get to see the power of non- in action. And holy fuck, 100g of sweet bun, so I'd say 50g of carbs, +5 from milk in coffee and +5 from a biscuit, and half an hour after that they peaked at 125 mg/dL, and after another half an hour were barely above 100.
Meanwhile me after about 70g and a bunch of insulin and a bit of exercising and I failed to not go above 200 about 2h after.

onelson, to random
@onelson@mastodon.social avatar

I normally request g6 overpatches from Dexcom, the 10 free ones per month they are willing to mail you. This time, I'm ordering some from Amazon as I am weary of having to remember to do this every couple months; I just want to keep a stockpile on hand.

I wonder which brands are good?

QasimRashid, to random
@QasimRashid@mastodon.social avatar

It costs ~$70 to produce a year’s supply of insulin. Yet, the average annual cost of insulin went from $2,864 in 2012 to $5,705 in 2016 to $18,000 in 2024. That’s a 25,714% markup.😳

That isn’t inflation. It isn’t supply chain issues. It is 100% corporate greed.

peachfiend,
@peachfiend@mastodon.sdf.org avatar

@Deus @Bluedonkey as someone assigned american at birth and also

many insulin users are diagnosed as children. i was 3. an immunodeficiency caused my pancreas to fail when i contracted chickenpox. it's true that american foodstuffs have waaay too much sugar, often in unexpected products. but type-1 is always insulin dependent, and not caused by sugar in the diet.

but all the more reason insulin should be free. but you know we only love fetuses here, not actual living children. 😮‍💨

johnefrancis, to random
@johnefrancis@mastodon.social avatar

At lunch at Loblaws-owned T & T, but got a recurring prescription transferred to online pharm MedNow. Much lower dispensing fees & co-pays than Shopper Drug Mart.

So I managed to keep a few bucks out of Weston's hands. Baby steps.

johnefrancis,
@johnefrancis@mastodon.social avatar

@human3500 drug plans don't cover 100% of the costs. Usually only 80%. The co-pay is the rest. The co-pays on a years worth of diabetes for my dependent will be about $5000.

johnefrancis, to random
@johnefrancis@mastodon.social avatar

It's a blood moon because of a lunar eclipse.

It's a sugar moon because it's the first full moon of spring.

It's the blood-sugar moon!

ricmac, to random
@ricmac@mastodon.social avatar

In November 2007, I get a shock diagnosis of Type 1 Diabetes . Meanwhile, the Read/WriteWeb server struggles to cope with our rapid page view growth. (part 025 of my serialized book, "Bubble Blog: From Outsider to Insider in Silicon Valley’s Web 2.0 Revolution") https://cybercultural.com/p/025-health-problems-server-issues/

lonestarplate, to random
@lonestarplate@babka.social avatar

The kid's phone got wet so we all had to scramble to switch to the omnipod pdm. It's so much harder to do when you're rushing to get back to work and school than when it's a leisurely change for a new device.

All this new diabetes technology makes things better and safer. But it has its downsides, too.

Avara, to random
@Avara@chaos.social avatar

I need your help awesome people with type 1 diabetes.

I’m soon in the position to switch pumps and my cgm system.

There’s open-source loops like Loop for iOS or AAPS for Android but afaik they only support “older” pumps, e.g. Omnipod DASH instead of Omnipod 5.

Are the new proprietary looping solutions worse, as good or even better than the current open source ones.

What’s your current setup and do you like it? Are there pros and cons and what phone OS do you use? 👀

:BoostOK:

onelson, to random
@onelson@mastodon.social avatar

Looks like I need to rejigger my delivery profile. Had an unexpected rise before I ate anything this morning, but after my usual (well handled) dawn phenomenon.

StorieswithaWill, to actuallyautistic
@StorieswithaWill@fosstodon.org avatar

Hey folks! I'm I'd really appreciate advice, ideas, etc.

My Mom's certain my Dad was ASD (maybe PDA or ?) And I'm starting to think always was, also.

how hard is it to get an "official" diagnosis so that I can get accommodations at work or whatever?


@actuallyautistic

StorieswithaWill,
@StorieswithaWill@fosstodon.org avatar

@actuallyautistic

(Part 2, continued from earlier question)

I do have some conditions with overlapping symptoms which will complicate the process, like cptsd, juvenile onset with resulting brain damage, neuropathy, anxiety, etc

Also, I'm poor and live in rural north California (I'm on medi-cal, aka partnership insurance)

Any tips, shares, etc appreciated. Good luck everybody!

makingthingswithstring, to crossstitch
@makingthingswithstring@mastodon.social avatar

Hello!

I'm a Canadian crafter trying out Mastodon. I love knitting and cross stitch and many other crafts. I'm also into gaming, and I'm a Type 1 Diabetic. I have several fur babies, and a human family as well. Nice to meet you! 💙 🧶 🧵

onelson, to random
@onelson@mastodon.social avatar

oddity. Counting carbs lodges weird equivalencies in your head such as a chipotle burrito with chicken, rice, corn salsa, and other stuff is roughly the same carb content as a pint or more of ice cream.

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