britt, to random
@britt@mstdn.games avatar

More pokey pokes today … hopefully the last lab tests and vaccines before I get to start on my immunotherapy.

2 week countdown let’s go!

britt,
@britt@mstdn.games avatar

Fun fact: RA doesn’t just affect the joints… and it’s not just an ‘old person’ disease…

britt, to medical
@britt@mstdn.games avatar

I’ve officially been prescribed biologics.

Phew. I didn’t realized how hard that would hit… I have to keep reminding myself that “the normal average level of pain is zero, not 6-7.”

Now to wait for provincial funding, update some vaccines, and to jump through lots of hoops.

#Medical #ChronicIllness #RheumatoidArthritis

tomkindlon, to fibromyalgia
@tomkindlon@disabled.social avatar

A cross-sectional study demonstrated significant impairments in attention, memory, and higher cognitive functions among a cohort of patients with and (RA)

https://www.hcplive.com/view/patients-with-fibromyalgia-scored-worse-in-memory-attention-cognitive-function

@fibromyalgia

rolandelli, to random
@rolandelli@sfba.social avatar

I’m taking an Instagram break until after the holidays. You bastards are stuck with me though.

I’m having pain issues and need to self care. (I’ll be seeing my rheumy on the 21st, I can guarantee a switch in meds). I’m also needing to get more support in my life, both emotional and kindness, and possibly house help. But the latter is tricky in this pandemic.

Anyway, I’ll post some art later if I can.

geographile, to Discord
@geographile@sfba.social avatar

A lot of the community on Twitter seems to have dissipated since Twitter went kaplooey, but the channel is still there. It doesn't seem very active these days, but it's there, and we would love to see you if you have or a illness. Come join us, we're nice people.

https://discord.com/invite/nuh9TTsj




rolandelli, to random
@rolandelli@sfba.social avatar

There is a second research study showing possible autoimmune curative treatment that avoids wide spread immuno suppression in patients.

The previous one was regarding a "reverse vaccine". Are there any rheumatologists or researchers on here that can explain these findings in layperson terms?

Are they both targeting T cells?

https://www.nature.com/articles/s41591-023-02613-z

CastlTrAstonDrs, to random
@CastlTrAstonDrs@med-mastodon.com avatar

@jama_current are still long & winding road to recovery. The data suggest that & connective tissue disorders may manifest as with the potential long-term health ramifications associated with .

Risks of Incident Autoimmune and Autoinflammatory Disease Outcomes in the COVID-19 Cohort Compared With the Control Cohort

CastlTrAstonDrs,
@CastlTrAstonDrs@med-mastodon.com avatar

Notably, certain disease risks exhibited a positive association with the severity of such as , , , , , , adult-onset Still disease, , , ,, .Av ages (354,527 - 52.2 yo, 50.5% 👩‍🦳 ,6,134,940 controls 52.1 yo, 50.1% 👩‍🦳.The average follow-up time for & control groups were 120 & 121 days

momo, to FFXIV

I'm not the best at #introduction (s) but here goes nothin ​:002blush:​

hoi, I'm mana, also known as momo. I'm an FC leader in #ffxiv and I play on Primal DC. I'm shy, but one of those people who won't shut up once you get to know me. I have a tendency to be introspective/keep to myself when I'm really depressed. I have #cptsd and am #neurodivergent. Also, I'm disabled from #rheumatoidarthritis and #ehlersdanlossyndrome and #fibromyalgia. Most days are good days, but the bad ones are pretty bad ​:blobcat_notlikethiscry:​

wow what a way to open ​:blobcat_nervous:​

umm...I really like indie games, esp. horror ones like #Ib, #MadFather, #TheWitchsHouse, #yumenikki...stuff like that. I'm a big fan of #worldofhorror and #JunjiIto, and I've read most of #KojiSuzuki's works.
I enjoy #lightnovels and am currently reading #urasekaipicnic. I also really enjoyed #kamisamanomemochou. I like #anime but I don't really watch it all that often these days, but there's still plenty on my to-watch list ​:ahrispin:​
I also like #visualnovels but rarely am in the mood to play them lately. some of my favorites have been the #higurashinonakukoroni series and #higanbananosakuyoruni. I also really like anything by #MAGES or #5pb / #nitroplus. #chaoshead and #steins;gate are favorites.

As far as regular video games go, I like #jrpgs, #farmingsims, #touhou & #danmaku games. I have played almost every #neptunia game ​:blobfoxlaughsweat:​ and my comfort game is #stardewvalley

I like modding/coding games so I've been learning #blender and #json to facilitate that. idk what else to say butt hi everyone, thanks for reading this if you did! let's be friends?​:sbahri_question:​

susan87505, to disabled
geographile, to random

I put pictures of my gradually healing knuckle replacement surgery up on Instagram for all y'all weirdos who like that sort of thing.


https://www.instagram.com/p/CuqoY_cuHGi/?igshid=MTc4MmM1YmI2Ng==

morgandawn, to Wisconsin

"Medical horror stories from the first year since Roe v Wade has fallen:

• A patient had her water break at 16 weeks of pregnancy—too early for any to survive. She had to carry & deliver the dead painfully losing a liter of blood.

• A woman bled for more than 10 days after hospital staff refused to remove fetal tissue from her incomplete .

• In a women was sent home from the hospital after a miscarriage, still bleeding & without medical attention.

• Also in a woman was blocked from getting an in the state even after tests revealed that her fetus had kidney failure & heart defects. Continuing the pregnancy put her life at risk, so the woman traveled to Michigan for an abortion.

• In police charged a 17-year-old & her mother with multiple felonies & misdemeanors after the pair allegedly conspired to abort Celeste’s pregnancy on their own.

1/n

https://www.vice.com/en/article/xgwwn3/a-year-without-roe-here-are-the-stories-of-people-denied-abortions

morgandawn,

• A 24-year-old woman fled her home state of to get an in , only to find out that, upon her return, the abortion may not have worked. Before Roe’s overturning, the doctor could have immediately helped her but now, with abortion banned in WI the woman had to wait, bleeding and at risk of going into deadly .

• In , another woman was not able to get in-state abortions even though her was . She had to travel about 1,400 miles to get an abortion in .

• In two children had recently fled to & for abortions after getting pregnant through .

• Ohio, 2 women couldn’t get treatment for while pregnant.

• In , a 14-year-old who used methotrexate to control her had her prescription denied because, her doctor believes, can be used to end a .

2/n

ElizabethLeeCo, to random

I woke up Friday morning in slight agony from an RA flare so I've mostly been avoiding any typing 🫠

My thumbs are sort of working now but idk for how long. Which means you need to talk at me RIGHT NOW if you want to get it out of your system 😆

ElizabethLeeCo,

Update: still having my RA flare, although it seems to be moving around to different parts of my body now rather than Everything Everywhere All At Once (a fantastic movie but I don't want to be living it in my joints), so I'm cautiously optimistic that means maybe I'm on the upswing?

Anyway, if I don't reply right away or post much, that's why. Yay, bodies! 🎉🎊

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