Charismatic #MakeUpArtist Sapphire Shen is passionate about her career. The 31 yr old #HongKong resident describes her work as an art form that can enhance a person’s facial features to accentuate an outfit and look & boost their self-confidence.
For more than a decade, Shen has lived with #lupus, a chronic #autoimmune#disease that mostly affects women & afflicts an estimated 7,000 people in Hong Kong and 5 million worldwide.
“People who were infected with SARS-CoV-2 had a 25% higher risk of later being diagnosed with an autoimmune inflammatory rheumatic disease (AIRD) after infection than those who weren’t infected, according to a large cohort study that included more than 22 million participants in Japan and South Korea. They also had a 30% greater risk of developing AIRD, such as systemic lupus erythematosus or rheumatoid arthritis, compared with people who had influenza, the researchers reported in the Annals of Internal Medicine.” https://jamanetwork.com/journals/jama/fullarticle/2816699
They offer #free group sessions with a clinical #psychologist who is also #disabled. I attended two this year and it was way better than I had expected. I will attend at least one more this year.
Looking for story ideas on the subject of #rheumatology. New studies, clinical studies (not mouse or cell studies); new important guideline changes -- that sort of thing. Things that would be relevant to Canadian family docs. Could be nutrition, cross-specialty, pediatric or adult, new findings that are out-of-class, #epidemiology... lots of possibilities. Not so interested in 1 drug vs placebo studies -- something more interesting. #arthritis#scleraderma#OsteoArthritis#lupus and so on...
"After decades of frustration and failed attempts, scientists might finally be on the cusp of developing therapies to restore immune ‘tolerance’ in conditions such as diabetes, lupus and multiple sclerosis." #Diabetes#Lupus#MultipleSclerosis
'The MyLupus app is a patient-friendly, patient-focused decision-aid tool for people from all backgrounds with moderate to severe lupus. The app provides information about the disease, treatment options and how to live a healthy lifestyle with lupus. Information is further broken down by age, sex and race.'
With any luck, this will be one of the most important #medical science breakthroughs of the year.
“Engineered immune cells have given 15 people with once-debilitating #autoimmune disorders a new lease on life, free from fresh symptoms or treatments. The results raise hopes that the approach — called CAR-T-cell therapy — might one day be extended to a variety of other conditions fueled by rogue immune cells that produce antibodies against the body’s own tissues.”
A developer of treatments for cancer and autoimmune disorders from stem cells says FDA cleared its request to start a clinical trial of its therapy for systemic lupus erythematosus.
A lot of the #creakyChats community on Twitter seems to have dissipated since Twitter went kaplooey, but the #Discord channel is still there. It doesn't seem very active these days, but it's there, and we would love to see you if you have #arthritis or a #chronic illness. Come join us, we're nice people.
#piano practice this morning went well: working on a little #Chopin and a little #Bach as sort of opposite modes, and some progress seems to be happening.
feeling quite a bit better after a difficult #lupus#myocarditis weekend. The beach beckons but proofs go first. Hope everyone has a good day today, or at very least an interesting one!
I Love how the hse makes me send letters to receive a prescription four weeks later that half the time don’t get seen. What’s with the paper obsession? Why can’t you use email for that or some swift queue stuff? #lupus. I have #ADHD this letter sending is my personal hell