syntaxseed, to random
@syntaxseed@phpc.social avatar

One of my best friends has . So do I.

When she caught a year or two ago it kicked her out of remission & back into a bad flare up. I've been worried about that myself. 😓

Even if Covid or Long Covid symptoms don't get you, how it interacts with other chronic conditions is poorly known & very bad news.

byteseu, to science
@byteseu@pubeurope.com avatar

Inflammatory bowel disease (IBD) is associated with a slightly (19%) increased risk of heart failure up to 20 years after diagnosis https://www.byteseu.com/128718/

qurlyjoe,
@qurlyjoe@mstdn.social avatar

@byteseu
Seeing as how it’s been 56 years since I was diagnosed I guess I’m overdue. We also have a 10% increased chance of getting bowel cancer, and it goes up another percent or so every year. Maybe I’m just lucky. Good times.

RickiTarr, to random
@RickiTarr@beige.party avatar

Up at 7am, to take my husband to Urgent Care, to convince him he's not dying, and just has a mild cold.

Spoiler Alert: He's not dying, and he has a mild cold.

qurlyjoe,
@qurlyjoe@mstdn.social avatar

@chemoelectric @RickiTarr @patmadigan
On the other hand, when I was 18, freshman in college, I had excruciating gut pain for several days. Finally went to health service, the doc said it was just gastritis. Went back 2 days later with worse pain. Walked across campus to an ER. My appendix had perforated and leaked shit (literally) throughout my abdomen. Was in hospital for 3 weeks after surgery. That’s when they discovered I had . Moral: if you feel sick, see a doctor.

tomkindlon, to disabled
@tomkindlon@disabled.social avatar
PeteZ,
geographile, to Discord
@geographile@sfba.social avatar

A lot of the community on Twitter seems to have dissipated since Twitter went kaplooey, but the channel is still there. It doesn't seem very active these days, but it's there, and we would love to see you if you have or a illness. Come join us, we're nice people.

https://discord.com/invite/nuh9TTsj




airjoshb, to running
@airjoshb@mastodon.social avatar

Yesterday was amazing—I set a personal record that was 10 minutes faster than my previous half-marathon time, finishing in 2:05:57.

To celebrate, thanks to a stroke of bad scheduling, I had a Remicade infusion today. But, I got to show off my medal at Stanford!

RickiTarr, to random
@RickiTarr@beige.party avatar

What is your first experience with the Internet? How old were you? What did you look at?

qurlyjoe,
@qurlyjoe@mstdn.social avatar

@RickiTarr
2/ around 93 I was posting regularly on the use.net forum. I'd found a book on the internet and the new world wide web thing and was going thru various things like gopher and other protocols I don't recall the names of. And then I got to the chapter on WWW. I got a Mosaic browser on my Mac and the first thing I searched for was crowns disease. nothing but crickets. Somebody on use.net one day said, wouldn't it be cool if there was a web page for CD.

noondlyt, to random
@noondlyt@mastodon.social avatar

This is an amazing breakthrough for chronic illness and looks promising as as a potential cure and reversal for MS, Crohn's, and many many more.


https://scitechdaily.com/new-vaccine-can-completely-reverse-autoimmune-diseases-like-multiple-sclerosis-type-1-diabetes-and-crohns-disease/

qurlyjoe,
@qurlyjoe@mstdn.social avatar

@noondlyt
Well, the safety tests were promising. I’m a tad long in the tooth to be able to benefit from this if it ever becomes an actual therapy. But I’ve been fortunate to have been in remission from for about 25 years, but I know several crohnies my age who still have active disease. This would be a game changer for millions of people.

iMike, to random

So thankful for infusions because I'd be in a very bad way and probably wouldn't still have my intestines without them. But damn does it kick my ass sometimes. I hope I'm feeling better enough to go to 's Pride parade tomorrow.

iMike, to random

Time for go go juice.

Nagaram, to random
@Nagaram@hachyderm.io avatar

Infusion day homies!

I'm good btw, I've been in remission for years now.

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