A cross-sectional study demonstrated significant impairments in attention, memory, and higher cognitive functions among a cohort of patients with #fibromyalgia and #RheumatoidArthritis (RA)
I’m taking an Instagram break until after the holidays. You bastards are stuck with me though.
I’m having pain issues and need to self care. (I’ll be seeing my rheumy on the 21st, I can guarantee a switch in meds). I’m also needing to get more support in my life, both emotional and kindness, and possibly house help. But the latter is tricky in this pandemic.
A lot of the #creakyChats community on Twitter seems to have dissipated since Twitter went kaplooey, but the #Discord channel is still there. It doesn't seem very active these days, but it's there, and we would love to see you if you have #arthritis or a #chronic illness. Come join us, we're nice people.
There is a second research study showing possible autoimmune curative treatment that avoids wide spread immuno suppression in patients.
The previous one was regarding a "reverse vaccine". Are there any rheumatologists or researchers on here that can explain these findings in layperson terms?
I'm not the best at #introduction (s) but here goes nothin :002blush:
hoi, I'm mana, also known as momo. I'm an FC leader in #ffxiv and I play on Primal DC. I'm shy, but one of those people who won't shut up once you get to know me. I have a tendency to be introspective/keep to myself when I'm really depressed. I have #cptsd and am #neurodivergent. Also, I'm disabled from #rheumatoidarthritis and #ehlersdanlossyndrome and #fibromyalgia. Most days are good days, but the bad ones are pretty bad :blobcat_notlikethiscry:
I like modding/coding games so I've been learning #blender and #json to facilitate that. idk what else to say butt hi everyone, thanks for reading this if you did! let's be friends?:sbahri_question:
"Medical horror stories from the first year since Roe v Wade has fallen:
• A #Louisiana patient had her water break at 16 weeks of pregnancy—too early for any #pregnancy to survive. She had to carry & deliver the dead #fetus painfully losing a liter of blood.
• A #Wisconsin woman bled for more than 10 days after hospital staff refused to remove fetal tissue from her incomplete #miscarriage.
• In #Ohio a women was sent home from the hospital after a miscarriage, still bleeding & without medical attention.
• Also in #Ohio a woman was blocked from getting an #abortion in the state even after tests revealed that her fetus had kidney failure & heart defects. Continuing the pregnancy put her life at risk, so the woman traveled to Michigan for an abortion.
• In #Nebraska police charged a 17-year-old & her mother with multiple felonies & misdemeanors after the pair allegedly conspired to abort Celeste’s pregnancy on their own.
• A 24-year-old woman fled her home state of #Wisconsin to get an #abortion in #Chicago, only to find out that, upon her return, the abortion may not have worked. Before Roe’s overturning, the doctor could have immediately helped her but now, with abortion banned in WI the woman had to wait, bleeding and at risk of going into deadly #sepsis.
• In #Louisiana, another woman was not able to get in-state abortions even though her #fetus was #nonviable. She had to travel about 1,400 miles to get an abortion in #NewYork.
• In #Ohio two children had recently fled to #Michigan & #Indiana for abortions after getting pregnant through #rape.
• Ohio, 2 women couldn’t get treatment for #cancer while pregnant.
Update: still having my RA flare, although it seems to be moving around to different parts of my body now rather than Everything Everywhere All At Once (a fantastic movie but I don't want to be living it in my joints), so I'm cautiously optimistic that means maybe I'm on the upswing?
Anyway, if I don't reply right away or post much, that's why. Yay, bodies! 🎉🎊
The last week has been a literal pain thanks to the weather and #RheumatoidArthritis so I've been spending a lot of time playing #Wartales which has been an entertaining diversion.
It's interesting to me that even your little pack pony gets stats and abilities. You can eventually turn them into a warpony! Animals like wolves and bears are also capturable to put in your party if you have some Rope.
Having another flare up. Any #rheumatoidarthritis folks on here? I may have to get on a second drug other than the methotrexate. Naproxen takes care of it but don’t want to take that every day. I feel like my body has let me down. Again. This all started during the rains and then after eating sugar. Gave up the latter.😓
"Living in this time of “wellness” can also be challenging for those of us living with a chronic illness. This culture places a heavy focus on personal responsibility that can feel toxic when it is used to shame or blame a person for their chronic illness. How badly do you want to get better? is the message that is commonly used to sell diets, supplements, coaching, etc. I embrace all modalities of treatment for my RA, including holistic treatments, but I have found that I am the most at peace when I am seeking the acceptance stage of grief. When I accept that I am living with a chronic disease and try to make the best of the situation, rather than seeking ways to “heal” or “cure” my incurable disease. "
Going to allow myself a moment to whine. Recently diagnosed with #rheumatoidarthritis and while I wait to get into a rheumatologist so I can hopefully try to get on something control this, it is so frustrating to be in a lot of pain and people just not understanding it. Yeah, my hands don’t look all twisted. Yeah, I don’t look as bad as that person with OA and a trigger finger. But ya know what, I’m exhausted, I feel sick, and I’m in pain, but I look good. Stop comparing me to others.
So I took a shower tonight. I know that doesn't sound very exciting but when you have a #ChronicIllness that hasn't responded to treatments, it can feel like winning a jackpot sometimes.
#RheumatoidArthritis is an #autoimmune disease where the immune system attacks your body rather than viruses/infections (it's why we're considered immunocompromised). So it causes a ton of fatigue, chronic pain & brain fog.
Gotta take those wins where we can so, YAY SHOWER 🎊🎉
This is your periodic reminder that ambulatory wheelchair users exist. Many folks think wheelchairs are only for those who can't walk at all, or folks who can only take a couple steps.
Wheelchairs and electric scooters are used due to pain, weakness, balance issues, orthostatic intolerance, etc.
@ahimsa_pdx And if I am traveling, and need to cover a long distance at say, an airport, I use a chair sometimes if I’m afraid i will run out of juice on the other side. I’m sure there are lots of folks who do. Also, malls, I sometimes need one. It’s a balancing act for me, because I suffer from fatigue, pain and nausea. And sometimes being pushed in a chair, which helps my fatigue and pain, may make nausea worse for me. #spoonie#InvisibleDisabilities#rheumatoidarthritis