constantorbit, to random
@constantorbit@hachyderm.io avatar

Remember how I was worried about my partner falling? Well here we are at the ER. @caregivers

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

One more reason -- and an extremely important one at that -- NOT to change the clocks! It's so hard on people with , especially those who experience , and their . November is and . Let's do better by this community -- 6.7 million and counting -- that already has so many challenges.

https://www.agingcare.com/articles/daylight-saving-time-can-trigger-sundowning-212605.htm


msquebanh, to Cat
@msquebanh@mastodon.sdf.org avatar

Asher is back in his regular position. He assigned himself daily job of my ❤ If he doesn't see Dad on couch or in kitchen, Asher runs to bedroom to check. My Dad really loves having a security cat guardian 🥰

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

Remembering the who blocked 's plan to help . "Families & other caregivers take on an array of tasks, scheduling appts & feeding & caring for people w/'s or . The report said 11.5 million relatives & caregivers provided more than 18 million hours of unpaid care last year. That amounted to a full-time job for caregivers who spent an avg. of nearly 31 hours a week caring for a person w/Alzheimer's or dementia."

https://www.yahoo.com/news/6-9-million-americans-alzheimers-091040764.html

CindyWeinstein,
@CindyWeinstein@zirk.us avatar

@cobalt. Thank goodness #Biden hasn't given up. As you point out, though, the need is tremendous, and not supporting #caregivers is, again as you point out, not only inhumane but irrational.

https://finance.yahoo.com/news/congress-passes-bills-making-major-141500780.html

cobalt, to caregivers
@cobalt@awscommunity.social avatar

Hours and days I’ve wanted a better system to handle my son’s main daily meds, PRN and OTC meds and all the pill keepers and main accessory health products. Finally I found heavy clear acrylic drawers in cases of two. Literally halved the space it all took on the counter!

Repurposed 3 plastic bins and the ammo box we’d used for years. It’s a small thing but many moments of pleasure to have in otherwise serious days.
@caregivers

CindyWeinstein, to music
@CindyWeinstein@zirk.us avatar

Lovely story about the healing powers of in people with (and their ). Shout-out to .JoshuaGrill, .

https://mind.uci.edu/the-amazing-grace-of-music-to-alleviate-memory-loss/


Elleaster, to random
@Elleaster@ohai.social avatar

My mom took a fall and I've been with her and Dad in the hospital for the past 2 days. The emergency room was so full, they put patients in the hallway. Stretchers with sick people everywhere.

We got the boot after a Careflight came in, and enjoyed being on the corner in a busy hallway between 2 main entrances, one being the ambulance entry. So relax.

She's finally in a very nice room and recouperating. I'm supposed to be working, but called in sick again. I just can't.

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

I wrote this column for , whose work with Much Love, Lili is meant to help and people dealing with (and more). It talks about what I wish I knew, what I wish we had done when my father was sick with -onset 's. I hope you find it helpful .

https://muchlovelili.com/2023/12/15/finding-the-right-words/

TexasObserver, to disability
@TexasObserver@texasobserver.social avatar

Previously: Disabled Texans struggle to get the care they need outside of state institutions because of forced low pay rates for , which are among the worst in the nation.
https://www.texasobserver.org/community-based-caregiver-wages-2023/

joseph11lim, to Health
@joseph11lim@mastodon.social avatar


Forum: Treat as patients too to better supervise their mental
"When my late mother was initially suspected of having , I didn't know how the following months as caregiver wld affect my well-being. It became tougher by the day as I had to cope w my mother’s mood swings alongside her failing health .. none of the medical professionals asked if I was coping all right. Caregivers, feeling guilty or helpless, can become depressed"
https://www.straitstimes.com/opinion/forum/forum-treat-caregivers-as-patients-too-to-better-supervise-their-mental-health

Ruthie, to random
@Ruthie@mstdn.social avatar

Watch "Rosie's Lullaby (Norah Jones) Lyrics" on YouTube https://youtu.be/52tMWvmmQL4?si=nN7DUe-GbvlXVRT0

Goodnight

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

The monthly support group for partner caregivers is tomorrow

Sunday, September 3rd
12 pm PT / 3 pm ET / 8 pm BST

Caregivers who are spouses, partners, or significant others of people with ME/CFS, Long Covid, and associated conditions are invited to join.

https://www.meaction.net/event/me-partner-caregivers-support-group/2023-09-03/

br00t4c, to Podcast
@br00t4c@mastodon.social avatar
br00t4c, to random
@br00t4c@mastodon.social avatar
br00t4c, to random
@br00t4c@mastodon.social avatar
br00t4c, to random
@br00t4c@mastodon.social avatar

67 per cent of unpaid caregivers say they reached their breaking point but must keep going: study

https://nowtoronto.com/news/67-per-cent-of-unpaid-caregivers-say-they-reached-their-breaking-point-but-must-keep-going-study/

br00t4c, to random
@br00t4c@mastodon.social avatar
br00t4c, to random
@br00t4c@mastodon.social avatar
CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

"Imagine a future with home care and elder care so seniors and people living with disabilities can stay in their homes and family caregivers get paid what they deserve!" From #Biden's #SOTU

So glad he is going back to and ready to fight again for this part of the #InflationReductionAct -- support for #caregivers -- that unfortunately (and cruelly) didn't pass.

br00t4c, to DadBin
@br00t4c@mastodon.social avatar

Women and Caregivers Face Too Many Barriers Running for Office--Here's How the 'Help America Run' Act Can Help

#caregivers #children

https://msmagazine.com/2024/04/04/women-politics-parent-mother-childcare-costs-run-for-office-congress/

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

It is an honor to participate in the #Kensington #RedwoodCity Open House for #Caregivers. The event will take place on May 2, and if you are in the neighborhood, please consider coming. My #memoir -- Finding the Right Words -- which I wrote with #UCSF #neurologist Dr. Bruce Miller, will be the departure point for the discussion, which will lay the groundwork for a supportive conversation about #caregiving, #grief, #love, and #dementia.

https://kensingtonplaceredwoodcity.com/events/open-house-for-caregivers-spring-book-club-with-author-cindy-weinstein/

msquebanh, to Canada
@msquebanh@mastodon.sdf.org avatar

In 2019, a pair of launched , the Province’s first-of-its-kind program with the goal of promoting early between and their little ones. Fast forward five years, the pair are set to bring their program to families across .

“We wanted to create something that was just as engaging and fun for the grown-up as it is for the baby,” explained Fran Hiebert, a co-owner of Lullaland.

https://winnipeg.citynews.ca/2024/04/24/winnipeg-moms-expanding-baby-sensory-program-across-canada/amp/

br00t4c, to random
@br00t4c@mastodon.social avatar
br00t4c, to Futurology
@br00t4c@mastodon.social avatar
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