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halcionandon, to chronicillness
@halcionandon@disabled.social avatar

This is me:
https://t.co/f1vB5pXoK6

There are help links in the article but to summarise:

My crowdfund: https://www.buymeacoffee.com/halcionandon

Also:
People with Australian bank accounts can use https://www.beem.com.au to pay @halcionandon. Fee free & anonymous.

People helping me is most important. I need a safe place & an the most. Please consider.🙏

Please & thanks for reading. Help not expected but appreciated.💜


@mutualaid
@mecfs
@chronicillness

Nonbiner,
@Nonbiner@todon.nl avatar

@halcionandon @mutualaid @mecfs @chronicillness @disability

Unbelievable that shelters aren't equipped for the disabled, when they are more at risk from abuse.

Have shared again, hope you get out of this situation.

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

This short video (about a minute) from asks people with ME/CFS, "How long did it take you go get diagnosed?"

(ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome)

https://www.youtube.com/watch?v=tnzz2QwwaMs

I'm "lucky" because it only took me 5 years to get a diagnosis vs. an average of over 8 years (from the 417 responses they got).

What's your answer? 🤔

1/2

@mecfs

Nonbiner,
@Nonbiner@todon.nl avatar

@ahimsa_pdx @mecfs 42 years. A naturopath dxed me 21 years in, but that was only taken seriously by a regular doctor 21 years later.

LehtoriTuomo, to actuallyautistic
@LehtoriTuomo@mementomori.social avatar

I've been trying to understand what it means that an autistic brain is bombarded with so much information. We spent some time at our summer cottage and I think I got some insight in this.

Instead of seeing the lake in front of my eyes, everywhere I looked I saw a detail. Its size would vary but it would still be a detail. A swan there, its partner there, no leaves on that tree yet, what a cool pattern on the small waves, what does it look like when I move my eyes this way, or that way, a car on the opposite shore, the shadow of the tree, I wonder what seagulls those are etc. A new detail with every single glance.

At the same time my attention tried to keep track of the dog and listened to birds singing and bumblebees flying around.

Now I wonder what it feels like just to see the lake.

@actuallyautistic

Nonbiner,
@Nonbiner@todon.nl avatar

@LehtoriTuomo @actuallyautistic

Interesting. I do not see all those details, bc my brain deals with too much sound, wind, feelings, emotions. I have trouble seeing details others point out. What seagull?

My experience is more like a strong feeling while being there and seeing water in front of me.

helma, to random Dutch
@helma@mastodon.social avatar

deleted_by_author

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  • Nonbiner,
    @Nonbiner@todon.nl avatar

    @chasalin @helma Het gaat niet om bankieren, alleen om betalen met je smartphone. Dat kan ook makkelijk met je pasje.

    RigsbySiv, to knitting German

    Habt ihr Erfahrungen mit addi-Stricknadeln?
    Taugen die was?

    @handarbeiten @stricken @knitting

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @RigsbySiv @handarbeiten @stricken @knitting

    Ich habe die duenne rundstricknadeln (zB 1,25) und die sind OK.

    Grumpfff, (edited ) to animals French
    @Grumpfff@oc.todon.fr avatar
    Nonbiner,
    @Nonbiner@todon.nl avatar

    @Grumpfff Combien alors? 5?

    ashleyspencer, to random
    @ashleyspencer@autistics.life avatar

    It seems like now that it’s autism awareness month, the autism organizations asking me to give them free stim toys as “donations” in exhange for exposure is getting more frequent.

    We are only on the 6th of the month and already 3 have messaged me asking for free stim toys. I’m sure there will be more this month.

    eye roll

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @ashleyspencer LIke the bars where musicians can come play for free for "exposure". What kind of stim toys do you make? Nm, found your shop!

    xs4me2, to random
    @xs4me2@mastodon.social avatar

    Kabinet noemt geen namen in zaak rond Russische desinformatie

    https://nos.nl/artikel/2515099-kabinet-noemt-geen-namen-in-zaak-rond-russische-desinformatie

    Dat gaat dus niet werken...

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @xs4me2 Ik snap niet hoe dat kan. Als zij het weten, moeten die mensen toch de Kamer uit? En dan weten wij het ook?

    dansup, (edited ) to animals
    @dansup@mastodon.social avatar

    My partner sent me this pic of our cat as a baby

    🥹

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @dansup May I suggest the following alt txt: very young tuxedo kitten sitting on bed with white sheet, face towards the camera and white front paws visible.

    LeftistLawyer, to disability

    Houston, we have a …
    Is there a doctor in the house?

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @LeftistLawyer Women get Long Covid more often, so I am not surprised to see the women's line above the men's line from 2020 on, while before that, they crossed eachother more often.

    seawall, to random
    @seawall@mastodon.nz avatar

    The kid is now saying the new carer can't come back tomorrow, even though he agreed yesterday. Breakfast was just a fruitless frustrating argument.

    I'm back in bed, weeping, just completely overwhelmed.

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @seawall What does he do when the thing cannot be avoided despite him saying it can't happen?

    Can he understand how lonely, tired and on edge an adult can be? This seems impossible for allistic children as well.

    @simon_brooke

    SirTapTap, to animals
    @SirTapTap@mastodon.social avatar
    Nonbiner,
    @Nonbiner@todon.nl avatar

    @SirTapTap Tortie with orange tabby tail? How special!

    callunavulgaris, to actuallyautistic
    @callunavulgaris@mastodon.scot avatar

    @actuallyautistic Can we talk self-diagnosis? The penny dropped for me last year. I'm only mildly autistic but that's enough to have made me wonder my whole life where I go wrong with social things, why others seem to know the rules and I don't, with predictable consequences. Because I am self-diagnosed I feel I can't be open with anyone beyond immediate family, esp work, as I don't have a doctor's note to back it up and I'll be accused of jumping on a bandwagon. Familiar?

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @pewterbaw @jkcheney @callunavulgaris @actuallyautistic That and the ability to mask can make autism seem mild. But masking can be exhausting and alienating for the autistic.

    CuriousMagpie, to disability
    @CuriousMagpie@mastodon.social avatar
    Nonbiner,
    @Nonbiner@todon.nl avatar

    @Tarrenvane @CuriousMagpie @actuallyautistic Yes, ramen, rice, pasta.

    MsHearthWitch, to FiberArts
    @MsHearthWitch@wandering.shop avatar

    Alright, friends with an eye for design... need your advice!

    I'm making a handbag. Outside is very classy. Harris Tweed, leather, brass hardware.

    I can't decide what lining to use.

    Originally I got the dark green fern fabric for the lining.

    Recently I got the lighter green with bees for another project but could repurpose (I bought lots).

    I think I like that it matches the clasp. But... I think the darker fabric is more classy. And then, the lighter is more fun.

    Nonbiner,
    @Nonbiner@todon.nl avatar

    @MsHearthWitch I think colourwise the clasp matches the fern fabric better. With the tweed, it is a nice combination.

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