Curtis's humiliation came from the fact that at his graduation, the ramp to get onto the stage was too steep & #inaccessible for #WheelchairUsers.
Curtis has #EhlersDanlos syndrome, a connective tissue disorder that causes joint dislocations & severe pain, which is why he uses a #wheelchair & has a service animal.
This could be the connection between Ehlers-Danlos and neurodivergence. (People with EDS, like me, are 7 times as likely to be autistic and 5 times as likely to have ADHD -- also like me.)
Fun times with EDS: I wore some cute sugar skull costume stickers on my face for Halloween, which ripped some of my stupidly thin skin off and now I have red crunchy areas around my eyes where it's healing.
#EDS question: Does anyone have experience with arm compression sleeves? Apart from my finger joints, my elbows tend to be the most painful. Also interested in shoulder support. #EhlersDanlos
Speaking of Bi things... I'm currently using an extra dining chair in my office, which is killing my back and makes my legs sad. I think I'm finally going to treat myself to this gloriously queer office chair.
7 weeks on Duloxetine. Massive improvements to mood, energy, and pain! I feel like I have my life back again. POTS flare-ups aren't any more common but are more severe when I do have them, with added vertigo. (yay)
HOWEVER sleep isn't great. I don't feel rested in the morning. I guess it's Restless Leg Syndrome, they move all night. I've actually worn a hole in our sheet! Hoping this improves.
A question for people with Ehlers-Danlos. How the hell do you swim? I've never been much of a swimmer at all but I'm making an effort to improve. I am desperately trying to keep my legs straight and hips moving, but my lower body has its own agenda. Any tips would be greatly appreciated!
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I will not CW for cursing, food, politics, or eye contact. If you need CWs for these things, it's okay not to follow me! I just do all of these things a lot, so you wouldn't see most of my posts anyway.
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@adamjcook I guess there are a few things I had saved there that I wish I could still access. In particular a conversation with the researcher who identified an association between #EhlersDanlos, #Autism, and #ADHD. Loved that direct connection to researchers. But we'll rebuild that here soon enough.