jane_eyrie, to nature
@jane_eyrie@mastodon.scot avatar

PSA for people who love getting out into

Did you know there's an instagram account called "Go Outside For Me" where you can share videos with people who can't often go out due to disability?

The videos are just simple, first-person, without talking & the audience is folks who have and other mobility-limiting conditions.

I have no affiliations with it — I just think it's a great idea.

https://www.instagram.com/go_outside_for_me/

Rhabarberbaer, to random German
@Rhabarberbaer@digitalcourage.social avatar

Als Mahnung für den digitalen Nachwuchs genauso geeignet wie als Weihnachtsgeschenk für Liebhaber*innen:
ich versteigere einen


Original Lizenzvertrag für -DOS 6
("Enthält DoubleSpace" - whoah 😲).


Ende der Versteigerung: 6.12.2023, 24 Uhr ☝

Die erzielte Summe geht an meine Instanz @digitalcourage , die hiermit auch gebeten wird, den Vorgang zu überwachen und den Empfang der Summe zu bestätigen 😁

Gebote bitte öffentlich unter diesem Tröt 🙏

Und jetzt: bitte boosten und bieten, was das Zeug hält! 😎

swisslet, to MultipleSclerosis
@swisslet@mas.to avatar

Very spasm-y legs when I went to bed last night, but an ibuprofen and a couple of drops of cannabis oil and I slept right through. Surprising, but most welcome. It bugs me that I can’t get access to this legally without huge expense. It’s a game changer.

PollyWaugh, to random

So, ended up in the hospital early Monday morning:

I had Covid (again, despite vax & booster) in February, but it kept seeming to recur every two weeks with a vengeance.

Couldn’t seem to draw in any air despite large doses of antihistamines (which had worked up til then).

So off to the ER & then admission to hospital.
(1 of 3)

, , , ,

DukeDuke, to linux
@DukeDuke@mastodon.social avatar

Here we go! Installing Linux Mint (LMDE-6) for the first time. This is not a 'New Year's Resolution', it's a 'Microshaft can cram their latest steaming pile of OS Resolution'!

This is an old Win7 laptop that's 100% expendable to me, so I figure it's the perfect place to start.

Photo of an open laptop displaying the Linux Mint welcome screen. Below the screen is a green USB stick lying on its side. Above the screen is a blurry background of various objects.

sabrinadent, to random

I have to go to an thing at 7 but because I have I have to take a nap to make it to the MS thing.

You have to laugh 😂

scribblans, to random

Bugger.
Just a couple of hours physical work yesterday -- I run a couple of holiday cottages for their owners, so do all the changeover cleans as well as manage the bookings etc -- woken up (way later than usual) today in 15% minimal energy power-save mode.

Quiet recovery day then. Another changeover to do tomorrow, so need to be at least 30-40% for that.

brunus, to Help French
@brunus@mamot.fr avatar

Rhaaa Je dois (peut être) rejoindre une réunion MS Teams dans la matinée.
J'ai l'ID et le pssw de la réu... mais là pour le moment je ne peux pas check si ça va juste marcher avec ça... est ce que ça va me demander des credentials d'un compte perso ou juste de taper un pseudo pour rejoindre la réu ?
Faut un compte quelconque MS aussi genre mail ou autre ?
(je connecte depuis mon smartphone)

Merc d'avance ! Joie, félicité et bon karma !

#help #Teams #MS #Microsoft

alexkidman, (edited ) to running
@alexkidman@aus.social avatar

New Video: 85km down (yes, really!) in my #May50K run to raise funds for vitally needed #MS research — but I need to up both my pace and the pace of donations! Please watch, share, like and above all, DONATE!

#Running #Australia #Charity
https://www.youtube.com/watch?v=13Ra26EO6rU

https://www.themay50k.org/fundraisers/alexkidman

alexkidman, to MultipleSclerosis
@alexkidman@aus.social avatar

I am precisely $267 (just 6.7%) short of my donation goal that I've been chasing all month long for ... and the clock is ticking. If anyone's willing to donate, NOW is the time!


https://www.themay50k.org/fundraisers/alexkidman/the-may-50k-2024

thefyuuri, to KindActions

I really hate to do a "self promotion," so to speak, but it's for a good cause. I'm sad to report that our beloved cat Felix has . @polarisu is going to be selling some things soon on Mercari (https://www.mercari.com/u/647927272/), feel free to browse her MyFigureCollection to see what's incoming: https://myfigurecollection.net/profile/mariijane. A is incoming as well, which I'll be sharing once it's up.

EDIT- Here is the GoFundMe link:
https://www.gofundme.com/f/xmpecj-please-help-save-my-best-friend?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cf+share-flow-1

The main reason for this is that there is a sense of urgency since the sooner the is done, the better. We just don't have the $5,000-$6,000 it's going to cost upfront since my wife has medical conditions we need to take care of as well ( , , and ).

Felix is our family and one of our best friends to both my wife and I. Especially for her, he has been a wonderful emotional support through all of the medical issues she's had to endure for years. If we start this treatment ASAP, he will have many years left with us. Even if you can not contribute financially, just a boost is greatly appreciated. Thank you all!

freemo, to random
@freemo@qoto.org avatar

I suspect i might have Multiple Schlorosis in its very early stages. Among other minor symptoms the most telling is my tendency to get muscle twitches that are rhythemic in very odd muscle groups. When this happens it sticks to a particular muscle group in a reptative way for weeks or months.

Here is a video of my chin twitching as an example.

video/mp4

aaron, to MultipleSclerosis

No new lesions in my brain for two years running! WOOHOO! Fuck yeah! 🤘🧠😊

kubikpixel, (edited ) to microsoft German
@kubikpixel@chaos.social avatar

Es werden sicher viele #Firmen dies gerne zulassen, da sie mehr Kontrolle erhoffen. Das sie selber diesbezüglich ausgehorcht werden, wird wahrscheinlich kaum wahrgenommen oder per "nichts zu verbergen" sich fein geredet.

»#MS Teams – #Microsoft will künftig wissen, wer wo und wann arbeitet:
Auf der Build zeigte Microsoft viele neue Funktionen für #Teams – mit erfrischend wenig #KI-Experimenten. Stattdessen sind Detail-Features angesagt.«

🤨 https://www.heise.de/news/Code-im-Chat-eigene-Emojis-Places-App-kommt-Microsofts-neue-Teams-Features-9727008.html

#MSTeam #office #msteams

jo, (edited ) to disability

Please help @JadziaBenntley afford to eat regularly and healthily by donating to her PayPal.

I know what it's like to live with , to not have the energy to regularly cook, to often live on takeaway (takeout), and to do it on a below-poverty-line pension. How to do it with dietary restrictions, I have no idea.

I don't know how to do it with either, and it's scary to think about that given I fit the MS prodrome and have probably increased my risk of having an demyelination event in the future coupled with a greater likelihood of disabling symptoms.

Please help our sister out with some $$ to buy that she can enjoy eating.

RE: https://kolektiva.social/users/JadziaBenntley/statuses/110846176391563740

pseudonymsupreme, to MultipleSclerosis
@pseudonymsupreme@pnw.zone avatar

Feeling pretty solid and human about 48 hours after my #rituxan infusion for #MultipleSclerosis. Here’s to hoping I stay relapse free for another six months! #ChronicIllness #MS #PwMS #rituximab #MSSucks

IHI, to ai
@IHI@social.network.europa.eu avatar

🆕IHI project: CLAIMS! The goal: to develop an platform that will give clinicians a holistic overview of patients with , leading to faster diagnosis & the most relevant treatment course. 👉Find out more: https://europa.eu/!Wb4hJB

DenisCOVIDinfoguy, to MultipleSclerosis
@DenisCOVIDinfoguy@aus.social avatar

MS patients face much greater risk of hospitalization, death from COVID-19, despite high rates of vaccination.

"These findings indicate that vaccination alone may not adequately protect individuals with MS from severe COVID-19 outcomes, and underscore the urgent need for additional preventive measures against COVID-19 in this vulnerable population, say researchers."

@auscovid19

Source: https://medicalxpress.com/news/2024-03-ms-patients-greater-hospitalization-death.html

The new analyses are part of the INFORM (INvestigation oF COVID-19 Risk among iMmunocompromised populations) study, which analyzed data of nearly 12 million people aged 12 years and older in England to assess COVID-19's impact, risk, and health care resource use (HCRU) among immunocompromised populations compared with the general population during the omicron wave. Previous results from INFORM found that immunocompromised individuals face disproportionate burdens from COVID-19, with substantially higher risk of developing severe COVID-19 outcomes than the general population. However, the specific burden faced by individuals with MS, which was not categorized as immunocompromised, was not assessed previously. To find out more, researchers compared the risk of COVID-19 hospitalization and death in vaccinated individuals with MS and the general population in England from 1st January to 31st December, 2022. They analyzed routinely collected, national primary and secondary care electronic data from a random sample of 25% of all individuals aged 12 years or older in England registered with the National Health Service (NHS). Subgroup analysis was conducted among individuals who had been vaccinated with three or more doses of COVID-19 vaccines by Jan 1, 2022. Of 11,990,730 individuals included in the study, 16,350 (0.1%) individuals with MS were identified.).
More than half (6,060,635) of those in the general population and more than three-quarters (12,905) of patients with MS had been fully vaccinated (received at least three doses of a COVID-19 vaccine by Jan 1, 2022). During the study, a total of 20,910 COVID-19 hospitalizations and 4,810 COVID-19 deaths were recorded in the general population, corresponding to crude overall incidence rates of 0.24 and 0.06 per 100 person-years, respectively. "We hope that these findings raise awareness that the threat of COVID-19 is still very real for many, and that vaccine boosters are inadequate to protect this clinically vulnerable group", says Professor Quint. "With new variants constantly emerging, people living with MS should be considered an important high-risk group for COVID-19 hospitalization and death for which additional preventive measures and multi-layered public health protections are urgently needed." Despite the important findings, the authors point to several limitations, including that they can't rule out the possibility that other unmeasured factors such as underlying illness and level of MS disability might have influenced the results. They also note that they did not examine the effect of use of disease-modifying therapies, time since last vaccination, type of vaccination, and prior infection.

emmadragon, to random

1/
Marking 16 years of D-Day, Diagnosis Day.

The absolute fucking tragedy of being young & told you’ve an incurable, progressive brain disease; it is never not awful.

During the years of being newly diagnosed, connecting with others kept me going.

They saw me, shared my pain while we comforted one another as we all raged in a delightedly joyful way at the vagaries of life.

Life & living have never been felt so deeply than with those who know their mortality.


alexkidman, to running
@alexkidman@aus.social avatar

Hit the trails hard today, clocking in an extra 10km running as I try to raise funds for vitally needed MS research. Donate today to spur me to run even further, and read today's blog update!


https://www.themay50k.org/fundraisers/alexkidman/the-may-50k-2024

alexkidman, to running
@alexkidman@aus.social avatar

Everybody's working for the weekend... or in my case, running on the weekend, as I clock up another 5km in my quest to run 100km to raise funds for MS research! Read the latest blog post and DONATE TODAY!

https://www.themay50k.org/fundraisers/alexkidman/the-may-50k-2024

kubikpixel, to rust
@kubikpixel@chaos.social avatar

»Parser library using nom for VB6 (projects, forms, designers, etc).
VB6Parse aims to be a complete, end-to-end parser library for VB6. Including.«

It was a very, very, very long time ago when I had to extend and correct VisualBasic code, now I can also do it via Rust. Admittedly, the project is very young and I don't want to have to use it, but I understand why it exists.

🦀 https://github.com/scriptandcompile/vb6parse


#rust #rustlang #vb #vb6 #visualbasic #code #basic #msoffice #ms #vb6parse

pseudonymsupreme, to random

I’m so fucking angry. For the first time since diagnosis I have new lesions. Nearly eight years with nothing new on my and suddenly multiple new lesions. I’ve had a day to sit with it so I no longer feel like I’ve been punched in the gut. But even still. I’m so disappointed. I’d almost tricked myself into believing it was going away. Fuck you, MS.

deantoir_ceardaiochta, to mecfs

I cannot express how huge this is. Being able to get a diagnosis via blood test is so HUGE. For those lucky enough to have never experienced it, many of the conditions along with #MECFS that they hope this blood test could diagnose with over 90% certainty normally take YEARS to be diagnosed. #LongCovid #fibromyalgia #ms #LymeDisease
These are all life changing illnesses. The quicker you are diagnosed the quicker you can be treated.

https://www.sciencealert.com/new-blood-test-for-chronic-fatigue-syndrome-has-91-accuracy

RonRevog, to random German
@RonRevog@social.tchncs.de avatar

Bei der , ist es bei Auftritt eines Schubes wichtig, schnell, am besten unverzüglich mit Kortison zu behandeln, um bleibende Schäden zu verhindern.
Wir sitzen gerade die fünfte Stunde in der Wartezone der Notaufnahme und es waren gerade mal fünf Fälle mit uns hier.




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