grrrr_shark, to ADHD
@grrrr_shark@supervolcano.angryshark.eu avatar

Question for folks:

Do you find that as you get more burned out or overwhelmed, it's harder to keep explanations succinct and to-the-point?

I am finding my writing becoming really... suboptimal as I am under increasingly awful amounts of stress, and I have to edit a lot more than I once had to just to make myself understood.

rune, to ADHD

is there an established phrase or term for the phenomenon where, if you do something when low on spoons/energy, it actually takes MORE spoons and energy than if you rested first?

like, one very able-bodied neurotypical strategy is "clean-as-you-go," for example. the idea is that if you put things away immediately after using them, there will be much less cleaning to do later on.

but for my neurodivergent and disabled brain/body, i can do twice as many chores for half the energy on a good day than i can "in the moment." there is a very high penalty for forcibly directing my ADHD attention to a task it won't naturally go to, or for pushing my tired body to rinse and wipe a bowl and put it in the dishwasher as opposed to putting it in the sink to wash another day.

i don't like having a sink full of dirty dishes, but it is completely true for me that it is in fact MUCH easier to do an entire sink full of dishes once a week than to wash each dish one at a time as i use it—especially given the implied effort of having chosen and prepared a meal just before.

but is there a shorthand phrase or term for this concept???

i don't think i'm referring to post-exertional malaise, which is a specific symptom of ME/CFS (and absolutely does adhere to this concept). burnout doesn't seem quite right, either. and it's not unique to illness or neurodivergence—ANYONE who doesn't get enough rest will ultimately be much less productive for much more effort.

BZBrainz, to writingcommunity
@BZBrainz@mastodonbooks.net avatar

@writingcommunity @bookstodon
I’m so disappointed in D2D’s (Draft 2 Digital) response to my request to upload a large print paperback. It’s very similar to Amazon’s.

hmm_cook, to random

A thought on social skills:

The advice to “fake it till you make it” works if you could succeed at a task but lack the confidence.

However, if you don't have the skills, it's a setup for failure and reinforces the idea that the problem is with you and not skill acquisition.

It can also be used by others as a way to get out of teaching you skills that they don't really know how to teach because they learned them intuitively.

autism101, to actuallyautistic
@autism101@mstdn.social avatar

Have you ever come up with an original way of doing something, only to be told it won’t work?

image: @lifeinanautismworld

@actuallyautistic

hollerpots, to random

Where are my "map the grocery store" peeps?

... No, YOUR handwriting is terrible.

autism101, to actuallyautistic
@autism101@mstdn.social avatar

Do you have multiple versions of the same kind of clothing that you wear over and over? I love my dark grey t-shirts.

image: @sensorystories_
https://www.nicolefilipponeauthor.com/my-links

@actuallyautistic

grrrr_shark, (edited ) to random
@grrrr_shark@supervolcano.angryshark.eu avatar

Folks, I am just super-tired.

I am trying, I really am, but I am never going to have the spoons to get all of this shit together.

A few months ago, after a lot of suspicion, I did talketo a psych who does autism evals, but there was a four-month waiting list and I have to get a doctor's referral AND they demand to talk to someone who has known me my whole life (I guess I could ask @QuishaQ if she'd be willing to Zoom in, but they are looking for even earlier than middle school and I'm 51 and don't talk to my parents!).

There are probably other routes here in CH, but even then, my family doc knows almost NOTHING about me. My weight doctor does - maybe she'll get me a referral, but man... still a fight, and if my problem is not having ANY spoons, how am I supposed to get this shit together, especially since I know waitlists in CH often just point to /dev/null?

grrrr_shark,
@grrrr_shark@supervolcano.angryshark.eu avatar

And the thing is, I am not even sure what help I get from that.

The facts that I know are that I cannot work full-time and take care of an teen full time alone as a single parent and keep our fucking house and life in order.

I am doing my best, and I usually push the chess pieces around into the least worst position, but the fact is, I've already burned out once. I'm burning out again. At some point, my poor amygdala is going to say "fuck you" and explode.

It's not having a disability that bothers me. It's not possibly having multiple disabilities that bothers me. Like most folks with disabilities, it's not that I don't want to work.

But I cannot keep on like this.

Neuronormal parents with a family and village backing them struggle in this situation.

What about ND parents with no family and no village? The only answer the Swiss state (and probably many others) gives is to only handle things after they've burned down!

I don't want things to burn down. I want my daughter and I to thrive as independently as we can, but I think some of that is going to mean I have to admit to a certain level of disability on my part and fight for it, and Christ, I do NOT know how.

rune, to actuallyautistic

i suddenly realized that microblog social media is so intoxicating to me because it's bite-sized socialization that i can just. pop in and out of at my own pace.

i get to feel community without hitting social exhaustion so quickly. no extended, real-time conversations unless they're wanted. no (well, fewer) fast-moving chats i can't keep up with.

it's truly so nice and i'm so happy to be here :birb_heart:

@actuallyautistic

hmm_cook, to random

The 5 Most Overlooked (and Common) Autistic Stressors
<https://www.youtube.com/watch?v=FF2foW2RiGY#ActuallyAutistic >

orangegoldgreen, (edited ) to actuallyautistic

Idea: support group for people who want to get more active together but aren't Intense about it or want to run marathons and shit because our childhood traumas made us very conflict avoidant

@actuallyautistic

Ind3fatigable, to books

Reading Delivered from Distraction. A quote:

"... it seems to me that if anyone has a disorder, it is the people who plod along paying close attention to every little speck and crumb, every little detail and rule, every minor policy and procedure in every miniscule manual. I think these are the people who have a disorder. I call it Attention Surplus Disorder. They did exactly what they were told as children, told on others who did not, and now make a living doing what they're told, telling others what to do, and telling on those who don't."

What a quote!
@actuallyadhd

autism101, to actuallyautistic
@autism101@mstdn.social avatar

A comic that brilliantly illustrates the Double Empathy problem.

image: @tzippele
https://linktr.ee/tzipporahjohnston

@actuallyautistic

Page 2 Page 2, Frame 1: Text: The world is too loud, too intense, and it feels like you’re speaking a different language from everyone else. Page 2, Frame 2: ID: The cat from the first page is sleeping happily in a soft beanbag, and purring loudly. A greyhound dog sits next to her, frowning, and has a speech bubble saying: “Stop growling, it’s rude!”. Page 2, Frame 3: ID: The cat is crouched down on the ground, covering her ears, with her tail bushed up and thrashing from side to side. She has a pained expression on her face. Behind her, three dogs are jumping around after a frisbee, barking loudly. A little dachshund dog sits next to the cat, looking at her, and has a thought bubble that reads: “She must like it, her tail is wagging” Page 2, Frame 4: Text: The world tells you that you’re the problem, that you need to fit in. ID: The cat sits looking sad and defeated, head down and whiskers drooping. Three dogs surround her, with speech bubbles coming from their mouths: A dachshund with an angry expression asks: “What’s wrong with you?” A beagle dog with an angry expression says: “You just need to try harder to be like other dogs”. A greyhound with a worried expression says: “Maybe we should send her to canine therapy”
Page 3 Page 3, Frame 1: Text: But maybe you’re not just a rubbish version of a dog ID: The ginger and white cat sits curled up on the ground, looking miserable. Her ears and whiskers are drooping and she has a sad expression on her face. A smiling brown tabby cat comes up to her and says: “Psst… I know a place”. Page 3, Frame 2: Text: Maybe you’re actually a perfectly good cat ID: The ginger and white cat stands looking in amazement at a room full of other cats. There is a sign on the wall that says “Cat Club”. The room is designed for cats, with lots of things they enjoy – cardboard boxes, cat trees, cushions, high shelves, and cat toys. The cats are all enjoying the room quietly, on their own, except for two who are playing side by side. All the cats look content. The ginger and white cat has a thought bubble that reads: “Holy litter box, this is amazing”. Page 3, Frame 3: ID: The ginger and white cat addresses the viewer directly, with a cross expression on her face. Speech bubbles coming from her read: “Hold up. Why do I need to make all the effort? How come I always need to be more dog? Why couldn’t you try being more cat?”
image/png

BZBrainz, to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic
Glossy cover versus matte. I hate the feel of the matte and my spouse loves it. I’m not sure which is better for the majority of us. Matte is what’s up on Amazon for now, but the color saturation of the glossy one is so appealing.

https://books2read.com/audhd

Two copies of Late-Identified AuDHD laid side by side. One is cover is glossy (front side) and one is matte (back side).

Richard_Littler, to actuallyadhd
@Richard_Littler@mastodon.social avatar

I'm so my autie 'special interest' is affected by hyperfocusing on not getting things done in a very thorough way.
Case in point: This A.M. I was trying to focus on work. Instead, I got distracted by this film frame because it says FOCUS and I felt compelled to colour-correct and restore it.
@actuallyautistic
@actuallyadhd

Film frame affected by ageing red tint, but now corrected. Text: FOCUS

robotdiver, to random

Pondering whether it's a neurodiverse thing or long-term childhood poverty thing that finds me consistently going through all of my shoes and cleaning and polishing and repairing them each season. Either way it makes me feel calm and well taken care of. I know when I put my feet back in my boots next fall there will be new warm insoles waiting for me inside of them.

autism101, to actuallyautistic
@autism101@mstdn.social avatar

Did you go through a grief cycle after learning you were autistic?

image: /u/bitchtastic4

@actuallyautistic

crowbar, to random
hmm_cook, to random

It's a vicious cycle:

When you can't ask for help, but then can't get the help that would show you how to be able to ask for help.

hmm_cook, to random

A study on autistic burnout, interviewing adults. I found this a clear and accurate description.

https://buff.ly/3zURwSo#AutisticBurnout

StutteringLoudly, to actuallyadhd

Subscribe to Georgia Writes!

Her IG is @*georgiaholliday_ (no asterisk). She’s a writer who is &

I relate to her writing & her poetry so much!

It helps my and makes me feel less alone 🥺

https://georgiaholliday.substack.com/?r=1p55s1&utm_campaign=pub&utm_medium=web

@adhd @actuallyautistic @actuallyadhd

jo, to random

If you're on and the current avalanche of posts is giving you , here's some code to reduce the size in your timeline. You can also find a toggle in profile settings to turn of MFM animations. This is a sanity saver! 💜💜

RE: https://calckey.social/notes/9e6x4efasu

dreadfulsanity, to random
@dreadfulsanity@mstdn.games avatar

I once saw a great analogy about sensory issues that used some sort of silos or tanks for the different senses and how they overflow into the other once they are full. Can't find it again. Anyone know what I'm talking about and can point me in a direction?

dreadfulsanity, to random
@dreadfulsanity@mstdn.games avatar

Do you have more sensible days where your sensory issues are worse? I just had my sensory issue cup overflow by being thirsty. 🙈

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