poconnor

poconnor, 11 months ago to gardening

Loganberries are a thornless cross between blackberries & raspberries.
Phe- free, tasty, and more productive than all my strawberry plants!

#LivingWithPKU #Pku #pkulife #gardening #allotment

Harvest with a 2:1 ratio of loganberries to strawberries

poconnor, 7 months ago to random

Pick up a copy at ESPKU - 30% off today!

The lovely @nspku ladies at registration can help you out. Or I am roaming the conference in my dinosaur shirt and can take card payments.

#LivingWithPKU #espku

poconnor, 19 days ago to india

🇮🇳 Achievement unlocked. Just sold #LivingWithPKU in #India! 🥳 This book is now helping people in 13 countries.

Plus, if you are in the #UK, you can now buy direct via Shopify. This helps you with 10% off, and helps me with more support (££!)

Thanks all, looking forward to seeing some of you at the #NSPKUConference this weekend

#PKU #NSPKU2024 #RareDisease

poconnor, 24 days ago to uk

The #aurora seen from Hertfordshire, #UK at 23:30 10th May 2024

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soheb, 1 month ago to books

Excellent news, book gang!

@poconnor's new book - The Red Hat Stories - has reached nearly 60% funding in less than 24 hours!!

Let's keep the momentum going!

Go and give your pledge to an independent author, and feel good knowing you'll get a great book in the process!

https://www.kickstarter.com/projects/328522180/the-red-hat-stories

#books #book #bookstodon #shortStories #shortStory #TheRedHatStories #WroteThis #Writing #WritingCommunity #kickstarter #independent

poconnor, 1 month ago to 13thFloor

The second proof of #TheRedHatStories arrived just in time for #WorldBookDay!

This is my first #fiction work, an anthology of #shortstories set on #London transport. The #NewBook is looking great, nearly ready for the #Kickstarter backers.

Am especially proud of the dedication to my wonderful writing teacher.

There is still time to back the book. Go to Kickstarter .com and search "Red Hat Stories".

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poconnor, 1 month ago to random

A lovely #Friday afternoon, and I plan to enjoy #spring sunshine and #celebrate the success of my first #kickstarter.
Also, paid for the #NSPKU conference in May & look forward to seeing everyone.
Brief bitof light reading below if you’re interested, otherwise a few photos of to send you into the weekend with a smile
https://pigpen.page/kickstarting-the-red-hat-stories/

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poconnor, 1 month ago to photography

Cheeky Red Hat photo shoot, courtesy of Z Sevcikova.

#theredhatstories #kickstarter #shortstories #newbook #bookstodon #photography #london #camden

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poconnor, 1 month ago to books

The Red Hat Stories Kickstarter is nearly there - 87% funded!

You guys are amazing! Tell your friends about this great campaign which is almost certain to happen.

If we reach 100%, all current and future pledges will be honoured.

Go to Kickstarter . com and search "The Red Hat Stories"

#TheRedHatStories #Kickstarter #Books #ShortStory #Writing #NewBook #Book #Bookstodon #Bookstagram #Author

poconnor, 17 days ago to random

Game on! Excited for the first talk. #LivingWithPKU #NSPKUConference #NSPKU2024

poconnor, 16 days ago to random

Good morning @NSPKU Conference. Metabolic dietitian Suzanne Ford kicks us off with a look at the treasure trove of information on the NSPKU webpage.

the research page has open access to relevant studies, while the documents page is a rare resource of helpful information.

Plus, full page copies of the News & Views!

#livingwithpku #pku #NSKUConference #NSPKU2024 #raredisease #rarediseasecommunity #lowprotein

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poconnor, 15 days ago to random

Jogging with lettuce: a breakdown or something more sinister?

Residents were startled by the spectacle of a small wolf running next to a woman who was panting heavily & carrying an iceberg. 🥬

Inspired by her #PKU clan, the woman combined a daily dog walk with a return to running.

“The Allotment is a safe place & I needed to check on the plot. Lettuces were looking good & I fancied a salad for lunch.”

Authorities are seeking those who incited the incident.
#livingwithpku #jogging #NSPKU2024

poconnor, 1 month ago to writing

May newsletter from PigPen 🐷🖋️ #writing, #PKU, & #BrainInjury

🚨 #Prescription costs in England & Wales go up!

📣 NSPKU conference & #PKUAwareness month

🧑‍🔬 Help with #TBI research

🥳 🥳 #TheRedHatStories funded! Last chance to join us in the #Kickstarter which closes on #StarWarsDay #MayTheFourthBeWithYou

https://buff.ly/3Wp8jJM

poconnor, 1 month ago to shortstory

Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published.
Grab your copy @ Kickstarter .com & search ‘the red hat stories’

#theredhatstories #shortstory #anthology #shortstorywriter #kickstarter #newbook #bookstagram #author #London #londonlife #londoncity #london🇬🇧 #londonlove

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poconnor, 1 month ago to Pubtips

The Red Hat Stories will be published! A huge thank you to all those who have supported the book so far - especially @soheb

You can still participate as the campaign will run until May the fourth (#StarWarsDay). Go to Kickstarter .com and search “The Red Hat Stories”

Thank you all

#bookstodon #TheRedHatStories #Kickstarter #Publishing #NewBook

poconnor, 17 days ago to random

Photos from #NSPKU2024 great day, which ended with a bunch of us chilling and shooting the breeze. Perfect.

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poconnor, 1 month ago to books

The Red Hat Stories Kickstarter is 70% funded after a single weekend!

Thank you all for the amazing response. If we reach 100%, all current and future pledges will be honoured.

Go to Kickstarter . com and search "The Red Hat Stories"

#TheRedHatStories #Kickstarter #Books #ShortStory #Writing #NewBook #Book #Bookstodon #Bookstagram #Author

poconnor, 16 days ago to random

Hubby serves up a phe-free meal to finish my #NSPKU2024 weekend.

The All-In-One Aubergine, Tomato & Nigella Seed Curry from India express book

poconnor, 1 month ago to shortstory

Hullo there, The Red Hat Stories is now available on Kickstarter.
➡️Rewards start from £1
➡️A limited number of ‘Book Treat Tins’ available.

Not interested in books, but want to help?
Got you covered. Plus, my dog will be happy as she gets a treat for every £1 pledge.

Intrigued? Link in bio :)

Find out more on #kickstarter or through link in bio

#theredhatstories #shortstory #author #fluffmuppet

poconnor, 11 days ago to random

Update on future #treatments for #PKU

From the NSPKU conference held May 2024 here are my notes from the sessions on #sepiapterin, #mRNA, #gene #therapy, solute carrier 6, and oral options for #PegPal / #Palynziq

https://buff.ly/4awqcJP

#LivingWithPKU #RareDisease #phenylketonuria #PCU

poconnor, 1 month ago to animals

Friday afternoon energy levels

#FluffMuppet #DogsOfMastodon #dogs #FridayVibes #keeshond

poconnor, 1 month ago to random

When every month is #pkuawarenessmonth … 🥳

#PKU #LivingWithPKU #LowProtein

https://www.instagram.com/reel/C6betLNoKnm/?igsh=YjBta3IydnhiMzE3

poconnor, 2 months ago to london

April is #Stress Awareness Month which means it is obviously the best time to try something new 🤣 So...I'm launching a #KickStarter for my new book #TheRedHatStories this weekend.

These stories take place above and below the streets of #London. They explore the connection between strangers, the assumptions we make, and how overlooked encounters have unforeseen effects.

Sounds interesting? Link in bio.

#TheRedHat #TheRedHatSociety #ShortStory #Anthology #AmWriting

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poconnor, 2 months ago to random

The April sale at Routledge includes my “incredibly vivid” memoir of living with mild traumatic brain injury.

Reviewed by a Clinical Neuro-rehabilitation Psychologist to be “of great benefit to professionals, survivors and their families alike."

Readers have contacted me from around the world to say how much it helped them!

Link in bio.

#LivingWithMildBrainInjury #concussion #MTBI #brainInjury

soheb, 1 month ago (edited 1 month ago) to Youtube

In PKU news, a good friend of mine Paul has updated his PKU Insights YouTube channel to discuss some of the new things in the future.

You can check it out here (and subscribe to the YouTuvbe channel!)

https://www.youtube.com/watch?v=iMPr16eAuGo

#PKU #PKUInsights #YouTube #phenylkeotnuria #phenylcetonurie #lowProtein #LivingWithPKU