Responding to a BBC programme, Dr Edzard Ernst highlights data showing many are harmed by the Lighting Process and the lack of evidence for claims made.
He concludes: "Does anyone think that LP or its promoters are remotely serious?"
BBC: #LongCovid course is 'exploiting people', says ex-GB rower
Former Team GB rower Oonagh Cousins was offered a free course of the contested
alternative treatment "Lightning Process" (LP) for her long Covid. She says: "They were trying to suggest that I could think my way out of the symptoms, basically". The BBC has secret recordings from an LP-course confirming patients are told they can recover by changing thoughts, language and actions.
"Health-care experts and medical studies have found that racist myths about Black people … coupled with physicians’ biases, mean Black patients are more likely to be seen as drug-seeking and described negatively in electronic medical records."
“Who gets diagnosed with Long Covid, it’s socially and economically skewed”
A thread for twelve #MECFS, #LongCovid and related research papers from w/c 20th May 2024.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
Not everybody becomes chronically ill from a disabling pathogen.
Live till you die is the goal, not suffer till you die.
You may not care if #Covid kills you, but will you care if you are so ill from #LongCovid, making food to survive takes every ounce of your energy for that day? Will you care then?
Because that's what way too many people are living right now.
Do you have somebody lined up who will take care of you indefinitely?
"Compared to unvaccinated cases, vaccinated cases had a similar or lower risk of all PCC categories except mental health disorders. Pre-infection vaccination was associated with reduced risk of several PCC outcomes and hence may decrease the long-term consequences of COVID-19."
Approximately 400 people protested on Saturday 11 may at Federal Square in Bern in Switzerland for better care for ME/CFS patients. Chantal Britt, president of the Long Covid Switzerland association helped to organize the protest. She pleaded to establish centers of expertise and promote research on ME/CFS.
"#MEAction’s narrative activity study with Mayo Clinic opens today! We’re looking for people with ME/CFS or Long COVID with PEM to share their experiences.
The survey will be open from 5/24/2024 to 6/23/2024."
Long survey (estimate says 20-90 minutes?) but you can do it in sections and come back.
Who was hit hardest by #covid-19? Possibly immigrants in unprotected essential jobs. Osbaldo Varilla-Aguilar and others still face lingering, sometimes extreme symptoms. #sf#longcovid
I am concerned that even the most #COVID19-cautious experts are losing their focus. Everything from them is becoming H5N1 all the time. They're moving on.
TWO AMERICANS have bird flu. It does NOT transmit human-to-human. This could change, but that isn't today's risk.
10 MILLION Americans will get another COVID infection this month--during our "low" point--and 1 million or more of them will develop #LongCovid.
Keep your eyes more on the risks we face today than what we MAY face tomorrow.
CDC: infections "likely" growing in 13 states (seems like they'd be the ones who could find out for sure!), global wave heats up, UK parents of #longcovid kids accused of lying, snakes force Wales vax centre closure, China warns citizens about New Zealand surge, a peek at my next book, and more...
Also, a harrowing list of Aotearoa school covid in the past week; UK, Australia, Singapore and many other countries are getting hammered by a new variant. Ugh!
"A blueprint for radical inclusion and living a full, safer life within the context of Covid-19 exists.
Many mutual aid groups and initiatives advocating for clean air and continued Covid-19 safety are emerging all over the world using technology and layers of protection to help mitigate the spread of viruses."
"According to a Centers for Disease Control (CDC) report from September of last year, around 18 million adults reported dealing with long COVID as of 2022."
Increase in risk in cardiovascular events now up to 3 years after covid infection. I guess I won't be stopping the nattokinase any time soon.
From Ruth Ann Crystal, MD:
"Three years after COVID infection, adults had an increased risk of all major adverse cardiovascular and cerebrovascular events including heart attack, stroke, heart failure, atrial fibrillation and myopericarditis with an odds ratio of 1.73."
Chinese study finds association between viral persistence and Long COVID.
"Overall, the results provide significant new evidence that viral persistence is associated with Long COVID and that the quantity of virus remaining in tissues is associated with the risk of developing Long COVID."
i think the hardest thing about becoming inflicted with a debilitating chronic illness in your 30’s is having to reset your understanding of your own body, your capacity, your energy, and learning to be even more understanding, forgiving, and kind to yourself
and giving yourself time to grieve the person you used to be
i’m still there in that space.
i’m also still convincing myself that my dreams and goals don’t have to change. its the steps i’m taking to achieve them is what has to change.
Tasmania: "A senior obstetrician and gynaecologist who caught COVID during Burnie’s infamous hospital outbreak in 2020 is fighting his employer over ongoing effects, some 4 years later."