"1. 'I procrastinate showers because they’re just too much work, especially now with a central line. I don’t brush my hair between showers because it kills my arms, and my muscles get extremely fatigued and hurt. I really need help but hate asking for help and feeling like a burden.”
"When people think about #disability or #chronicillness, they tend to do so in a very black and white sort of way: Either you are completely #disabled, or you are not — this is your permanent status, and your disability (or lack thereof) will affect you the same way today as it will tomorrow.
"There are so many ways that an #illness or #disability can fluctuate, so many ways that the effects of such can change. But when you do have a #fluctuatingillness or disability, it often comes with many of the same pitfalls of a #hiddendisability. Judgement from those uneducated in the realities of disability, high expectations that are realistically beyond your capabilities, assumptions from others."
3/
"There are days I will be struggling to get about with a pair of gutter crutches, and a few days later I’ll be managing with one, or using only a cane. It’s assumed by those who have little experience of #chronicillness or #disability that I must be getting “better,” therefore I must be able to do more, and I will continue to get better.
So what happens when, the next day, you’re back to using both crutches, or a wheelchair?"
“I thought you were getting better?” can hit like the pointy end of a very sharp sword sometimes. It feels accusatory. Like we’re being accused of not trying hard enough, that not getting better is somehow a personal failing, or even that we’re maybe just pretending that we’re as bad as we are for that imaginary #disabled bonus that many non-disabled people believe to exist."
Serious question: what is the vegan/plant-based solution for folks like me who want to eat more veg but can’t always tolerate them well due to IBD/etc? As much as I love beans/hummus/shrooms/tofu, I haven’t found anything quite so nutrient-dense and digestible as animal protein. Even shakes and supplements don’t really satiate my hunger.
Again, this is a serious question. In the past I have gotten such non-answers as “you’re making it up, no one is intolerant to plants” and “it’s just a stomachache” and “no one NEEDS meat, stop lying to yourself”, so I would appreciate some sincere and thoughtful dialogue on the issue. #vegan#vegetarian#chronicallyill#disability#ibd#crohns#plantbased#askmastodon
@audhd I got a surprise today! There are real people out there who have signed up for my Low-Spoonz Newsletter off of www.BZBrainz.com after my April release. I have not yet sent out a newsletter, but I will within Quarter 3. It's titled the "Low-Spoonz Newsletter" for a good reason! You won't hear from me often, only if I have something to share and as I have spoons to share them. #chronicallyill#actuallyautistic#adhd#spoons#spoontheory
By offering discounts for junior, under-funded, independent, & marginalized #researchers & #ContentCreators, we make our services accessible so you can make your content more accessible.
"To help people make connections: name things that interest you (but aren't in your profile) as tags so they are searchable. Then boost/repeat the instructions so others know to do the same."
The long awaited #introduction has come! I’m Amity :remVV: a #queer and #trans chill #ChronicallyIll, grunge/goth #gamer who can’t pay the bills. I’m also a fan of #anime, most music genres (mainly female rap/hip hop, Kpop, electropop, EDM, neo-soul, R&B), TV/film, writing, birds, and spirituality.
Pls boost so I can find some more Black, LGBTQ, #disabled folk with similar interests!