@LEAD_Coalition@mastodon.world
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LEAD_Coalition

@LEAD_Coalition@mastodon.world

Exec. Dir. of the LEAD Coalition (a diverse national coalition of organizations advancing #dementia quality of life, care, support & research).

#Alzheimers #caregiving #mentalhealth

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LEAD_Coalition, to random
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How to Interact with a Person who has #Dementia

#Alzheimers

LEAD_Coalition, to Depression
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isn’t something you have to accept and bear. It is a medical condition and help is available.

LEAD_Coalition, to random
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For all who strive to live fully with and all who offer support.

LEAD_Coalition, to KindActions
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to all of you who share your light with those most in need.

LEAD_Coalition, to random
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"Don't think of people with #dementia as not having abilities. They have an ability to feel and interact and we need to try and enter into their world."

#Alzheimers #EndAlz

LEAD_Coalition, to humanrights
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A powerful, insightful and beautiful message for all of us who believe in uplifting people living with #Alzheimers and other forms of #dementia.

#caregiving #humanrights #dignity

LEAD_Coalition, to random
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Respecting the dignity of people living with .

LEAD_Coalition, to mentalhealth
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As caregivers, we need each other. We need empathy without pity. We need advice without judgement. We need friendship without expectations.

LEAD_Coalition, to KindActions
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At its heart, good #caregiving is about letting go of our own expectations and finding ways to offer the support our loved ones deserve and value.

#Alzheimers #dementia #kindness

LEAD_Coalition, to random
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Words of reassurance left for a woman with #dementia by her daughter. A simple white board in her sight line in her sitting room.

#Alzheimers #caregiving #EndAlz

LEAD_Coalition, to random
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What we commonly call #dementia "behaviors" actually are communication about confusion, pain, distress, or for other wants or needs to be addressed. We must view them compassionately and listen for the message.

#Alzheimers #caregiving #quote

LEAD_Coalition, to random
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“Alzheimer’s caregivers are not superheroes. No one can be selfless, patient, and compassionate every minute of every day. Caregivers need care too.”

(image: @LEAD_Coalition)

LEAD_Coalition, to poetry
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Supporting someone living with #dementia begins and ends with showing up.

#Alzheimers #poetry

LEAD_Coalition, to KindActions
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When we listen with , our loved one's stories are more important each time they are repeated.

LEAD_Coalition, to mentalhealth
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Family #caregiving can be enormously rewarding and deeply traumatizing.

#Alzheimers #dementia #mentalhealth #trauma #PTSD

LEAD_Coalition, to KindActions
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Whether giving or receiving care, showing your appreciation for the other person’s efforts (no matter how great or small and no matter the results) will help both of you.

LEAD_Coalition, to mentalhealth
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#Caregiving:
Hug the hurt.
Kiss the broken.
Befriend the lost.
Love the lonely.

#Alzheimers #dementia #mentalhealth #quote

LEAD_Coalition, to music
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"#Music imprints itself on the brain deeper than any other human experience. Music evokes emotion and emotion can bring with it memory. Music brings back the feeling of life when nothing else can." ~ Dr. Oliver Sacks

#Alzheimers #dementia #quote

LEAD_Coalition, to mentalhealth
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Sharing our stories fights stigma, enlightens others and gives them permission to enter our world, and helps people on a similar journey feel less alone.

LEAD_Coalition, to humanrights
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A person living with disease or another form of loses memories, not humanity.

LEAD_Coalition, to random
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only heightens the importance of respect.

LEAD_Coalition, to mentalhealth
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burnout happens, and should be taken seriously https://inforum.com/newsmd/caregiver-burnout-happens-and-it-should-be-taken-seriously

LEAD_Coalition, to humanrights
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A powerful, insightful and beautiful message for all of us who believe in uplifting people living with #Alzheimers and other forms of #dementia.

#caregiving #humanrights #dignity

LEAD_Coalition,
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@TCMuffin Jayne, my heart goes out to you along with gratitude for all you did or your mother. During the long years when I was caring for my dad, there were times when my better judgement was overtaken by exhaustion, sadness, frustration, panic, and more. Intellectually, I could give myself grace. But nearly 16 months after his death, I still struggle emotionally with having been an imperfect carer (and son). I post a lot about the toll of caring, sometimes unable to live accordingly myself.

LEAD_Coalition, to KindActions
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Caregivers often are not able to reach out and ask for help. They need us to reach out and offer our empathy, our #kindness, our support.

#Alzheimers #dementia #mentalhealth #depression

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