LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

For all who strive to live fully with and all who offer support.

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

to all of you who share your light with those most in need.

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

Glitch is one way to put it/to minimize it. I would say "probable #dementia," as #psychologist Dr. John Gartner calls it.

https://www.newsweek.com/donald-trump-glitch-nra-speech-1902257

Here's a chart listing the different #variants of #PrimaryProgressiveAphasia.

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

"Don't think of people with as not having abilities. They have an ability to feel and interact and we need to try and enter into their world."

LEAD_Coalition, to humanrights
@LEAD_Coalition@mastodon.world avatar

A powerful, insightful and beautiful message for all of us who believe in uplifting people living with and other forms of .

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

This is true. Also true is how hard it is to watch someone you love die with and of #dementia

#EndAlz

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

Respecting the dignity of people living with .

CindyWeinstein, to journalism
@CindyWeinstein@zirk.us avatar

https://www.msnbc.com/morning-joe/watch/joe-trump-can-t-remember-jimmy-carter-s-last-name-210874437890

How about all #media cover this example of what sure sounds like #aphasia? Those of who know people with #dementia know what this is.

slcw, to random
@slcw@newsie.social avatar

Another day, another demonstration of 's worsening ...

In today's episode, Trump became lost in a mental fog, and thought he saw in the crowd at his rally. OJ Simpson is dead. The should be very concerned about the fact that their candidate is apparently so deep in mental failure that he's seeing dead people.

https://www.rawstory.com/trump-online-oj-rally-2668235650

LEAD_Coalition, to mentalhealth
@LEAD_Coalition@mastodon.world avatar

As caregivers, we need each other. We need empathy without pity. We need advice without judgement. We need friendship without expectations.

mattotcha, to Health
@mattotcha@mastodon.social avatar
br00t4c, to random
@br00t4c@mastodon.social avatar

'Failings' in PSNI dementia patient investigation

https://www.bbc.com/news/articles/clm3ee2yrk7o

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

At its heart, good is about letting go of our own expectations and finding ways to offer the support our loved ones deserve and value.

paris, to Seattle
@paris@hachyderm.io avatar

i found a local therapy group for people who care for folks who live out of state and have . i honestly cried after i got off the phone with the facilitator. ♥️ already feel community.

thejapantimes, to Japan
@thejapantimes@mastodon.social avatar

Some 5.84 million people in Japan who are age 65 or over will have dementia by 2040, according to a projection by a health ministry team. https://www.japantimes.co.jp/news/2024/05/08/japan/science-health/2040-japan-dementia-estimate/ #japan #sciencehealth #aging #dementia #alzheimer039sdisease

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

Words of reassurance left for a woman with by her daughter. A simple white board in her sight line in her sitting room.

Da_Gut, to random
@Da_Gut@dice.camp avatar

My wife and I finally (finally!) had a conversation about my increasing memory loss. And growing signs of early dementia.

It's something I've been wanting to do for a couple of years. She is quite upset, but I made my peace with it a while ago. It's just getting impossible to ignore.

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

What we commonly call "behaviors" actually are communication about confusion, pain, distress, or for other wants or needs to be addressed. We must view them compassionately and listen for the message.

AFatima, to Health
@AFatima@beekeeping.ninja avatar

While dementia is much more common in older adults, hundreds of thousands of people are diagnosed with young-onset dementia (YOD) each year – and an extensive s… https://search.app/k7uzCWxdcDUcAbw27

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

“Alzheimer’s caregivers are not superheroes. No one can be selfless, patient, and compassionate every minute of every day. Caregivers need care too.”

(image: @LEAD_Coalition)

LEAD_Coalition, to poetry
@LEAD_Coalition@mastodon.world avatar

Supporting someone living with begins and ends with showing up.

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

When we listen with , our loved one's stories are more important each time they are repeated.

GlasWolf, to random
@GlasWolf@mastodon.scot avatar

The biography of Terry Pratchett by his long-time assistant Rob Wilkins, "A Life in Footnotes", is 99p today at Amazon and Kobo.

It's interesting, surprising, funny, affecting, sad and extremely good

Edit: apparently it's [ today, which explains the timing.]

https://www.kobo.com/gb/en/ebook/terry-pratchett-a-life-with-footnotes

box464, to random
@box464@mastodon.social avatar

I've got some thoughts about how the tech world ignores the needs of users with cognitive disabilities like dementia. Hit me hard this week.

There are degrees of dementia. Some people live with mild or moderate forms for years and deserve respect, dignity and as much freedom as we can offer them. That includes access to the internet.

LEAD_Coalition, to mentalhealth
@LEAD_Coalition@mastodon.world avatar

Family can be enormously rewarding and deeply traumatizing.

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