stevesilberman, to random
@stevesilberman@newsie.social avatar

Big news! I have a new column in Scientific American, for which I'm deeply grateful. The first one is on how my mother's showed me another side of . Rough stuff, but the state of eldercare in the US is horrific. Please spread this link. https://www.scientificamerican.com/article/how-my-mothers-dementia-showed-me-another-side-of-neurodiversity/?utm_campaign=socialflow&utm_source=twitter&utm_medium=social

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

Woman with adored her haircut. Her husband's letter to the stylist is everything. https://upworthy.com/man-thanks-stylist-for-his-wifes-haircut

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

Is there any higher calling — or lonelier journey — than caring for a person living with disease or another form of ?

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

What we commonly call "behaviors" actually are communication about confusion, pain, distress, or for other wants or needs to be addressed. We must view them compassionately and listen for the message.

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

Words of reassurance left for a woman with by her daughter. A simple white board in her sight line in her sitting room.

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

A good reminder to live life fully whether you have , are a caregiver, or realize you could be later in life.

anti_disease, (edited ) to novid
@anti_disease@zeroes.ca avatar

The new normal: Dementia at 19.

EDIT: There was also a car crash, and neck surgery. Thanks to @burningbird for pointing this out. https://www.independent.co.uk/news/health/long-covid-dementia-symptoms-daughter-b2342570.html

@novid

quadrivial, to random
@quadrivial@beige.party avatar

Since so many people are talking about Die Hard, I want to give a thought to Bruce Willis and his family.

And to recognize all those who are dealing with family members with . I hope, for those of you in that situation, that you get time for self-care. Do what you need to do. I'm wishing you the best. 🙏🙏🙏

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

Caregivers often are not able to reach out and ask for help. They need us to reach out and offer our empathy, our , our support.

LEAD_Coalition, to random
@LEAD_Coalition@mastodon.world avatar

When a person living with asks the same question repeatedly, listen to the question differently and you may learn more about the needs underlying the question itself.

shanifi, to Medicine

Hello! I’m a Canadian / desperately seeking a microblogging community now that the world is on fire. Interested in , care, , , , and . Curious about in . How do I find my people? :) 👋

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

"This is a fundamental breakdown in the ability ['s] to use language. . . .There is no healthy older person who speaks that way."

Trump also engages in "tangential speech." . . that's a sign of real brain damage, not being old, not being slow, not losing a step, but of severe cognitive deterioration. What I don’t understand is why those clips aren’t replayed over & over in the mainstream media.

https://www.salon.com/2024/02/23/dr-john-gartner-on-a-tale-of-two-brains-bidens-brain-is-aging-brain-is-dementing/

More of this please.


Snowshadow, to random
@Snowshadow@mastodon.social avatar

🧵 1/3

💔 Alzheimer's 💔
After time spent worrying when you receive the confirmation you have been dreading your heart will break.
❤️ Know it's normal to grieve the loss you are facing.
❤️ Know it's alright to feel sad
to mourn,
to cry.
❤️ It won't be the last time you feel this sorrow.
❤️ Watching your loved one slowly fade into a world the two of you will no longer share is a lonely feeling.
❤️ You will grieve the loss of familiar intimate moments.

(more)

Snowshadow,
@Snowshadow@mastodon.social avatar

3/3
❤️ Know that it is alright to cry.
❤️ You don't have to pretend to be strong.
❤️ Find something that brings you comfort and peace and practise being kind to yourself.
❤️ Hold onto the memories of the love your partner has shown you and reflect that love back towards them
❤️ Remember, it's alright to feel the loss..and it's normal to mourn.
❤️ You are not alone.
💔

slcw, to random
@slcw@newsie.social avatar

Another day, another demonstration of 's worsening ...

In today's episode, Trump became lost in a mental fog, and thought he saw in the crowd at his rally. OJ Simpson is dead. The should be very concerned about the fact that their candidate is apparently so deep in mental failure that he's seeing dead people.

https://www.rawstory.com/trump-online-oj-rally-2668235650

ScienceDesk, to science
@ScienceDesk@flipboard.social avatar

Here's another reason to get a good night of sleep. Researchers in the U.S. may have found a key to forestalling declines in brain activity that may one day lead to Alzheimer's disease, the most common form of dementia: deep sleep. Science Alert has more: https://flip.it/GH02hf

CindyWeinstein, to random
@CindyWeinstein@zirk.us avatar

A must-read re: , , , & the madness, the cruelty of our system. "nothing has opened my uncovered-by-insurance eyes to the sadism and untenability of our for-profit health-care system as much as sharing a home and a life with a man caring for a wife with Alzheimer’s. It is untenable to expect family members of those living with Alzheimer’s to either bear a yearly six-figure burden for memory care, quit their jobs, or get a divorce." https://www.thedailybeast.com/america-to-families-with-alzheimers-youre-on-your-own

glynmoody, to random
@glynmoody@mastodon.social avatar

Air could be significant cause of – even for those not predisposed - https://www.theguardian.com/environment/2024/feb/21/air-pollution-could-be-significant-cause-of-dementia-even-for-those-not-predisposed?CMP=twt_a-environment_b-gdneco "People in areas of high PM2.5 concentrations had higher amounts of amyloid plaques in brain"

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

When people with forget, we can help them remember.

(image: Tony Husband)

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

the best way to respond to “invisible” illnesses is with visible .

LEAD_Coalition, to humanrights
@LEAD_Coalition@mastodon.world avatar

A powerful, insightful and beautiful message for all of us who believe in uplifting people living with and other forms of .

LEAD_Coalition, to KindActions
@LEAD_Coalition@mastodon.world avatar

to all of you who share your light with those most in need.

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