Industrially processed pizzas, cereals, and convenience foods are responsible for a host of diseases. Policymakers and doctors need to lead the food fight.
I have been so #busy at #work recently. It seems that everyone is getting ready for a #Christmas#break and people want to clear their task lists. What else? My #mother got a #dementia diagnosis yesterday, so now both of my parents have #alzheimers. 🥺 I will spend Christmas with them in my home village. My father lives in a sheltered home, and my mother lives alone. ♥️ 🫶 #today#suomimastodon#finland
Hello my Mastodon #friends. How was your #Christmas? I had a really hard time with my #mother. We assume her dementia is a behavioural variant frontotemporal #dementia that causes emotional problems and bad behavior. I was exhausted when I got #home#yesterday. I even got off the train in Pasila, too early. 🙈 I had a migraine yesterday and #today. But guess what? I had a #date today and we had so much fun. He drove for 2,5 hours to take me out for a #dinner and now he's driving back home. 🫶 😘
One more reason -- and an extremely important one at that -- NOT to change the clocks! It's so hard on people with #dementia, especially those who experience #Sundowning, and their #caregivers. November is #AlzheimersAwarenessMonth and #NationalFamilyCaregiversMonth. Let's do better by this community -- 6.7 million and counting -- that already has so many challenges.
Yesterday I came home from South #Karelia#Finland. It was hard to work remotely and take care of my #mother who now has #dementia. We are still waiting for the final diagnosis. I took my mother to see my #father who lives in an #Alzheimer's home. This photo melts my heart. My father didn't know who I was. He said I'm human. That's right. But he remembers my mother.
My mother is dealing with memory issues which are almost certainly dementia-related. She also has mobility issues and is a falls risk. She’s 97 and lives independently a few miles away. This thread is about the technology that is helping keep her safe and is reducing our angst.
Has anyone read that book- How to be More Clever and Faster
(Than your Loved One)
I’d buy and read it in a heartbeat. We’re going through a phase where son broke 2 pairs of his glasses in less than hour. He also tried to rip out the electric cable on a recliner. Unwary caregiver was lucky to pry Drew’s iron grip fist clutching his wired ear buds that were dangling. Fun stuff, eh? @caregivers #Dementia#AlzheimersSucks
Anyone have experience with their person losing center of gravity/balance after time in bed or a recliner?
When we stand my mom up, she feels like she's falling forward, and as we try to keep her upright, she thinks we're pushing her face down. She's scared, it takes extreme effort by aide and trust by Mom to transfer.
She can stand and walk w/walker, is quite strong for 96, but recently lost what remained of vision. TIA! #vertigo#eldercare#caregiving#dementia#balance#blind
I think there should be a rule if you are a caregiver to someone with #Dementia that they should not ALSO have a serious and hard to treat additional medical condition or 2, or 3 more on top of the dementia or Alzheimer’s. Now Drew also has Lennox-Gastaut Sundrome, a rare form of epilepsy/seizure disorder. #Alzheimers#Epilepsy#Seizures @caregivers
it took me several check outs from the library to get through this, but it is one of the most interesting, depressing & dense books I’ve ever listened to & am a better person for listening to it altho👀👀👀
Having never known about it, what I can say is, you definitely do not want this; it makes #cancer look like a🎄🎁
Book was published in 2019 when there were 75 million #babyBoomers approaching the prime dementia ages where 30-50% will have it by age 85. Post Covid tho, that number has risen %-wise & age of onset lowered by DECADES
Symptoms aren’t straight forward b/c it’s not merely the stereotypical memory loss & I realized one of my building neighbors had been suffering from it for at least 15 years after listening to all the presentations of different types. There are 7 stages & you could probably hide the fact you have it w/out too much difficulty #brainFog
There is no cure & the “recommendations of prevention” are honestly… useless if you don’t remember the first rule; DO NOT GET COVID/viruses or minimize the amount of times you do & certainly don’t breathe air arbitrarily🚫😷
Never thought about dementia b/c it didn’t run in my family but after 2 full infections, now I worry just a bit. Ok.. I’m a fatalist hypochondriac so perhaps slightly more than a “bit” but medical paranoia has been generally my friend, so I’ll continue being paranoid
The stories are harrowing but this book is definitely what I needed to know b/c mental decline will only be ever increasing all around as more time goes by
A must-read re: #dementia, #funding, #caregiving, & the madness, the cruelty of our #healthcare system. "nothing has opened my uncovered-by-insurance eyes to the sadism and untenability of our for-profit health-care system as much as sharing a home and a life with a man caring for a wife with Alzheimer’s. It is untenable to expect family members of those living with Alzheimer’s to either bear a yearly six-figure burden for memory care, quit their jobs, or get a divorce." https://www.thedailybeast.com/america-to-families-with-alzheimers-youre-on-your-own
Remembering the #Congresspeople who blocked #Biden's plan to help #caregivers. "Families & other caregivers take on an array of tasks, scheduling appts & feeding & caring for people w/#Alzheimer's or #dementia. The report said 11.5 million relatives & caregivers provided more than 18 million hours of unpaid care last year. That amounted to a full-time job for caregivers who spent an avg. of nearly 31 hours a week caring for a person w/Alzheimer's or dementia."
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2024-03-25 1am
Never mind that pieces of the house are coming detached
that holes have appeared in the brick
in the plaster
water seeping in
Never mind the loose and missing insulation
the gaps through which mice and ants and crickets squeak in, file in, hop in
making themselves at home or at least busy
Never mind my unrest, the piles of mail unopened
emails unanswered
calls unreturned ...
💔 Alzheimer's 💔
After time spent worrying when you receive the confirmation you have been dreading your heart will break.
❤️ Know it's normal to grieve the loss you are facing.
❤️ Know it's alright to feel sad
to mourn,
to cry.
❤️ It won't be the last time you feel this sorrow.
❤️ Watching your loved one slowly fade into a world the two of you will no longer share is a lonely feeling.
❤️ You will grieve the loss of familiar intimate moments. #Alzheimers#Dementia#Aging
(more)
So many times lately I've told friends and acquaintances about my mom having a stroke, losing her sight, staying in bed and/or sleeping most of the day, being home-bound, needing total care, without shedding a tear.
But I lost it today as I was writing to the local bridge club that her bridge-playing days were over. Bridge was a defining part of her identity. That I kept her on the bridge club mailing list as long as I did... #ElderCare#caregiving#dementia#pregrieving @caregivers
They're doing it again. The thing about "but her emails" is that the emails were an issue. And a not small one. Hilary's attempts to circumvent open access laws by conducting public business on a private email server is important. And by just screaming about "her emails" they never addressed this issue or how it contributed to the public's general distrust of her.
Now they are doing the same thing with Biden's increasingly obvious signs of dementia. They scream partisanship and how unfair it is. They call out the hypocrisy of not holding trump to the same standard. All the while never addressing whether Biden is mentally incompetent or addressing the public's genuine concerns about his capacity. #Biden#dementia#USPol
Anyone who has had a family member or someone you knew w/ dementia and/or Alzheimer's - suggestions needed on dealing with cursing and name-calling. I "know" that the person's brain loses the social filter and horrible language can come out very inappropriately, it's rough when certain words trigger outrage. Son is using the N-word and other names and hit a nerve today with our new part-time caregiver. It's been a rough day. We can't stop it - ideas? #Alzheimer#Dementia
It’s Time to End the Tyranny of Ultra-Processed Food (www.wired.com)
Industrially processed pizzas, cereals, and convenience foods are responsible for a host of diseases. Policymakers and doctors need to lead the food fight.
Bruce Willis’ Wife Gives Blunt Update Amid His Dementia Battle: “I’m Not Good” (www.hollywoodreporter.com)
Emma Heming Willis gave an update on her family's struggle while taking care of the ailing actor.