♿ 🛏️
C'est jusqu'au 6 avril,
l'exposition "De la vie au lit",
à Montréal, mais proposant des modalités de retransmissions web,
et il s'agit du travail fondamental de l'excellente commissaire française Sarah Heussaff (qui est actuellement publiée dans le dernier Multitudes).
Je suis profondément heureux de ce travail, il correspond notamment à plein d'échanges entre Sarah et moi, et la continuité de son travail pointu dans les Disability Arts / Arts Handicapés.
C'est tout un pan de la culture handie & malades chroniques qui est étudiée via nos vies alitées puissantes. Nous existons allongé-es.
I can't bind because of chronic pain, and trans tape isn't holding my tits because it's heavy, I can't do surgery either because it takes more than morphine for me to not suffer, what should I do? I'm lost.
A story about one woman's decent into energy deprived #ChronicIllness. I can absolutely relate, but for me it's #ChronicPain zapping my energy like you wouldn't believe. The best I can get out of life right now, is trying to live a normal life on the internet, as that just requires two thumbs. If I didn't have the internet, I may not even be alive today.
Please take a second to read this very short article about an invisible life-controlling illness, so that the 'lazy' bias-ness can be killed ⬇️
#BrainFog is really acting up today. #Fibro pain is much higher than normal too. Thanks to the brain fog, I totally spaced on a group #therapy session earlier.
Today is Rare Disease Day. I have a disease that is not particularly rare, but is considered so because it's underdiagnosed, misunderstood and some of the types are extremely rare.
If there were more funding for research and more training for doctors, perhaps we wouldn't be considered rare any more. 🦓
Got my postal vote for upcoming referendums in Ireland, so I thought I would remind people of this option for future votes (it's too late for the referendums).
In what should definitely be an event at the Spoonie Olympics, I just successfully gave myself an IM injection while having mild hand tremors and sketchy fine motor control.
Announcer: ooooooh! That was shaky, but WHAT A LANDING!
Feb 26 @ 9pm UTC
Join our live recording of the podcast "Love Your Love Muscle - Pain Special"! In this episode, we dive into the world of using meditation and self-regulation techniques for pain management. Tune in and learn how to find peace and empowerment through your pain. Don't miss out on this enlightening and transformative episode! - https://go.cosmicnation.co/TMGLive
Dalilah was my mom's only companion when I was out working 13-14 hrs a day, a bulk of that was travel on 3-4 buses
From 2015-2021 Mom only had Dalilah to talk with and she gave her so much joy and warmth
Mom's not been the same since we had to say goodbye 03.11.22 Mom knew my bun was sick but didn't understand she wasn't going to wake up again that afternoon until it happened...
When I lost her two years ago I felt the weight of those negative beliefs pour onto me all over again, thinking it was my fault for the #poverty I've been fighting, being unable to take her to the vet in the early years I had her, thinking it was compounded damage from the years that I struggled to get her needs met because of my #ChronicPain and fatigue and #depression
Even though in her last hours she wanted me at her side, more than food, more than water