Unsure how common this is in other #ChronicIllness affecting cognition, but when you have #MyalgicEncephalomyelitis the writing errors you’re almost guaranteed to make are:
Double the same word
or
Exclude it altogether
Or do both!
So frustrating & the sicker you are the worse it gets. You simply can’t see mistakes! Other problems too ofc but I’ve found this is the most common error made by #PwME
Got a new idea for a novel. Pre-industrial society on nameless planet. Disabled people sometimes disappear and come back “fixed”. It’s the aliens. The kicker is they’re purifying the gene pool and replacing the people in synth bodies. I know this might trigger some disabled people, but what I wouldn’t give to be in a non disabled body with the same mind… #sciFi#ChronicIllness
Character arc… someone who is able-bodied wants the synth body, gets into an “accident” but doesn’t get chosen and has to live with their injuries. Acceptance is one of my strongest character arcs. Sometimes there is no fixing. I can’t wait to put my PhD to rest so I can write fiction again! #amWriting#sciFi#ChronicIllness
"According to a Centers for Disease Control (CDC) report from September of last year, around 18 million adults reported dealing with long COVID as of 2022."
i think the hardest thing about becoming inflicted with a debilitating chronic illness in your 30’s is having to reset your understanding of your own body, your capacity, your energy, and learning to be even more understanding, forgiving, and kind to yourself
and giving yourself time to grieve the person you used to be
i’m still there in that space.
i’m also still convincing myself that my dreams and goals don’t have to change. its the steps i’m taking to achieve them is what has to change.
My new med for RA finally arrived by delivery courier. This is after 6 weeks of talking to the drug manufacturer, 2 speciality pharmacists, doing paperwork, intake phone calls, and finally scheduling a delivery.
The med is covered under a provincial ‘compassionate care’ program because it costs $6,200 USD / month out of pocket.
I share because it’s important to know what we go through. We don’t choose to be sick. We don’t want this. We just want to be well. 💜
Not Quite a Ghost 📚 In this middle grade book, the main character simultaneously deals with a spooky presence in her new house, and a confusing new #chronicIllness. The author does a great job portraying some struggles common to #MECFS and #postCovid : the discombobulating nature of symptoms that fluctuate, shifts in friendships when pals don’t believe/judge you, not being believed by doctors, and some very accurate descriptions of #PEM. Plus, the suspense makes it a great audiobook.
@justafrog@StillIRise1963 In my lifetime of seven decades I've learned that it's not possible to gauge someone else's level of pain, and for that reason no-one is in a position to tell another person how to respond to or express pain.
Both emotional and physical pain can be crippling.
I suggest you stop judging others and pay attention to how you live your own life. #chronicPain#ChronicIllness
The news summary includes articles, videos, research, advocacy, coming events, and more.
⭐️ One highlight: The Time100Health list includes several people working on ME/CFS and Long Covid (Jaime Seltzer, Avindra Nath, Ziyad Al-Aly, Akiko Iwasaki, and others) ⭐️