BBC: #LongCovid course is 'exploiting people', says ex-GB rower
Former Team GB rower Oonagh Cousins was offered a free course of the contested
alternative treatment "Lightning Process" (LP) for her long Covid. She says: "They were trying to suggest that I could think my way out of the symptoms, basically". The BBC has secret recordings from an LP-course confirming patients are told they can recover by changing thoughts, language and actions.
Responding to a BBC programme, Dr Edzard Ernst highlights data showing many are harmed by the Lighting Process and the lack of evidence for claims made.
He concludes: "Does anyone think that LP or its promoters are remotely serious?"
"Health-care experts and medical studies have found that racist myths about Black people … coupled with physicians’ biases, mean Black patients are more likely to be seen as drug-seeking and described negatively in electronic medical records."
“Who gets diagnosed with Long Covid, it’s socially and economically skewed”
This has been a challenging start to the year. I have finally fully left the little remote/home based work I did because of my Long-Covid and ill health after wrongly 'pushing through' in a state of constant PEM - just varying in intensity - relying on adrenaline surges, my partner caring for me, being pretty much housebound and making myself worse and worse. I regret not stopping sooner. I regret how much extra damage I have done. Though, I understand there was a interplay of structural and agency shaping my choices. I also know I am lucky to have had the choice to 'push through' and how many would not have been able to choose that even if they had wanted to. I have now got a lot of social security applications and appointments which, coming as no surprise, is fucking tough and challenging. The questions you have to answer, the awareness of all the ways the state tries to screw you. I am lucky to have a super supportive partner helping me with this, someone from a local charity helping and can't talk highly enough about the Benefits and Work guides!!!
Solidarity with everyone who still wears a mask. Solidarity with everyone who has had friends and family turn their backs on them for being covid cautious. Solidarity with everyone who has Long-Covid and does all they can to make sure no-one else has to live through the daily difficulties we do. Solidarity to everyone fighting against ableism, eugenics, Social Darwinism and health supremacy. Solidarity to everyone who gets shouted at and abused for wearing a mask. Solidarity to everyone who keeps going despite the overwhelming hegemonic narrative that what we are living through is 'normal'. Solidarity to everyone sharing science and facts about how covid spreads and the dangers of covid. Solidarity with you.
A thread for twelve #MECFS, #LongCovid and related research papers from w/c 20th May 2024.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
Not everybody becomes chronically ill from a disabling pathogen.
Live till you die is the goal, not suffer till you die.
You may not care if #Covid kills you, but will you care if you are so ill from #LongCovid, making food to survive takes every ounce of your energy for that day? Will you care then?
Because that's what way too many people are living right now.
Do you have somebody lined up who will take care of you indefinitely?
"Compared to unvaccinated cases, vaccinated cases had a similar or lower risk of all PCC categories except mental health disorders. Pre-infection vaccination was associated with reduced risk of several PCC outcomes and hence may decrease the long-term consequences of COVID-19."
I am concerned that even the most #COVID19-cautious experts are losing their focus. Everything from them is becoming H5N1 all the time. They're moving on.
TWO AMERICANS have bird flu. It does NOT transmit human-to-human. This could change, but that isn't today's risk.
10 MILLION Americans will get another COVID infection this month--during our "low" point--and 1 million or more of them will develop #LongCovid.
Keep your eyes more on the risks we face today than what we MAY face tomorrow.
Approximately 400 people protested on Saturday 11 may at Federal Square in Bern in Switzerland for better care for ME/CFS patients. Chantal Britt, president of the Long Covid Switzerland association helped to organize the protest. She pleaded to establish centers of expertise and promote research on ME/CFS.
"#MEAction’s narrative activity study with Mayo Clinic opens today! We’re looking for people with ME/CFS or Long COVID with PEM to share their experiences.
The survey will be open from 5/24/2024 to 6/23/2024."
Long survey (estimate says 20-90 minutes?) but you can do it in sections and come back.
Who was hit hardest by #covid-19? Possibly immigrants in unprotected essential jobs. Osbaldo Varilla-Aguilar and others still face lingering, sometimes extreme symptoms. #sf#longcovid
Increase in risk in cardiovascular events now up to 3 years after covid infection. I guess I won't be stopping the nattokinase any time soon.
From Ruth Ann Crystal, MD:
"Three years after COVID infection, adults had an increased risk of all major adverse cardiovascular and cerebrovascular events including heart attack, stroke, heart failure, atrial fibrillation and myopericarditis with an odds ratio of 1.73."
CDC: infections "likely" growing in 13 states (seems like they'd be the ones who could find out for sure!), global wave heats up, UK parents of #longcovid kids accused of lying, snakes force Wales vax centre closure, China warns citizens about New Zealand surge, a peek at my next book, and more...
Also, a harrowing list of Aotearoa school covid in the past week; UK, Australia, Singapore and many other countries are getting hammered by a new variant. Ugh!
"According to a Centers for Disease Control (CDC) report from September of last year, around 18 million adults reported dealing with long COVID as of 2022."
"A blueprint for radical inclusion and living a full, safer life within the context of Covid-19 exists.
Many mutual aid groups and initiatives advocating for clean air and continued Covid-19 safety are emerging all over the world using technology and layers of protection to help mitigate the spread of viruses."