@Elizabeth3@toot.community
@Elizabeth3@toot.community avatar

Elizabeth3

@Elizabeth3@toot.community

Political scientist with a data science bent. I focus on social networks, data for the people, and putting together cool multi disciplinary teams to address problems in novel ways. #actuallyautistic #LGBTQ #neuroqueer #R Header: Miami la Platja near l’Hopital des Infantes Espana

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samhainnight, to random
@samhainnight@mstdn.social avatar

It occurred to me today that even though over 1 million Americans have died from Covid, we have no national memorial or national day day of mourning and how the powers that be have decided to memory hole the whole thing and how wrong this is.

Elizabeth3,
@Elizabeth3@toot.community avatar

@samhainnight we need some public acknowledgment and mourning yes

chevalier26, to actuallyautistic
@chevalier26@mastodon.social avatar

What are your thoughts on self-diagnosis being belittled by many in the autistic community?

For clarity, I’m not asking to start a debate, just a genuine discussion. I currently don’t have the option to get a diagnosis, but feel fairly confident that the research I’ve done over the past year and a half has been legitimate and credible.

I don’t feel comfortable saying that I am definitively autistic, but I am ok with saying I’m “self-suspecting.” @actuallyautistic

Elizabeth3,
@Elizabeth3@toot.community avatar

@chevalier26 @felyashono @actuallyautistic yes it’s unfortunate that the tag is often interpreted that way. It’s understandable and we can be very literal like that! I think if people want to identify as autistic, they’ll soon feel the joy and the fear, frustration, danger, etc. . At that point if it still fits welcome aboard.

mentallyalex, (edited ) to random
@mentallyalex@beige.party avatar

I sometimes feel like I am able to spin a nice story or line.

Then I look at my replies and comments and wonder why you put up with me.

Thanks! Ya'll are awesome.

Elizabeth3,
@Elizabeth3@toot.community avatar

@mentallyalex same lol. I like your posts quite often

Cassandra, to random
@Cassandra@autistics.life avatar

As society reverts to the 70s, I can feel myself getting angrier about bras.

If you need or like them, please carry on.

But with certain aerobic exceptions, I find bras useless at best. At worst, they’re painful. They’re also expensive and labour-consuming.

All that just because other people are weird about the fact of boobs and incapable of minding their own business.

Angrifying.

Elizabeth3,
@Elizabeth3@toot.community avatar

@Cassandra agreed. We should be able to let them fly if we want to!

Quietgirl82, to random
@Quietgirl82@dragonscave.space avatar

Good morning awesome people!!! :)

It’s Wednesday, the midpoint of the week. The weekend will be upon us in a few more days and it’s been great weather recently especially this week. Your girl is excited for the weekend and to go shopping and read more books.

Always remember you matter, and never stop being you. Be authentic and shine like the stars!!!

Today we are gonna be talking about the Lagrange Points.

Lagrange points, also known as libration points, are special regions in space ideal for making observations and exploring the universe. These points at situated where the gravitational forces of a two-body system, such as Earth-Sun, Jupiter-Sun, or Earth-Moon, balance out. At Lagrange points, the gravitational pull of two large masses equals the centripetal force required for a small mass object, like a spacecraft, to "park" and practically remain almost at rest relative to the two-body system. There are five Lagrange Points, numbered L1 to L5, for any two-body system. These regions of gravitational equilibrium are utilized by spacecraft, as they require less fuel to maintain position.

Elizabeth3,
@Elizabeth3@toot.community avatar

@Quietgirl82 so cool thank you

pathfinder, to Autism
@pathfinder@beige.party avatar

@actuallyautistic

Much to my shock I realised that I could be autistic when I was 53, roughly 7 years ago. And it was a shock, even though I suspect a very small, well hidden and very much ignored part of me, might have suspected. No one told me about it, or suggested that it might be the case. I did not see myself in relatives, the way so many of us do. I just happened to come across an autism test online and for no particular reason, took it.

It was that, that started me on my path to realising and finally accepting the truth that I was autistic. But, looking back, I sometimes find it hard to understand how I didn't know earlier. So much of my life now, just screams autism at me. But even ignoring the horribly ableist and medieval view I had of what autism was, the main reason why I didn't was probably because I could mask, both from myself and others, so well.

It was, I realise now, a life lived in denial. A denial of how much things bothered me, how much effort I had to put into things. Even a denial of the things I knew I couldn't do. Because this is the thing about appearing to mask so well, for so long. It is, in a sense, a lie. I couldn't mask well, if at all. Not all the time. Not in all situations or circumstances. There were things I just couldn't cope with, or even begin to deal with. But the trick was, that I either knew about them, or learnt the hard way about them and then I could manage my life to avoid them. Because they were things I could live without, without affecting how I appeared to be coping. Things that didn't affect the way I lived, even if they did affect my sense of worth. Because, how broken did you have to be, not to be able to go to crowded events, like a sports match, or a concert? Or to be able to deal with the socialising of a large gathering, or a family event, without having to hide in the kitchen, or forever outside, or break down in a toilet?

It was all part of how I masked myself from myself. The internal masking, as I like to call it. If I couldn't cope, then I was broken. If I couldn't stand something, then I was too picky, or sensitive, or I simply needed to learn to ignore it. And somehow I did learn. I learnt how to cope with noise and smell and visual overwhelm. I learnt to not let things bother me. To a point at least. There was always a step too far, when I couldn't, or didn't have the energy any more to maintain it. And this did take energy, a lot of it. Something I've only realising now that I don't have the energy to spare to even try it. Or the ability to, in many respects now that I know what I was trying so desperately to hide from.

Because when the truth is known, it's far harder to deny it. It's far harder to live the life where appearing to cope, is as good as coping. Where blaming yourself, is easier than seeing others faults. Where ignoring the pain, makes the pain go away. It's hard to see the mask as a benefit and always a good thing, rather than the shield and tool it always was.


Elizabeth3,
@Elizabeth3@toot.community avatar

@pathfinder @TheBreadmonkey @actuallyautistic I echo Kevin and want to explain that the actuallyautistic handle refers to being (or maybe being) autistic as opposed to a parent or care provider of an autistic person. Much as they need support, we need our own space too. It’s not meant as a challenge to people regarding whether or not they’re actually autistic. Also welcome aboard (if it fits). It’s a challenging process but has lots of rewards.

pathfinder, to Autism
@pathfinder@beige.party avatar

@actuallyautistic

Autistic brains be stupid. Well, obviously not stupid, they just seem to work, or not work, in mysterious ways.

The main one that has always got me, about mine, is that I have no memory for sound, absolutely none. I can't remember a song, or a sound. I can't remember what my parents sounded like and none of my memories carry, for want of a better word, a soundtrack. I can remember what I was thinking and what others were saying, but not hearing them say it, nor any other sound. I also don't dream in sound, at least as far as I know. All my dreams are silent.

And yet, and it's a big yet. I have an excellent memory for voices and sounds. Like many autistics I have near perfect pitch, at least when I'm hearing others sing, or music playing. Just don't ask me to reproduce it, because I can't. If I meet someone I haven't met for a while, then I will almost certainly not recognise their face, or remember their name, but there is a very good chance that I will recognise them from their voice. I am also very good at detecting accents. Even the slightest hint of one in, say, an actor pretending to be an american, will get me searching Wikipedian to see if I am right about their actual nationality.

So, if I can tell the sound of a Honda CBR engine two blocks away, or a voice, or an accent buried deep, I must have the memories to compare against. And yet... nope.

So, as I said, autistic brains be stupid.


Elizabeth3,
@Elizabeth3@toot.community avatar

@arisummerland @pathfinder @actuallyautistic I always have a concert going on in my head. It’s not always what people would consider music but I generally enjoy it.sometimes I want it to go away and it won’t but I mostly exist peacefully with the sounds in my head.

purplepadma, to random
@purplepadma@beige.party avatar

We’ve just cancelled our June holiday, we can’t justify the cost with me having no income and Tom’s contract ending. I feel too poorly to be able to look forward to it anyway and I would just be worrying about the money all the time. Everything is a bit rubbish at the moment.

Elizabeth3,
@Elizabeth3@toot.community avatar

@purplepadma sorry, that sounds tough. Staycation? That’s a US term but maybe a holiday at home?

dorgaldir, to Autism Dutch

I feel this so hard. Why can't people just be clear about what they want?
@actuallyautistic

Elizabeth3,
@Elizabeth3@toot.community avatar

@dorgaldir @actuallyautistic why is this wrong

mentallyalex, to random
@mentallyalex@beige.party avatar

Today I woke up before the alarm, does that ever happen to you?

Last night was an early turn-in for me. I had a rather eventful day, and mid-afternoon, so for the evening I watched a documentary and then hit the lights and snoozed off the evening.

It was nice, I hope you were able to enjoy your time.

Elizabeth3,
@Elizabeth3@toot.community avatar

@mentallyalex yes more in the last few years. A restful night makes the day much better!

markwyner, to psychology
@markwyner@mas.to avatar

Oliver Sacks, neurologist and writer:

“In forty years of medical practice, I have found only two types of non-pharmaceutical 'therapy' to be vitally important for patients with chronic neurological diseases: music and gardens.”

Source, Maria Popova:
https://www.themarginalian.org/

More on Oliver:
https://en.wikipedia.org/wiki/Oliver_Sacks

Elizabeth3,
@Elizabeth3@toot.community avatar

@markwyner I benefit from both of those very much

dyani, to actuallyautistic
@dyani@social.coop avatar

Is it rude to conclude that I never want NT friends again?

@actuallyautistic

Elizabeth3,
@Elizabeth3@toot.community avatar

@dyani @actuallyautistic I get it. It’s really hard to relate sometimes and some of them are so sure they’re right.

baldur, to random
@baldur@toot.cafe avatar

Once I realised that quite a few people not only don’t enjoy reading or writing, many actually resent it and consider one, the other, or both to be the biggest chore at work, a lot of things clicked into place about both generative models and how people read

Elizabeth3,
@Elizabeth3@toot.community avatar

@baldur all they seem to want to do is watch videos and talk to each other. About what? Mostly the videos.

DivergentDumpsterPhoenix, to Autism
@DivergentDumpsterPhoenix@disabled.social avatar
Elizabeth3,
@Elizabeth3@toot.community avatar

@DivergentDumpsterPhoenix @neurodiversity @actuallyautistic @autisticadvocacy I hear this but don’t get why it’s so important to people. Is there a backstory?

Alice, to random
@Alice@beige.party avatar

I lost my engagement ring and I'm shopping for a replacement, but I'm overwhelmed because there are so many different kinds and I’m having a hard time choosing between a bellybutton ring or toe ring.

Elizabeth3,
@Elizabeth3@toot.community avatar

@Alice that sounds amazing! Just be careful though not to hang it up on anything ( I can’t suppress my Midwest (US) practicality ).

adhdeanasl, to random
@adhdeanasl@beige.party avatar

Mastodon is my primary social media, and there’s a lot I dig about it. But if there’s one thing I’d like to change, it’s the way people say THIS IS A CRISIS RIGHT NOW AND IT’S THE MAIN CRISIS AND IF YOU DON’T DO SOMETHING ABOUT IT RIGHT NOW YOU’RE BAD AND WRONG!!!

Know what? It’s your crisis. Do what you think is right. Stop judging others for having different priorities, political or otherwise. Quit putting everything in black and white, absolute terms. It’s exhausting, and nobody can live like that.

Elizabeth3,
@Elizabeth3@toot.community avatar

@adhdeanasl I completely agree sometimes lol. Sometimes when I go on my feed, it’s just person after person screaming like you just said. Other times people can be chill. I have had to cull screamers out of my feed multiple times and then there’s a beautiful quiet and people talk about ants or other interesting things.

Elizabeth3,
@Elizabeth3@toot.community avatar

@liztai @Elizabeth3 @adhdeanasl what are cdramas and kdramas?

lifewithtrees, to ADHD
@lifewithtrees@mstdn.social avatar

@actuallyautistic

Travelling for a week for work is exhausting. It leaves me feeling overwhelmed, overstimulated, and burnt out. Like a sponge wrung out.

I get home and am irritable and mean and asking for space to decompress is taken as a personal slight that I don’t like someone, when it’s only that I need to calm my body down and have no expectations on me.

I love this person very much but don’t know how to manage this part of work travel.

What might others do?

Elizabeth3,
@Elizabeth3@toot.community avatar

@lifewithtrees @actuallyautistic maybe don’t put it quite this directly to them. But is there a way that this person could get some of their social needs met while you’re away? Then when you came home and needed some time, it might not feel so hard. Alternatively, or maybe in addition, could you get your downtime needs met at all on the road? Or is that all beyond your control?

sebwhatever, to actuallyautistic

@actuallyautistic

I'm feeling a little low today. What are some things that you folx do to help yourselves out of a funk?

Elizabeth3,
@Elizabeth3@toot.community avatar

@sebwhatever @actuallyautistic had this yesterday. Did as little as possible slept a lot. Feel a little better today

EVDHmn, to actuallyautistic
@EVDHmn@ecoevo.social avatar

@actuallyautistic
A thread

Would you be interested in contributing content or develooment of an online community project?

A brainstorm session to start out. This would be an Neurodivergent for neurodivergent allies and creators to raise awareness.

Here’s why I realized even though I have it tough there are plenty of people out there doing worse. So I’ve been trying to raise awareness locally, so far our semi backwards community is moving forward.

Reply below if interested
Cheers

Elizabeth3,
@Elizabeth3@toot.community avatar

@EVDHmn @actuallyautistic I am interested in a project like this. Please include me.

olena, to ADHD

I find it extremely hard to ask for accommodations (much harder than even asking first help). Like, I don’t want to be perceived as arrogant and entitled, I don’t want to bother other people, I think other people don’t owe me anything, so I kinda don’t feel like I have a right to ask. Like, it’s my problem, I shouldn’t turn it into theirs.
I wonder how other folks feel about that. Do you think it’s something we’ve been taught?
@actuallyautistic

Elizabeth3,
@Elizabeth3@toot.community avatar

@Susan60 @olena @actuallyautistic wow are you in the guest room or the junk room. Guests are an honor.

essie_is_okay, to disability

How did you make a more robust sense of self? How do you know when your sense of self is strong or weak? Interested to hear people's lived experiences.

Years of dissociation and masking makes it hard to feel what is me.

@actuallyautistic

Elizabeth3,
@Elizabeth3@toot.community avatar

@GreenRoc @essie_is_okay @actuallyautistic that makes a lot of sense. 2 is when we separate a little and learn to say no. Not all parents are equipped to support that. Particularly if they weren’t supported when they were that age.

Elizabeth3,
@Elizabeth3@toot.community avatar

@essie_is_okay @actuallyautistic It’s been hard to open up even to my closest people because I’m high masking and lots of dissociation. I first granted myself permission to feel something and not have to act. I could just try to let feelings come. Then I got a lot of therapy (im privileged I could do that but maybe peer support groups would help). Also a supportive spouse who lets me try to be more open. Now even some colleagues I can trust to drop the mask a little.

Elizabeth3,
@Elizabeth3@toot.community avatar

@GreenRoc @essie_is_okay @actuallyautistic that sounds painful and terrifying

ajroach42, to random
@ajroach42@retro.social avatar

When I lived in Maryland, there was a Salvadorian pupuseria a block or so from our apartment.

I would walk down there regularly, and I really loved it. I had never had a pupusa before, and they are very good. There's not a good local place to pick them up in Ellijay.

Recently, my wife found some frozen pupusas at the store. I threw some in our little convection oven earlier, and I'm eating them now, and they are very good.

Elizabeth3,
@Elizabeth3@toot.community avatar

@ajroach42 I know the love of pupusas

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