@ahimsa_pdx@disabled.social
@ahimsa_pdx@disabled.social avatar

ahimsa_pdx

@ahimsa_pdx@disabled.social

Vegetarian, book lover📚 Living with ME/CFS and Dysautonomia since 1990 ♿️ She/Her

Please use #AltText on images/GIFs❤️

Yes, I'd love to see a photo of your cat😻

Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: Trees in a park with green leaves.

Just my posts, no boosts = https://justmytoots.com/@ahimsa_pdx?public_only=true

#MEcfs #PwME #Dysautonomia #POTS #LongCovid #Disability #Accessibility

This profile is from a federated server and may be incomplete. Browse more on the original instance.

ahimsa_pdx, to random
@ahimsa_pdx@disabled.social avatar

I had to go to urgent care earlier today (nothing serious, needed antibiotics for infection).

I'm please to report that the nurse, the doctor, and all the patients I saw (about 8-9?) were wearing masks of some kind. I was pleasantly surprised! 😷😁

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

The two folks at the desk who were checking in patients were not masked. But they were the only two unmasked people that I saw.

StillIRise1963, to random
@StillIRise1963@mastodon.world avatar

My baby is 9 years old today.

Happy Birthday, Bella!🎂 🎈 🥰

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@StillIRise1963 What a cutie! 😍

Happy Birthday! 🎉

ahimsa_pdx, to wildlife
@ahimsa_pdx@disabled.social avatar

"Kittens or puppies? Animals left at shelter turned out to be foxes — again"

Gift link:

https://wapo.st/3QV0IyH

"It’s the latest case of someone mistaking wild baby animals such as coyotes or bobcats for abandoned domestic pets."

"It’s a sad situation — the best thing would have been for the person to wait to see if mom came back, and if she didn’t, then call us"

paul, to GenX
@paul@oldfriends.live avatar

The Golden Age of K-Mart

Before the days of "Super Kmarts" and "Big Ks," there was just Kmart.

The first Kmart was opened in 1962, and by the mid-1970s, we were all shopping there.

Revisit the days of Blue Light Specials, Kmart Cafeterias, and random wood-veneered merchandise scattered in aisles throughout the store.

Stick around for the musical montage featuring two unforgettable K-mart jingles complete with in-store announcements

flashback

https://www.youtube.com/watch?v=yjPyvoAx6qc

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@paul
Yeah, my family went there a lot! Here's one of their TV / radio jingles (from memory, so it may be off a bit):

Kmart is your savings store,
Where your dollar buys you more,
They give your dreams a helping hand,
at Kmart stores they understand.
Kmart is the saving <pause> place!

EDIT: Found this older recording. It doesn't have the middle lines. My memory is probably from an ad played in the 70s or early 80s.

https://www.youtube.com/watch?v=RmGBldalI80

ahimsa_pdx, to Birds
@ahimsa_pdx@disabled.social avatar

From PBS:

"Amy Tan turns her literary gaze on the world of birds in ‘The Backyard Bird Chronicles’ "

https://www.pbs.org/newshour/show/amy-tan-turns-her-literary-gaze-on-the-world-of-birds-in-the-backyard-bird-chronicles

Video (about 7 1/2 minutes) and transcript.

skeletor, to random
@skeletor@mas.to avatar
ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@skeletor I needed this today! 😁

futurebird, to random
@futurebird@sauropods.win avatar

Are you living in your home or apartment, living your own life...

OR

...do you run a bed and breakfast for your cat?

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@futurebird
I remember being the staff of my cat B&B as well as the furniture! 😁
(she was a lap cat)

MostlyHarmless, to random
@MostlyHarmless@thecanadian.social avatar

All you seniors posting about how you survived lead paint, no seatbelts, no helmets etc… I’m very happy for you. Would love to hear sometime from those who didn’t, but for some reason their posts don’t show up on my feed.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@MostlyHarmless
My brother was almost a statistic from the "no helmets on bikes" era.

He lost control on a big hill, crashed into mailbox head first, and needed surgery to remove small pieces of bone pushing on his brain. (bad summary, I'm not a doctor)

He came out of surgery okay but it was lucky that nothing worse happened.

Folks who say "I did just fine without helmets/seat belts/etc" have clearly never read anything about survivorship bias.

Matthew2468, to random

Hi everyone. How you doing? Hope all is well.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@Matthew2468 Hi 👋

It's not a very good day for me, but I'll give my standard reply: "It could be worse!"

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

From Jaime Seltzer:

"’s narrative activity study with Mayo Clinic opens today! We’re looking for people with ME/CFS or Long COVID with PEM to share their experiences.

The survey will be open from 5/24/2024 to 6/23/2024."

Long survey (estimate says 20-90 minutes?) but you can do it in sections and come back.

https://surveys.mayoclinic.org/jfe/form/SV_2auWxMckjo7s04u

1/n

@longcovid @mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

This study is worldwide.

Anyone who meets these three conditions can complete the survey:

  • 18+ yo
  • Have ME/CFS and/or Long COVID
  • Have tried symptom contingent pacing as an activity management strategy

https://surveys.mayoclinic.org/jfe/form/SV_2auWxMckjo7s04u

2/n

@longcovid @mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

From the survey consent page:

"If you have specific questions about the study, you may reach out to the study contacts via email at pacingnarrative@meaction.net.

If you have any concerns, complaints, or general questions about research or your rights as a participant, please contact the Mayo Institutional Review Board (IRB) to speak to someone independent of the research team at 507-266-4000 or toll free at 866-273-4681."

3/n

@longcovid @mecfs

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

Source (post on Bluesky):

https://bsky.app/profile/exceedhergrasp1.bsky.social/post/3ktapu6o3bc2e

But there might be a news item about it on the website later?

I'll try to remember to come back to this thread if they post anything.

4/4

@longcovid @mecfs

Dianora, to mastodon
@Dianora@ottawa.place avatar

I had given up on pleading for more alt-text but I'll try again!

Please add alt-text to your photos/pictures it only takes a minute and does not have to be fancy. My policy is not to boost images without alt-text and I am not the only one.

This is one of the cultural things I like about Mastodon, the inclusiveness. Please don't ruin it.

-Text

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@Dianora FYI, hyphens don't work in hashtags

Adding here, in this reply, in the hope that more folks who follow that tag will find your post 😊

littlemiao, to Cats
@littlemiao@babka.social avatar

The cutest? Yes or yes

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@littlemiao
The cuteness has exceeded the legal limit! 😻

(Apparently Google is now returning bad info from jokes, satire from The Onion, and who knows what else when you use their AI search engine. This is one of the funny but harmless errors.)

ahimsa_pdx, to oregon
@ahimsa_pdx@disabled.social avatar

"Multnomah County retracts claim that overdoses led to lower cardiac arrest survival rates in 2023"

https://www.opb.org/article/2024/05/22/multnomah-county-retracts-claim-overdoses-caused-lower-2023-cardiac-arrest-survival-rates/

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

" Scotland publishes impact statement"

https://www.meaction.net/2024/05/23/meaction-scotland-publishes-impact-statement/

" Scotland is pleased to publish our impact statement, which covers March 2022 to May 23. It reports on our work to campaign for effective support, create stronger advocates and raise awareness."

Full statement here:

https://www.meaction.net/wp-content/uploads/2024/05/Copy-of-MEAction-Scotland-Impact-Statement-22-23_final.pdf

@mecfs

timbray, (edited ) to random
@timbray@cosocial.ca avatar

Do you know someone with significant quality-of-life problems due to Long Covid?

Boosts appreciated.

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@timbray I know some online but not in person. I do have a few in person friends who have ME/CFS.

ME/CFS is often post-viral. My own case was and I'm now on long term disability. About half of Long Covid cases meet the ME/CFS diagnostic criteria.

ahimsa_pdx, to oregon
@ahimsa_pdx@disabled.social avatar

I love the end of this story about yesterday's power outage caused by a beaver:

More important still, Gutierrez confirmed that “the beaver was okay.”

https://www.oregonlive.com/crime/2024/05/beaver-causes-power-outage-in-ne-portland-overcoming-safeguards-against-wildlife-interference.html

ahimsa_pdx, to disability
@ahimsa_pdx@disabled.social avatar

From The Sick Times:

"How to make spaces more accessible during the continuing pandemic"

https://thesicktimes.org/2024/05/23/how-to-make-spaces-more-accessible-during-the-continuing-pandemic/

"A blueprint for radical inclusion and living a full, safer life within the context of Covid-19 exists.

Many mutual aid groups and initiatives advocating for clean air and continued Covid-19 safety are emerging all over the world using technology and layers of protection to help mitigate the spread of viruses."

ahimsa_pdx, to mecfs
@ahimsa_pdx@disabled.social avatar

"Long COVID advocates hammer Biden over ‘minimal funding’ in budget request"

https://thehill.com/policy/healthcare/4682533-long-covid-advocates-hammer-biden-over-minimal-funding-in-budget-request/

"According to a Centers for Disease Control (CDC) report from September of last year, around 18 million adults reported dealing with long COVID as of 2022."

@longcovid

x00001, to random
@x00001@corteximplant.com avatar

The digital seas be brimming with swashbuckling Alt Textless treasure just waiting to be discovered! 🌊🏴‍☠️⚓️

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@x00001 Love this mug!

Also, I absolutely support "piracy" if it means taking images posted with no description and re-posting them with alt text! 🏴‍☠️

ayoub, to random
@ayoub@spore.social avatar

So what do you call this level of hatred? This fanatical desire to annihilate an entire civilisation?

Image description: Israeli occupation soldiers set fire to Gaza’s Al Aqsa University library and took photos of themselves doing it

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@ayoub I saw another news item today:

"CAIR Says Videos of Israeli Soldiers Burning Quran, Library in Gaza are Further Evidence of Genocide"

https://www.cair.com/press_releases/cair-says-videos-of-israeli-soldiers-burning-quran-library-in-gaza-are-further-evidence-of-genocide/

emily_rj, to mecfs Spanish
@emily_rj@disabled.social avatar

LMNT’s electrolyte sparking waters are my new fav, like many with who are bulk electrolyte salt subscribers they sent me a free 8-pack, Black Cherry Lime is the best IMO, tastes like Sonic’s famous cherry limeades, unpaid recommendation! What’s yours? 🍒🍋‍🟩

Trying to balance weight from a necessary high sodium diet (with lymphedema from , and disability exercise barriers) is tough

I may experiment with more sparkling water and less salts, see where it gets me!

ahimsa_pdx,
@ahimsa_pdx@disabled.social avatar

@emily_rj I missed this earlier (I often miss notifications)!

Thanks for the explanation 😁

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