@trendless@zeroes.ca
@trendless@zeroes.ca avatar

trendless

@trendless@zeroes.ca

Following those who have experience w/ chronic illness, those who are keeping up with the literature, and those sacrificing to keep us all safe; wearing P100 respiratory PPE, pursuing personal zero SARS-CoV-2

This profile is from a federated server and may be incomplete. Browse more on the original instance.

inquiline, (edited ) to random
@inquiline@union.place avatar

USians, please sign this letter!!

(instructions are given for non-experts as well as expert signatories, keep clicking thru!)

Public Health Experts Urge CDC’s Advisory Committee on Healthcare Infection Control Practices (HICPAC) to Follow
the Science and Protect Health Care Workers and Patients

https://drive.google.com/file/d/1mucFG68ac158tc0_JG4NjpDdwWUVJrAz/view

(transmitted by Jane Thomason,
Lead Industrial Hygienist, Health and Safety Division, National Nurses United)

trendless, (edited ) to random
@trendless@zeroes.ca avatar

Client: "Will you mask for me?"

Service Provider: "I'm not required to."

What hath public health wrought?

hannu_ikonen,
@hannu_ikonen@zeroes.ca avatar

@trendless "I shouldn't have to force you to wash your hands after you wipe your ass before serving me."

Only appropriate reply.

inquiline, to random
@inquiline@union.place avatar

A real mic-drop from @johnsnowproject

"The social, economic and public health costs of maintaining the fiction that we can live normally by ignoring COVID-19 are simply too high for this “business as usual” situation to continue and the rate of attrition is too high for this to be sustainable.

This absurd pretense cannot continue. Many people already know it in their hearts. But who will be the leader brave enough to say it?"

https://johnsnowproject.org/insights/where-are-our-leaders/

phil_stevens, to random
@phil_stevens@mastodon.nz avatar

Memo to eugenics death cultist David Seymour: The pandemic has not "largely subsided" and we reserve the right to keep kids home from schools where the risk management protocols are unacceptably low.

Normalise masking and fund air filtration, you ghoul.

ALoneMasker, to random
@ALoneMasker@zeroes.ca avatar

Anyone knows how to schedule an appointment for novavax in Montreal? I can't find useful information on quebec.ca, and https://portal3.clicsante.ca/ doesn't seem to advertise it either.

PacificNic, to random
@PacificNic@zeroes.ca avatar

There's a common pattern people follow as they abandon COVID-caution.

  1. They start attending more risky events.
  2. They may or may it catch COVID from attending said events.
  3. They start talking about "balance" and mental health as if caution and mental health are incompatible.
  4. They start blaming NOVIDs for their own choice to protect themselves until recently, claiming the NOVIDs made them do it and that it "destroyed" their mental health.
  5. They project onto NOVIDs, saying they are hopelessly unhappy and nobody could possibly live like that and be mentally well. Often this is where the mental illness accusations come in.
  6. They get angry that people call them out on their minimization.
  7. They completely abandon precaution, often while harboring resentment and hostility towards NOVIDs.

The next step is where they get mad we "didn't warn them".

axbom, to random
@axbom@axbom.me avatar

Not gonna lie. I tried out Threads for a couple of months to get my own grasp of what it's about. The FOMO can be strong in me.

My personal conclusion is that it can't hold a candle to the Fediverse. It was a novelty for a week or two but once again the algorithm just messes everything up, wanting to "predict" and control what I should be paying attention to.

I've also (again) realised that this right here is where my peeps are, and that is likely the most important aspect of all.

So very happy and thankful for everyone who chooses the fediverse.

I truly doubt that Threads federating with ActivityPub is a good thing – the underlying raison d'être is just very different.

nikink, to random
@nikink@aus.social avatar

Got called a "radical leftist conspiracy nut" at work today.

As if caring about other people and public health during a pandemic was somehow a bad thing?

broadwaybabyto, to disability
@broadwaybabyto@zeroes.ca avatar

Awhile back I went to a specialist for unexplained & painful lower leg swelling. His diagnosis?

“Maybe your legs are just getting fat.”

Horrified…I asked how many people gain weight ONLY in their calves. He shrugged me off. A 🧵 on knowing your body & advocating for care

This doctor did NO tests before deciding it was weight gain. Wouldn’t discuss it with me further & wouldn’t permit me a second opinion. I went home completely dejected and also worried because I KNEW something was wrong.

For the next few days I elevated my legs as much as possible and tried to gently massage them to see if it helped. They just kept getting bigger. Eventually they started weeping (fluid was seeping out of my skin) and my ankles were dislocating from the pressure.

So I went to the ER. I was actually nervous about going because I could only imagine what that doctor had put in my chart. Thankfully I had a doctor who took the swelling very seriously and ordered a wide range of tests (and immediately put me on bed rest to protect my ankles)

Turns out it was a combination of third spacing from my MCAS (when the fluid doesn’t stay in the vascular system & leaks out into the tissues - can be a big issue if you have POTS as well) and low albumin. Dangerously low albumin.

Needless to say I was suffering from malnutrition due to my extensive GI issues and that was causing the swelling. It most definitely wasn’t weight gain. I was underweight with the exception of my legs.

I never knew that low albumin could cause painful swelling like that - nor did I even think that I was suffering from malnutrition. But with both POTS & MCAS it makes sense.

Our digestive systems are controlled by the autonomic nervous system (the system malfunctioning when you have POTS) so it’s not uncommon to experience vomiting, diarrhea & other gastric complaints.

MCAS only compounds the issue by limiting the foods you can tolerate and also causing vomiting and diarrhea. The two conditions make getting adequate nutrition a challenge - especially if you’re on the severe end of the spectrum

I’m very grateful to the doctor who figured it out and helped me get homecare so I could get proper nutrition & stay off my feet while the swelling was at its worst. But it took a LOT of courage to go to the ER after being so rudely dismissed.

This is a lesson in the importance of knowing your own body & having an advocate with you whenever possible. I KNEW something serious was wrong but I had no one with me to challenge the first dismissive doctor. And he was completely unwilling to listen to me.

Don’t ever feel like you can’t get a second opinion or go to a different hospital if you feel you aren’t being taken seriously. And don’t ever apologize for advocating for your health. If you don’t have someone who can go with you - try & phone or video a friend.

Lastly can we please start listening more to patients? We know our bodies best and when you dismiss us it causes not only physical damage - but emotional damage too. You make it harder for us to seek care in the future.

Patients shouldn’t be dismissed without any tests being run. Had I not gone to the ER I could have ended up with life threatening cardiac issues from the electrolyte & fluid imbalance. A simple lab test would have confirmed the diagnosis had the first doctor cared to do them.

This experience was also an excellent reminder of the far reaching effects of dysautonomia & MCAS. It’s important to be as educated as possible in these conditions & the strange downstream complications they can cause.

And remember dismissal & gaslighting is often far worse for marginalized individuals. There’s a LOT of bias in medicine. If you’re someone in a position of privilege please call it out when you see it - and offer to be an ally to those who need support. Allies save lives

18+ trendless, to random
@trendless@zeroes.ca avatar
18+ KatM,
@KatM@mastodon.social avatar

@trendless

Good grief, . Haven’t you had enough yet?

@PacificNic

Geoffberner, to politics
@Geoffberner@zeroes.ca avatar

Anybody out there know if there's scientific work that's been done on human disease-seeking behavior? At this point, I feel drawn to describe the over-culture's attitude towards Covid and public health in general as not just a failure to take precautions, but disease-seeking. Maybe there are discoverable insights into how human disease-seeking behavior works? Maybe that knowledge might help us turn things around?

elana,
@elana@babka.social avatar

@Geoffberner I don't know if you've seen this essay, but it's by a social psychologist and it is super comprehensive about all the cognitive biases that lead people down the road of covid denialism—and the resultant group enforcement of that shared ideology, which would lead to public demonstrations of adherence to that creed, which sounds a lot like disease-seeking behaviour. It's a wonderful essay that pulled me out of a depression in 2022. https://essaysyoudidntwanttoread.home.blog/2022/10/09/why-do-they-think-that/

giflian, to random
@giflian@techhub.social avatar

For anyone in the Vancouver area who's still coviding: masks4eastvan has a (literal?) ton of free masks and rapid tests they need to get rid of. Over 100k masks!

Safemask Architect Pro N95 masks
Artron rapid tests

https://www.instagram.com/p/C5PnE5bra52/?igsh=M3FwYXFjbGZyeXo1

currentbias, to random
@currentbias@open-source-eschaton.net avatar

Remember to remember, because you are expected to forget

RyChaz, to nz
@RyChaz@mastodon.nz avatar

I'm posting this especially for those thinking Covid-19 isn't an issue anymore.

A family member due to start a new healthcare job today, got there but started coughing in the night and felt fluey on arriving ... tested positive after buying a test... now home and looks as pale as a ghost.
I await my results as I write.

My 'always robust', 'no health problems' mother had it 2 months ago. She now can't get decent sleep because of terrible burning nerve sensations in feet.

hannu_ikonen, to random
@hannu_ikonen@zeroes.ca avatar

Imagine living in a world where just more than one Airman was on hunger strike until Gaza aid is restored.

Imagine how quickly the house of cards would fall against inaction & complicity.

ThunderHoneySnow, to random
@ThunderHoneySnow@mas.to avatar

Took some time this afternoon to organize my Covid-19 articles document, read the articles cued up in my tabs, & send an article on the intersection of disability justice & Covid-19 policy/attitudes to the folks who ask me if I will be masking forever.

I want a future where we protect everyone's health & safety. If that's something that you want, match your politics with real actions & mask up. You do you is eugenics.

#Covid19 #DisabilityJustice #PublicHealth #CovidIsNotOver #MaskUp

jmcrookston, to random
@jmcrookston@mastodon.social avatar

Peoples, please!

Stop fretting about avian flu. It's just a COVID.

kdnyhan, to random
@kdnyhan@social.esmarconf.org avatar

Surprised in a good way to see members writing a joint consensus statement with AIHA members: "Public Health Experts Urge CDC’s Advisory Committee to Follow the Science and Protect Health Care Workers and Patients"
If you want to read or sign (deadline April 12): https://forms.gle/1s4neNoXFKUrThvh6

PacificNic, to random
@PacificNic@zeroes.ca avatar

People really want a safe space for rationalizing unsafe behaviour in an airborne, disabling pandemic and they get very upset when you don't give them it.

Frieke72, to longcovid
@Frieke72@mastodon.social avatar

Great article on progress in research on , driven and aided by patients. Medicines already used now in trails
@longcovid https://www.nature.com/articles/d41586-024-00901-3?utm_medium=Social&utm_campaign=nature&utm_source=Twitter#Echobox=1712057083

ThunderHoneySnow, to random
@ThunderHoneySnow@mas.to avatar
Brad, to random
@Brad@zeroes.ca avatar

April 1, 2024- “Recent research indicates a significant connection between iron levels, inflammation, and the emergence of long COVID following SARS-CoV-2 infection. It has been observed that defects in iron homeostasis, dysregulated erythropoiesis, and immune dysfunction due to COVID-19 may contribute to inefficient oxygen transport, inflammatory imbalances, and persisting symptomatology. “-https://www.geneonline.com/iron-dysregulation-linked-to-long-covid-outcomes/

craig_groeschel, to Depression
@craig_groeschel@zeroes.ca avatar

"psychological trauma can induce dysregulation of immune processes, leading to physiological symptoms"

Thread (LW on the Nazi hellsite): https://twitter.com/nickanderegg/status/1774903235880391149

Paper: https://www.nature.com/articles/s41598-024-57350-1

And the second paper he reviewed is even more interesting:
"let's admire how strongly they're calling bullshit!"
https://www.sciencedirect.com/science/article/pii/S0165032724001642

calopteryx, to random
@calopteryx@mas.to avatar

hello! Migrated to new instance, so re-tooting an .

passionate about lots of things, including social justice, public health, and beautiful insects (and I think all insects are beautiful). I love music, books, photography and swimming in natural water bodies.

I'm an under-employed millennial woman living in the US, but I try to stay positive regardless 😉

My posts may center around

nice to meet you! 🌷

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