BZBrainz, to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic
I had an interesting conversation with a good friend about states that require diagnosis of to be registered with the state and the future implications this could have paired with laws that restrict access to care for people. I’m only familiar with a couple of states that require registration and that’s New Jersey and North Dakota.

twipped, to random
@twipped@twipped.social avatar

I don’t wear hats, but I feel that as the author of the GDB I am well within my rights to demand this on a shirt https://sharkrobot.com/products/asdf-trans-pride-snapback

seawall, to ADHD
@seawall@mastodon.nz avatar

How does one go about screening and hiring new carers? We've never asked anyone who Flip didn't already know well to help at home or watch him while we go out, and all but one of them still live back in Wellington.

I'm nervous about the prospect, and while R likes visitors, separation transitions are touchy; it was often an anxious time even when we went out and left him with friends for a few hours on weekends.

Halp?

BZBrainz, to queer
@BZBrainz@mastodonbooks.net avatar

TW: homophobia

I wanted to share a couple of the violent and homophobic responses I received after talking about my spouse of 20 years. We are an Out, Queer, Neurodivergent couple—this will not be the first or the last time I receive comments like this. This sort of behavior is not acceptable and the community should be aware of these screen names. #queer #lgbtqia #pride #autistic #adhd

@lgbtqia @actuallyautistic

magicalgrrrl, to queer

My queer platonic partner Luke and I are both trans, neurodivergent, and disabled. We are currently homeless and living out of our van with our two cats.

We are in need of mutual aid donations to help us be able to afford food, gas, and other necessities, along with our phone bill on the 4th of $100.

My CashApp and Venmo links (handles:$magicalgrrrl/@magicalgrrrl respectively) and Luke's PayPal (@LouieSJ) are in my linktree: https://linktr.ee/magicalgrrrl

Please help a couple of homeless queers survive during month
🥺🏳️‍⚧️🏳️‍🌈

@mutualaid

joshsusser, to random

I'm trying to put together a short list of the basic concepts that are essential to understanding the experience of life. These can be helpful for explaining things to allistics/neurotypicals, but also for seeing ourselves from our own perspective instead of how we are failed NTs. I think it's just a few (albeit big) concepts. Here's my basic list:

Do you have your own short list of concepts for understanding or explaining ? What are the big ideas that shape your experience of life?

ProPublica, to random
@ProPublica@newsie.social avatar

Feds Say Deputies in Louisiana May Have Violated Law in Death of Autistic Teen

Officers sat on the 16-year-old’s back for nine minutes before he died. They claim they needed to do so because he posed a threat.

https://www.propublica.org/article/feds-say-jefferson-parish-deputies-may-have-violated-law-eric-parsa-death?utm_medium=social&utm_source=mastodon&utm_campaign=mastodon-post

DivergentDumpsterPhoenix, to autisticadvocacy
@DivergentDumpsterPhoenix@disabled.social avatar

"Mental health services that lack competence are dangerous.

Autistic people need support that won't make them worse."

Campaigning to be seen by services is the start.

Services like are horrendously undersigned at supporting people.

We need to continue to fight to make sure that these services do more than pay lip service.

Autistic people deserve good quality support.

https://emergentdivergence.com/2023/05/29/creating-autistic-suffering-camhs-kills-kids/

@actuallyautistic @autisticadvocacy

rabia_elizabeth, to actuallyautistic

'I asked people one question: Who are you?

Almost unilaterally, non-autistic people began describing themselves in terms of their relationships to others– if they were a parent, a spouse, what their career was, where they lived, what their religion is, and what their roles were related to others (sister to a Senator, military brat, pastor’s wife, soccer mom, etc.).

And, almost unilaterally, people described themselves as what they loved to do, what their values were, and what they had experienced. Many even said this, having intuited the basis of the theory. Among the answers were, “I am a verb,” or “I am what I love,” or “Who I am is what I do.” Autistics would answer, “Lover of Justice,” or “Dreamer,” or “One who values autonomy.” Some would describe themselves as a “lover of” or “obsessed with” an intense passion, like trains, lichen and fungi, or theoretical physics and black holes.'

@actuallyautistic

https://neuroclastic.com/the-identity-theory-of-autism-how-autistic-identity-is-experienced-differently/

ClaireCopperman, to random

What a beautiful, wise and heartfelt article by Holly Smale on why people can find it so difficult to date. It's a minefield for NTs; add the stress of masking and the fear of showing who you "really" are, and it's easy to see why many people give up. Big love to Holly and to every person finds it hard to find "the one" ❤️

ps - I wouldn't normally link to the Mail, but I thought the article's worth it!

'Now I know why love has always eluded me' https://www.dailymail.co.uk/femail/relationships/article-12117113/Now-know-love-eluded-me.html?ito=native_share_article-nativemenubutton

stevesilberman, to random
@stevesilberman@newsie.social avatar

SUPER important documentary about a non-speaking #autistic young woman who was written off by society, but then found her own voice and path with the help of Augmentative and Alternative Communication. #AAC Now on Apple TV. https://tv.apple.com/us/movie/this-is-not-about-me/umc.cmc.6we46wmsv0spskm6bydjvk0w0

jaden, to fediverse

Hallo! I’m trying to get a bit more social interaction in my life, so here I am writing an post on . :moogle_peek:​

I’m Jaden (though I go by different names in different circles :bulbasaur_confused:​). I have a silly potato (@nuz) and a silly sausage (). I’m fairly socially awkward, a bit and very . :ms_neurodiversity:​​ Sometimes I say very little and sometimes I say a whole heck of a lot, depending on the topic. I’ll probably be posting random facts or videos that I find particularly cool/amusing~ :cat_wow:​

I love science (and have a PhD in , but was it really worth it? :frog_think:​) and maker videos that try to bring comic books and fiction to life (shoutout to and , amazing folks)! I also really love technology (in particular, I really like / , although I know he can be a bit problematic :shiba_hide:​).

I'm also an avid video gamer! :gaming_love:​​ I play a lot of , , and games. Some of the ones that I've really enjoyed and/or played recently are:

:robot_headpats:​​ (love Coffee Stain​ Studios!) / /
:ms_eastern_dragon:​ / /
:ms_scene_milky_way:​ / (if only it wasn't so laggy :dva_rage:​)
:ms_scene_sunrise:​ / / /
:ms_globe:​​ / / /
:ms_crossed_flags:​ / / /
:ms_dice_12:​​​ / /

Feel free to say hello, boost, follow, or any combo of the above! I'd love to make new friends on here, but I feel awkward a lot, so I might just end up favoriting your posts if I can't figure out what to say :panda_derp: (but I appreciate you nonetheless! :blob_heart:​)

atomicpoet, to fediverse

First off, @evan sees this from the perspective of someone who's co-authored . It's his job to spur and enable adoption -- and that's something he's done exceptionally well for 20 years. Of course he wants to help Meta abide by open standards. Which, even if you dislike Meta, you would hope they would do.

My perspective is as one who is building products that compete with Meta. Ideally, I would like people who use Meta to migrate away from there and instead use , , and the numerous options available on .

But even from the perspective of a competitor, I want interoperability with . And even more, I want interoperability based on open standards.

Yes, yes, yes -- "embrace, extend, extinguish". At this point, that phrase is a broken record.

But every time that phrase comes up, I keep asking folks: when has the "extinguish" part of "embrace, extend, extinguish" ever worked?

People say , but RSS is still here and I use it every day. Hell, Calckey even has an RSS widget and it works like a charm. RSS is not extinguished.

People also say , but I can run an XMPP server right now -- no problems. People say XMPP "died" because it's no longer as popular now, but is it because Meta and Google dropped support, or is it because Slack, Discord, Signal, WhatsApp, and even Matrix have come along to eclipse it in popularity? Regardless, even if XMPP is no longer so popular, it's not extinguished.

The most ludicrous example of "extinguish" people bring up is Gmail's dominance of email. But email is the most popular communications technology we have today, even though it's 50 years old. What's more, look at the raw stats. Gmail is only 18% of the email server market -- that's no monopoly. Go have a look at the stats for yourselves:

https://w3techs.com/technologies/overview/email_server

Suffice it to say, email is not "extinguished".

The pessimistic notion that we will "lose" by allowing Meta to interoperate with ActivityPub -- again, an open standard -- just doesn't convince me. In fact, if Meta is adopting standard ActivityPub, I think "losing" is impossible.

With Meta adopting ActivityPub, we're not losing. We're winning. We're not conceding to Meta by adopting their proprietary APIs for interoperability. They're conceding to us by adopting ActivityPub.

Again, I'm not saying you should all federate with . I'm saying that Meta adopting an open standard that allows for interoperability is a win because, remember, they're adopting our standard. We're not adopting theirs.

Some also ask, "But what if Meta does a bait-and-switch and drops ActivityPub support?"

Well, there's kind of precedence for that.

Not enough people realize this, but Google once adopted the predecessor of ActivityPub. Specifically, they used OStatus for Google Buzz. Certainly, like many Google products, Google Buzz shuttered.

But the development for an open social media protocol lived on, and we all use what was developed right now.

No doubt, if Barcelona becomes Meta's Google Buzz, ActivityPub will live on. It will still be developed. We'll keep using it.

In the meantime, I'll consider ways to help Meta users migrate to platforms that I believe are better.

RE: https://calckey.social/notes/9f9xt5dzh2

youronlyone,
@youronlyone@c.im avatar

@atomicpoet

This: (probably a lil bit off-topic)

> Of course he wants to help Meta abide by open standards. Which, even if you dislike Meta, you would hope they would do.

I mentioned it before, this is the disconnect between the (2008–2015) and (2016–Present) users.

Us, 1st Gen, our concern is to bring the down the walls and enable a decentralised and federated . The idea itself is older than the fediverse, there were many names involved and who pioneered the pushed for it and are now forgotten.

Even me, to this day, I do welcome them federating even if they already did something EEE-like before (for example, FB Messenger federating and then defederating from ).

While I do want people to migrate over to a fediverse service made for it by developers who believes in it, the main goal is still to bring down the walls, and get them to federate … permanently.

It's why I also I welcome and into the fold (and waiting for them to do so).

And for someone like me who was banned from for no reason at all other than because I am (I rarely use my Instagram, and when I do, it was to upload a work of mine, so clearly there were no violations), having them federate would enable me to communicate with Instagram users once again.

[[Meta]] [[Fediverse]] [[SocialWeb]] [[ActivityPub]]

@evan @youronlyone

DivergentDumpsterPhoenix, to bookstodon
@DivergentDumpsterPhoenix@disabled.social avatar

Please tell people about this, it really helps me out!

My book "The New Normal: Autistic musings on the threat of a broken society" is currently available on kindle on the UK and US for ⅓ of it's usual price.

You can use the links below to get it. If not, a share is appreciated.

US Link https://a.co/d/e1DuZrd

UK link https://amzn.eu/d/8ikPYke

@actuallyautistic @autisticadvocacy @bookstodon

DivergentDumpsterPhoenix, to autisticadvocacy
@DivergentDumpsterPhoenix@disabled.social avatar

professionals are notoriously unskilled at working with children.

There answer? To refuse to support them.

This is not okay, Autistic children are significantly more likely than their non-Autistic peers to need CAMHS.

Read more here https://emergentdivergence.com/2023/05/27/why-is-it-so-important-for-camhs-to-support-autistic-children/

@actuallyautistic @autisticadvocacy

orangegoldgreen, (edited ) to ADHD

idea: meeting for quiet people who were reprimanded a few hundred too many times for being "rude" as a child, and as a result are terrified of conversations.

@autistics @actuallyadhd

DivergentDumpsterPhoenix, to ADHD
@DivergentDumpsterPhoenix@disabled.social avatar
BZBrainz, to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic

I find the conversation around autism awareness versus autism acceptance interesting. I'm still mulling it over, trying to understand why they are presented as opposing views. I feel like awareness is at one end of the continuum, with acceptance on the other. You do not always have to understand something to respect it, but you need to know it exists to accept and appreciate it with intention. Do you have any thoughts on this?

Private
neurotypeprog,

@theautisticcoach @actuallyautistic @actuallyautistics

Do you think that your shutdown could be controlled in any way?

Like a "controlled shutdown"? (I probably don't know what I'm talking about since many things in the community I still don't know about...it's been at least more than 10 years being diagnosed and ie. I still don't completely understand what a is and I think I've began grasping some things in me that I could think of as "")

rabia_elizabeth, to actuallyautistic

Any folks in the Fediverse? Would love to chat about that intersection of identities.

@actuallyautistic

stevesilberman, to random
@stevesilberman@newsie.social avatar

Good news: TV naturalist Chris Packham wins libel suit against online magazine that falsely accused him of fraud and "playing the Asperger's victim card." https://www.independent.co.uk/news/uk/crime/chris-packham-high-court-justice-royal-courts-of-justice-covid-b2345878.html?utm_term=Autofeed&utm_medium=Social&utm_source=Twitter#Echobox=1685028617

StuartDNeilson, to random
@StuartDNeilson@mastodon.social avatar

naturalist Chris Packham has won a libel case against Country Squire Magazine. They were one small part of vicious internet trolling and print harassment of Chris for his outspoken statements in defence of the environment and wildlife.
https://www.theguardian.com/uk-news/2023/may/25/chris-packham-wins-libel-claim-against-website-that-accused-him-of-lying

Hare, to animals

The owner just came to our room and wants $500 by tonight??

Idk how the fuck were supposed to manage that, but we have to do our best to keep him off our ass or he’ll give us another eviction notice. 😭

Hare,

Idk what they expect, but we have nothing and we're both too sick to crowdfund, so I guess we’re getting evicted.

They’re expecting $500 in the next HOUR, and we have $0.

Hare,

Thank you so much for the $25 and $100 donations for shelter!!! 💖

Can anyone match either of these? 🙏🏻

After rent our most urgent goals are our pain, psych, & seizure meds ($200 for both of ours), groceries ($100), our storage unit + late fees ($100), and our phone bill ($55)! 😟

Please keep boosting, y'all rock, thank you so much!!! 🥺

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