Just a shout out of gratitude to the wonderful open source coders that make it possible for me to publish the (also wonderful) Verity Red books of Maria Mann and produce the artwork for my own music releases too. Bravo! Bravissimo!!
My (physician) husband read an article last night about a medication that’s been around for decades and used to treat #MyastheniaGravis, but is now being looked into to treat #ME / #CFS. It gives a person energy. Can you believe it? Not feeling so damn fatigued all the time?
Warum Zeitmanagement bei mir an Arbeitstagen einfach nicht funktioniert will ich bitte mal wissen. Und wie soll man überhaupt all so Dinge wie vorher duschen, kochen, Haushalt, und im besten Fall auch noch was für sich tun, schaffen, wenn die spoons für den Tag eigentlich nicht mal komplett für die Arbeit ausreichen. #spoonielife#chronicfatigue
I can't bind because of chronic pain, and trans tape isn't holding my tits because it's heavy, I can't do surgery either because it takes more than morphine for me to not suffer, what should I do? I'm lost.
I'm really thankful to the person who bought me a box of 30 packets of Maggi noodles. Having them available to eat when #PEM hit me means that I don't have to find the energy to get to the shops sooner - cos I've been caught low on groceries atm. Hopefully I'll have my mojo back tomorrow or Thursday and can stock up a bit more then. Thanks for your kind support. #chronicillness#chronicfatigue#fibromyalgia#disability#NEISvoid
We should have known. It took a deadly pandemic to wake us all up.
This view of #ViralIllnesses and their potential long-term impacts may lead to research that will also help people with other little understood conditions, such as #ChronicFatigue syndrome and #fibromyalgia, which experts believe might be triggered by viral infections, Al-Aly said. #COVID
Living with #ChronicFatigue means doing all you can to "save" what little energy you have. You have to very carefully choose what you do, knowing that any little thing can wipe you out completely.
I spend my days just sitting, and waiting until I absolutely HAVE to do something, because I cannot "waste" my energy doing things I WANT to do.
Just slept for eleven hours in a row, and now I'm finally feeling reasonably rested after the past week's assorted mishegas. Sometimes the urge to sleep a whole lot is pure and simple exhaustion, totally aside from any depression going on (and depression is exhausting too, TBH), so I've slowly learned to give myself permission to sleep long and not further upset myself by worrying about it.
Y'all ever recover from a nasty #PainFlare or whatever, and feel so good that you fuck yourself by overdoing shit?
Friday night, Hannity the #KidneyStone finally settled into his current home; I did THREE whole chores, then on Sat I picked up a shift at work.
Now I'm paying for my ambition and spending Sunday in bed. I'm bummed - we were gonna have SNACKS at the mid-morning #FriendsMeeting before worship & share our #Convincement stories.
Currently accepting applications for Co-Resting cohorts beginning during the first two weeks of April
In response to feeling isolated by chronic illness and appreciative of remote access to community, I host online Co-Resting Groups. They provide a way to gently socialize and rest in community.
Interested or know someone who might be? Please have a look and share!
Currently accepting applications for an every-other-Monday cohort for people with energy-limiting conditions, starting January 15th, 2024
In response to feeling isolated by chronic illness and appreciative of remote access to community, I host online Co-Resting Groups. They provide a way to gently socialize and rest in community.
Interested or know someone who might be? Please have a look and share!
"scientists in the Netherlands constructed a startling picture of widespread abnormalities in muscle tissue that may explain this severe reaction to physical activity.
I'm not going to lie: it's been challenging dealing with major fatigue, brain fog, pain, breathlessness, random flare-ups, and an ever growing assortment of medical and mobility aids.
I'm not saying this as a pity party, but rather to remind you that every time you get #Covid, it's another chance to join my Long COVID Cool Kidz Club, and you really don't want to be a member. The dues are too high, theres no easy way to cancel your subscription, and the service is terrible!
Thank you Mastodon and the Fediverse for the laughs, conversations, connectedness and the cat photos..... Sooo many cat photos. You really put the social in social media, you adorable weirdos. ❤️
Having chronic fatigue means you feel like someone came and drained your life force in the night. I feel as if a vampire sucked me dry but leaves just enough for me to survive.